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ear abnormality


Forum: Children with Vision, Hearing & Sensory Issues

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  #1  
February 3rd, 2010, 03:56 PM
Amber...1...2...3's Avatar Super Mommy
Join Date: Dec 2009
Location: Alexandria, KY
Posts: 685
My son was born on Jan. 24, 2010. His right ear is "fused" to the side of his head.....There is no opening into the an ear canal so there is no way that they could perform a hearing test on the right ear, and actually there is no way to even know if he has an ear canal until they perform surgery.....This is very scary to me!!!! Has anyone else been through this or anything similar? I really dont have any details til we go to the ENT on March 2nd.

Any advise will be helpful!!!! Thanks in advance!
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  #2  
February 3rd, 2010, 04:37 PM
quietsong's Avatar Just Another Slacker Mom
Join Date: Aug 2006
Location: Missouri
Posts: 42,367
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Oh gosh, hon, that would scare me too!! I've never been through anything similar, but I do know of one little boy who had a similar problem. Gage actually has malformed ears on both sides, inside and out... They found he was deaf in both ears because of it. Today, he's had surgery to make his ears look more "typical" and uses cochlear implants to hear and speak. His mom has a blog:

Cochlear Kids

You might contact her - she's a great lady, outgoing and glad to help, and may have some advice or at least words of wisdom for you!
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  #3  
February 3rd, 2010, 07:16 PM
Amber...1...2...3's Avatar Super Mommy
Join Date: Dec 2009
Location: Alexandria, KY
Posts: 685
Thank you so much.....I checked out the site and got some information.....I got a letter in the mail today that said that Mason needs more hearing testing because he failed the newborn test. His right ear passed the hearing test but since they werent able to test the left ear he technically failed.....I hope that they can do some more testing and find out that he has his hearing....Im prayin that is what happens!!!!
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  #4  
February 4th, 2010, 06:34 AM
mousemomof3's Avatar Platinum Supermommy
Join Date: Oct 2007
Location: Osgoode,Ontario, Canada
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I will keep you in my thoughts and prayers. I hope you get some good new when they do further tests. Welcome to the board. I am Brigitte mom of 3. I have a son that is delayed in speech and is seeing a speech therapist. I look forward to meeting you and sharing stories. I will do some research for you and see what I can come up with.
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  #5  
February 4th, 2010, 06:47 AM
quietsong's Avatar Just Another Slacker Mom
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Location: Missouri
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That he passed in his right ear is FABULOUS news! That means even if he can't hear with his left right now, he's hearing you when you talk to him and getting all that early input that is so important. I'm thrilled to ear that he's hearing you! If it does turn out that he is deaf on his left side, there are so many options out there if you choose them, and even if you don't he'll be able to speak and listen, just have to be careful with where he sits at the table, etc.

I'll be praying for some fabulous answers down the road for you guys, please keep us posted.
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