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Potetinal Delay/Disorder: What Should I be Asking?


Forum: Children with Developmental Delays and Disorders

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  #1  
December 31st, 2013, 01:39 PM
Newbie
Join Date: Dec 2013
Posts: 5
Hello and Happy New Year to you and yours!


As mothers, I know you understand my plea! I am seeking any little advise to make sure I am addressing concerns and getting the right people involved at the right time and asking the right questions and getting the evaluations and help my little boy may need. Forgive me if this gets long!

I have boy girl twins that turned 2 years in October. Though I try not to compare them, she has always been far ahead of him in development (motor skills as well as speech & communication). Everyone says "He'll catch up, stop worrying, there is nothing wrong with him." But how do I ignore my instincts that he needs help?

Both had multiple ear infections and had tubes put in ears at about 9 months. I had a child development specialist evaluate him when he was 16 mo for concerns he was not talking or walking like his sister. She said he was a little delayed, but did not warrant therapy at that time especially because of the ear issues and since they were born 5 weeks premature. Of course, I got the "told you so" from everyone. But I was still not convinced.

Age two - at Pedi checkup, no red flags with the survey we completed which I think was for signs of Autism or sensory issues. But at my request, she referred to him speech therapist for evaluation. He has had about 6 sessions, working on verbal and non-verbal communication (modified signing) and social cues - play pattern etc. FINALLY someone else who is picking up on little signs of potential developmental issues! She had me complete a detailed questionnaire last week about different sensory categories. I am waiting for that assessment from an occupational therapist.

Good signs: makes eye contact, interacts well, laughs and engages, waves and blows kisses and overall very happy toddler.

Concerns

Sometimes seem to have trouble getting him to "tune in"


Spends significant time watching moving objects such as a ceiling fan, or focusing on one specific part of an object such as the wheels of a toy car

Doesn’t ask for help or make other basic requests

By 24 months: no meaningful two-word phrases that don’t involve imitating or repeating

Speech and language difficulties, non-verbal communication difficulties - Has difficulty communicating needs or desires

Doesn’t understand simple directions, statements, or questions

Staring at lights

more recently: covers ears at unfamiliar sounds (not necessarily loud or scary - just different) also covers ears with uncertainty or stress. For example, in crowds, or when he reached for sippy cup and it fell on floor and a little spilled water. He has never gotten in scolded but seemed stressed until I comforted and reassured him)

recently started making strange, brief hand gestures (opening and closing fingers) near his temples when he is excited about something.... I'm not sure if that is stimming because I don't know if his hands are visible to him)


ANY ADVICE?? Am I seeking out the right people at the right time? (so far, Pedi, Developmental specialist, speech therapy and now potentially occupational therapist? )

Are there things I should be asking...or requesting specific tests? Seems most are saying they won't know anything for sure until he is about 4 yrs old and they seem to be in no hurry to diagnose or treat.



I just want to educate myself and if he needs the help, get it for him as soon as possible. Any advise so greatly appreciated!

Kind Regards!
Rhonda
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