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Forum: Children with Vision, Hearing & Sensory Issues

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  #1  
May 14th, 2010, 05:16 PM
horrormoviefan
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I have a 4 month old, 5 months next week but he was born 5 weeks early. I noticed almost immediately he didn't seem to hear so we've been through numerous hearing tests and he's been diagnosed with conductive hearing loss due to fluid, which we're trying to resolved but now he's also been said to have no visual or audio response to things. this is not all the time but they did a sound field test and lit up a pig in a light thing and he didn't even look or anything towards the sound or the light. This concerned them. No response to a lot of the sounds either. they say his hearing is near normal levels. My ped wants a cat scan and mri done but we can't get into see a dr for weeks/months and i am just beyond frustrated. What do I do now? Who will help my son? Anyone know anything about this. He's such a good, friendly child. Laughs, coos, loves faces and people. Very interactive but no response to sounds or stuff. He does have light sensitivity, like it you put the hood over his carriage and then take it back in the sun light he will blink but he doesn't care for the ocean wonders mobile thing. LOVES his mickey mobile. I don't understand what's wrong but something obviously is. We've waited 5 months and now we're just really wasting time and I'm scared.
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  #2  
May 15th, 2010, 11:38 AM
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big hugs for you! I really don't know what all is involved with hearing tests, but if you are nervous about vision I would take him to a pediatric opthomologist. Not an optomatrist.
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  #3  
May 15th, 2010, 03:40 PM
horrormoviefan
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thank you. I believe his vision is fine. He smiles laughs and acts completely normal. Most of the time. That's why I don't get this.
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  #4  
May 15th, 2010, 06:20 PM
quietsong's Avatar Just Another Slacker Mom
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I would request another sound field test, or an auditory brain stem response, just to be certain... If he DOES have a hearing loss, you want to know sooner rather than later, and if he doesn't, you'll want it ruled out for certain, you know? I'm surprised they say his hearing is at normal levels when he isn't responding in a sound field test.

Good luck, hon!!
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  #5  
May 16th, 2010, 09:56 AM
horrormoviefan
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thank you. My thoughts exactly but they're trying to INSIST it's more then hearing at this point. I feel like we're just losing all sorts of precious time.
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  #6  
June 18th, 2010, 09:02 AM
mousemomof3's Avatar Platinum Supermommy
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I would get it checked It again to. Book your apoint as quick as you can. Some speciallists take forever before you get to see them.
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