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Forum: Children with Developmental Delays and Disorders

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  #1  
May 2nd, 2009, 05:02 PM
mommaluvs2730's Avatar Platinum Supermommy
Join Date: Dec 2006
Location: Wasington
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Hi Ive lurked here a few times as Ive been going back and forth on what is wrong with my daughter. I just took a test for her for autism on childbrain.com or something like that and she scored moderate pdd. I know this isnt a diagnosis but what do I do from here? I dont know how to deal with it, what are the tricks to surviving and making life better. The reason why I really started looking at it today is cuz the last few days Nicole has been freaking out over the wind and flower-like leaves falling down. Im not sure if she is just irritate or actually scared. Then she is deathly afraid of the big balls you use for exercising. A friend of mine have a few of them and Nicole really likes them but if they are moved towards her, picked up in the air or come anywhere near her without her willingness she literally freaks out and clings on to me. She is also for some reason deathly afraid of the bath now. She never use to be but when I was pregnant with my second child it was getting to hard to give her a bath so my fiance would give her one. Washing her hair has always been hard so he ended up just dumping water over her head but not like directly over her head so she could breath but Im sure a lot ran down her face and she got scared. So now she is traumatized with her bath if that is the reason why. But she doesnt like her potty wiped anymore. That is a hassle! She whines no no no and pushes me away. Im soo confused on what to do and what to think. Sorry for rambling but I think I have finaly come to admit that my daughter has some sort of behavioral issues. I just hate the fact of labeling her
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  #2  
May 2nd, 2009, 06:50 PM
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What you need to do is get her a evaluation. Developmental pediatrins can do that or Neurologists. I would also contact Early intervention.
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  #3  
May 3rd, 2009, 05:26 AM
Tofu Bacon
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((Hugs)) She sounds a lot like my ds when his signs started emerging, but it could also be a sensory disorder, which can occur with or without autism. I know what you mean about labels, but unfortunately they are a necessary evil in order to get therapies.
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  #4  
May 3rd, 2009, 10:08 AM
mommaluvs2730's Avatar Platinum Supermommy
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Thanks for the advice ladies. I feel bad because Ive always kind of wondered but was in denial but I dont think I can deny it anymore. Im going to call and set up an appt with her pedi to see what he says to do. Ive never heard of a sensory disorder. Do you have any links or info about that??
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  #5  
May 3rd, 2009, 10:42 AM
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If your dd's dr thinks there is nothing to worry about still push for a referall for a evaluation. Most Pedi's do know much of anything about Autism. Remember you are your childs advocate!!
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  #6  
May 3rd, 2009, 07:41 PM
AlexKatieAiden Mommy's Avatar Linda
Join Date: Apr 2009
Location: Wisconsin
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I agree. Push for an evaluation by a developmental pediatrician. Either way they can let you know what is going on with your daughter even if it isn't autism. Here are some of the links on Sensory Disorders.
Here is a checklist (just scroll down to the middle of the page):
Sensory Processing Disorder Checklist
And here are some more symptom checkers:
Symptoms of sensory disorders in children
Sensory Integration Dysfunction
I hope these help.
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  #7  
May 4th, 2009, 07:11 AM
mommaluvs2730's Avatar Platinum Supermommy
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Thanks for the links. I actually looked up sensory disorder and it sounds a lot like PDD with minor differences. It seems as if she has similarities with both disorders. Im waiting on a call back from the pedi office to schedule her. Not sure though if my insurance covers screenings like that. It should though.
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  #8  
May 4th, 2009, 08:54 AM
AlexKatieAiden Mommy's Avatar Linda
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My insurance covered the evaluation but won't cover anything else. Good luck with everything and keep us updated.
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  #9  
May 4th, 2009, 09:19 AM
dotcomkari's Avatar Bianca, Kai & Asia's mom
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Our family doctor set up Kai's apt all for us. I just stated my concerns to him and he set it up with the evaluation department for us.. and within a week Kai was tested.. and tested.. and tested.. *L* I have to warn you.. the tests can be lonnnng.. but it is so nice to know for sure in the end
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  #10  
May 4th, 2009, 10:44 AM
~Jess~'s Avatar Platinum Supermommy
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I'm in CA and I went thru the state's early intervention service, which was free. My doctor even referred me there. The process took 5 months from start-to-finish.
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  #11  
May 4th, 2009, 12:49 PM
mommaluvs2730's Avatar Platinum Supermommy
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What is all involved in the test. Im worried because Nicole is so shy and withdrawn that she isnt going to be her normal self and look/seem worse off than she is kwim? I scheduled her an appt for the 29th but Im gonna have to reschedule cuz I know I wont be able to get to work late that day. But the doc is pretty much booked til then....I just feel like every minute I dont do something that its getting worse. I know silly right?
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  #12  
May 4th, 2009, 03:08 PM
AlexKatieAiden Mommy's Avatar Linda
Join Date: Apr 2009
Location: Wisconsin
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Not silly at all. I felt the same way. Even after the diagnosis I felt like something had to start now, like therapy or whatever just couldn't wait for another day. I hate just sitting around feeling like I can't do anything. With Alex's appointment, they asked me alot of questions about what I was seeing at home and observed him. But that was an appointment with a specialist that only deals with children on the spectrum. Alex hasn't been seen by a developmental pediatrician but has seen alot of other specialist's.
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