Log In Sign Up

new here with lots of questions.


Forum: Children with Developmental Delays and Disorders

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Developmental Delays and Disorders LinkBack Topic Tools Search this Topic Display Modes
  #1  
April 18th, 2008, 09:24 AM
Platinum Supermommy
Join Date: Feb 2006
Location: Mommy Land, CT
Posts: 11,123
Send a message via AIM to momopotamus Send a message via MSN to momopotamus
Hi everyone. Im Jessica, im a young mommy (21) and my son Zachary is 22 months old, born on June 9th, 2006. Zacharys had a rough start, a few months ago he was diagnosed with Pfapa (its a genetic periodic fever syndrome). He's been delayed on most of his milestones as early as rolling over, sitting up, walking, and now talking, pointing, requesting things, etc. He's easily irritated it seems and bangs his head a lot, throws terrible tantrums, and gets frustrated easily. He has no real words as of yet. He has been in the birth to 3 program here since he was 15 months old, because he couldn't eat anything but baby food and has bad texture issues. Well today, he had his preliminary evaluation for Autism, and he didn't do well at all. So weve been referred to two specialists, one medical and one behavioral. I really dont know anything about any of this, im clueless!! Just wondering if anyone wanted to maybe share their story, like how there child came to be evaluated and how the diagnosis was made, how they progressed, things like that. Im just looking for some sort of hope. I have some questions like how old was your child when they were evaluated/diagnosed? Do you think 22 months might be too early, and thats hes just behind? What did you go through in the pre-diagnosis stage? Like appointments, evals, etc? Im just trying to figure out what im in for. Thanks so much for any help
__________________

TTC#4 since 09/13 Anovulatory cycles 9/13-3/14 Clomid 50mg- No O
Current cycle 3/19/14 Clomid 100mg 3-7 Waiting to O
Reply With Quote
  #2  
April 18th, 2008, 10:03 AM
Platinum Supermommy
Join Date: Jun 2006
Posts: 6,966
Jay did not crawl until he was 11 months old and did not walk till 15.5 months old. He has never talked a whole lot. Alot of babbling. I did not really realize there was anything wrong until we had neighboors with a couple with a child 2 weeks older then Jay. I realized how delayed his speech was.
I think it was October of 2007 I posted on another board about my concerns and one of my friends on there said it sounded like signs of Autism. I started reading the signs online and it fit Jay. I told dh I think Jay has Autism and he basically told me I was nuts. I called Jay's Ped and said I think Jay is showing signs of Autism. They had me come in that day and Jay's Ped no he can not have autism. Well I said at the least he is speech delayed. So he gave me a pamphlet for EI and I called. A lady came out to get all my concerns. Then in the middle of November they came and did a evaluation. Once his teacher came out she kept pointing out red flags of Autism. ( I knew I was not crazy!!) So I called Hershey and they sent out paperwork to fill out then after they recieved they called to schedule a appt. On febuary the 21st is when we took him in. She confirmed what I already knew. So once we get medicad the phycholgist is going to us set up with 30 hrs a week of wrap around service. As of right now Jay has a teacher and OT that comes on a weekly basis.
Reply With Quote
  #3  
April 18th, 2008, 10:47 AM
MrsStuartD's Avatar Platinum Supermommy
Join Date: Aug 2007
Location: Ontario, Canada
Posts: 23,164
Welcome! My son Cameron was diagnosed in the beginning of this February. SInce he's been diagnosed he has gone from no words to 150 words. I take him to a free program play group 5 mornings per week. During that time I work with him on his social skills and I monitor how he interacts with others, what his comfort zones are and then I try to use that to get him to leave his comfort zones. He is also in speech therapy and that has helped a lot. Cameron was diagnosed at 32months and since we don't have a lot of money I try to do all the treatments at home or through free programs. But children normally have a higher success rate if they go to an Autism Intervention Preschool if you can get it funded or are able to pay for it.

Cameron had his first consultation in November of last year and then was sent for a second round where they made the diagnosis. I found the process was low on stress for Cameron and it took about an hour.

Hope that helps. We're here for you should you have any questions or concerns, or even if you just want to vent
__________________

Thanks Nicole (MommaDucks) for my new & awesome siggy.
Reply With Quote
  #4  
April 18th, 2008, 01:45 PM
Platinum Supermommy
Join Date: Feb 2006
Location: Mommy Land, CT
Posts: 11,123
Send a message via AIM to momopotamus Send a message via MSN to momopotamus
Thanks for your support That was the same with Zachary, he didn't crawl until 11months, and didn't walk until about 14-15 months. He does a lot of babbling as well, we always say that he speaks his own language He's been in EI since October of last year, there finally putting everything together and the red flags are flying... Its just hard seeing all the other children..like today we went to the playground and I just get SO discouraged, all the other kids are running around playing together, or playing on the slides and stuff, and my sons just sitting alone playing with the wood chips or spinning the little tic tac toe thing.. And theres kids his age that are almost peaking in sentences by now, and he doesn't even have words. Its just frustrating. Im hoping we can get things moving, we've been assigned to an occupational therapist in addition to his 2 teachers..hopefully she can help more.
__________________

TTC#4 since 09/13 Anovulatory cycles 9/13-3/14 Clomid 50mg- No O
Current cycle 3/19/14 Clomid 100mg 3-7 Waiting to O
Reply With Quote
  #5  
April 18th, 2008, 02:50 PM
picklesmama's Avatar <;,><
Join Date: Apr 2006
Posts: 22,604
Welcome!
My boy Angus was diagnosed at 31 months, but his doctor(s) first brought up having him evaluated when he was 2 ˝.
Angus developed a little behind his brother and sister with his motor skills, but still within normal range - he sat up on his own around 7 months, crawled about the same time, started cruising around 9 months, and walked on his first birthday. He has always been quirky though, and quite behind with his communication skills - pointing, talking, answering to his name.
Once the possibility of autism was raised, I was given a referral to a developmental specialist, and while we waited for that appointment, he was evaluated by Early Intervention and qualified for their preschool and speech therapy. So we started with that right away. We also had a therapist come to our home and work with him weekly until he reached age 3, and since then he has been going to an inclusive preschool at the elementary school. He has made leaps in his progress and now can speak well enough to ask for what he needs, it's wonderful I am confident he will be able to mainstream into his elementary school's kindergarten
ETA Did I say that when we began his therapy he wasn't talking? Couldn't even say mama. That was 18 months ago. A couple of days ago he came to me and said "Mama, I pooey" and, pointing to where we keep the diapers, "need diaper". MAJOR progress. There IS hope!
__________________

Crissy mama to Jack 7.16.01 ~ Mia Bella 10.29.02
Angus Pickle 2.24.04 ~ Sydney Bean 10.26.06 & Kater Tot 2.15.09

Looking for fun lunch ideas for kids? Check out my blog: BentOnBetterLunches!
Reply With Quote
  #6  
April 18th, 2008, 05:01 PM
Platinum Supermommy
Join Date: Jun 2006
Posts: 6,966
Quote:
Thanks for your support That was the same with Zachary, he didn't crawl until 11months, and didn't walk until about 14-15 months. He does a lot of babbling as well, we always say that he speaks his own language He's been in EI since October of last year, there finally putting everything together and the red flags are flying... Its just hard seeing all the other children..like today we went to the playground and I just get SO discouraged, all the other kids are running around playing together, or playing on the slides and stuff, and my sons just sitting alone playing with the wood chips or spinning the little tic tac toe thing.. And theres kids his age that are almost peaking in sentences by now, and he doesn't even have words. Its just frustrating. Im hoping we can get things moving, we've been assigned to an occupational therapist in addition to his 2 teachers..hopefully she can help more.[/b]

I so understand your frustration. Shortly after Jay got his DX we went to borders. They had a thomas train set up. There was a boy around the same age and he was pushing the trains around and talking away and my Jay was in the corner spinning the top of a helicopter. I know we go outside he just wonders around and does not have any intrest in interacting with anyone. Its hard at first because you see all the things that children around your ASD child can do. You will get to the point of acceptance. I have gotten there. When you have a child with Autism when they do the smallest new thing its even sweeter because you know how much work it took.
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 03:17 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0