Log In Sign Up

Help! Language Delay


Forum: Children with Developmental Delays and Disorders

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Like Tree1Likes
  • 1 Post By momtwothree

Reply Post New Topic
  Subscribe To Children with Developmental Delays and Disorders LinkBack Topic Tools Search this Topic Display Modes
  #1  
March 27th, 2014, 12:02 PM
Newbie
Join Date: Mar 2014
Posts: 6
Hi Everyone,

My son turned three yesterday, and he has a vocabulary of maybe a handful of spontaneous words. He seems to understand most of what's going on, he loves to play with his sister, and he is very social. He's a cuddle bug!

Since December we have been taking him to speech therapy, and he received Early Intervention services, but now he has aged out of EI and we're waiting for his evaluations with the Board of Education to determine if he's eligible for their preschool program.

He has been evaluated by two different speech therapists (the first one was absolutely wasting his time with feeding therapy despite the fact that he never had a feeding issue!), and we're currently waiting for his appointment with the developmental pediatrician. I've been reluctant to take him to a DP because I was afraid of a diagnosis of ASD, only because it just doesn't seem to fit. He has a couple of signs of autism, but he's too outgoing and social for that disorder. I broke down when it was suggested by a couple of the EI therapists.

But we recently found out that he has had Chronic Otitis Media with Effusion (fluid in ears minus the infections), and in January he had bilateral tubes placed in his ears. We have no idea how long it had been affecting his hearing, and every time he gets a cold it goes straight to his ears. He gets fluid build-up again, and he needs ear drops.

I was just wondering if anyone out there with some experience with this would have any advice? He understands what's going on, he just doesn't say much. He repeats everything, not like echolalia, but if he wants juice and I ask him, he'll repeat "juice". With speech therapy and working with him at home, he's beginning to say what he wants spontaneously. Usually he'll just take me by the hand and bring me to what he wants. We're trying to break this behavior. His behaviors that could fall under ASD include rolling his toy cars back and forth, and rolling them on his chest. But more recently, he's been more socially outgoing, and he loves to play with my older daughter and her friends. He runs around and chases them, trying to join in. When he's tired or needs a diaper change he'll climb into my lap.

I'm thinking he might have Expressive Language Disorder. If anyone could lend any insight, I'd really appreciate it! Thanks!
Reply With Quote
  #2  
March 28th, 2014, 07:54 AM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
Did he only get speech evaluations through EI or did you get a referral for a private speech therapist? As much as I LOVE our EI speech therapist, she nor the other speech therapists in our EI program do an actual diagnosis. They identify a speech delay and then work with the child but they are a little limited in what they can do. A private SLP, though, usually can do a more thorough evaluation and can help really pinpoint what's going on. My oldest has a form of apraxi, my second has a communication disorder, and my toddler has some motor and anxiety issues that are affecting her speech. My youngest doesn't even qualify for speech services through EI, even though she is in the program, so her speech therapy is at the Children's Hospital.



My middle child is going to be five in May and he is in his second year of special education preschool--he receives speech twice a week and his classroom is speech-centered. He's still pretty delayed, though, but he's made a lot of progress. When he was three, we had had tubes put in for chronic fluid. It helped but not a whole lot--however, he has other things going on, not just speech. His pediatrician thought he was autistic but it was ruled out. In a few weeks he has an appointment with a neuropsych to start getting evaluations to try and figure out just what exactly is going on with him. Everyone is in agreement there there's something going on and he needs services and support but we just have no answers on what it could be He has so many of the autism markers that I wouldn't be surprised if the neuropsych wants to redo his own set of evaluations for it.
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz

Last edited by Hazel; March 28th, 2014 at 07:55 AM. Reason: JM just LOVES to remove my paragraph breaks when I hit post......
Reply With Quote
  #3  
March 28th, 2014, 11:41 AM
Newbie
Join Date: Mar 2014
Posts: 6
First of all, thanks so much for responding!! He was evaluated by two private SLPs. The first one (who he no longer sees) diagnosed him with apraxia and ankyloglossia (tongue-tied). The ankyloglossia was confirmed by an ENT Specialist, and he had his frenulum snipped and tubes placed in his ears at the same time. But I didn't agree with the diagnosis of apraxia, but when I questioned her she always managed to avoid a direct response. The second SLP really didn't give us a "diagnosis", but referred us to a Developmental Pediatrician (I'm pretty sure they think he's autistic). We have four evaluation dates coming up during the end of April through the beginning of May with the Board of Education, but he hasn't been officially evaluated by them yet. Through EI he received Speech and Cognitive services, but only for three sessions each. Unfortunately, he just aged out of EI, but I wanted to get him started, and I'm really glad I did. They were awesome! Now I just wish I could somehow move up his preschool evaluations, because he won't even start that until May at best. I'm hoping if he has some solid diagnosis by the Developmental Pediatrician that maybe I can get in touch with the Board of Education program coordinator and they can maybe expedite his evals. My son sounds so similar to your middle guy. He has some autism markers as well, but he also displays contradicting behaviors. It's funny that your little guy also had chronic fluid because I've had the feeling that that has a lot to do with it, more so than just hearing. Did he have chronic infections, or did he just have fluid? What other issues does he have? My son loves cars, but he doesn't play with them "correctly"; he watches them roll on the arm of the sofa, and he loves to roll them across his chest and down his belly. He prefers playing alone most of the time, but he loves playing with his big sister too (she'll be 8 in July). When is his appointment with the neuropsych? I called around for DP's in the area, but there are only 5 on my insurance list, and 2 of them couldn't even put me on the waiting list for an appointment because it's too long (over 200 patients), and another one told me they were currently booking for April 2015. I'm very fortunate to have access (and resources) to a DP that doesn't take insurance and was able to give me an appointment in mid-April. Between the EI therapists and SLP #2, I feel like in the last few weeks he's already made some progress, but he is still far behind. Thanks Hazel!!
Reply With Quote
  #4  
March 29th, 2014, 08:21 AM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
My oldest (now 8), very clearly had apraxia--my two younger ones show some "signs" of apraxia as well but not severe enough to get the label. Their speech is better than my oldest's ever was--he really struggled to figure out how to make the sounds and we did a lot of tactile work together to help him learn how to position his mouth to make the sounds. He still works with a speech therapist through school.

Bryce didn't have a single ear infection until he started to self-wean from nursing. Once nursing became an occasional thing instead of a part of his routine, he was hit with ear infections pretty much every time he got sick. EI checked his hearing and he couldn't pass the test. His pedi double-checked his ears to make sure they were clear and he still couldn't pass the test. Went to ENT and he took allergy meds for a month to dry up the fluid--ears clear (still couldn't pass the hearing test!), went off the meds, month later the fluid was back. So tubes it was. Its been over a year and one of the tubes is working its way out. I am hoping that ear doesn't fill back up so we don't have to get another set! About a month after he got his tubes, he finally passed a hearing test

One of Bryce's main issues is that he fixates on things or ideas and once his mind is set on that, you cannot break that focus. It is way beyond stubborness--even if he wants to, he can't stop focusing on whatever it is. And if he can't follow through, he has what we call a rage. His teacher and I have been working together on ways to help him through it but there are times when nothing works and all we can do is hold him tight so he doesn't hurt himself or others until the storm passes I call it his reset--he gets so worked up, its like he isn't even in there anymore, its just the rage at not being able to complete the fixation and then he shuts down. Goes limp, covers his head with his arms and goes completely still for a while. Then he will blink his eyes and its like nothing ever happened and he is a happy little boy eager to follow directions.

He, too, loves cars and trains and planes but mostly so he can spin their wheels, roll them back and forth, or roll them off of things. He likes to talk about his friends but he does not interact with them. He is very social with adults, though, just not kids (aside from his brother or sister but even then he often chooses to play alone).

He has trouble following someone else's plan. He needs to do things on his timeline and gets upset when you insist on yours. His teacher has worked to provide structure while also giving him choices when she can to help him feel a little bit of the control his mind needs. Again, he falls back to the fixation thing--when he gets it in his mind that something needs to be certain way, he NEEDS it to be that way.

We see the neuropsych is about two weeks for our intake appointment and hopefully get further evaluations scheduled so we can get to the bottom of things! Getting a definite diagnosis will help us and the school form a much better plan on helping him because they will know direction to go in to help him. And we can finally get him some services to work with! I've been trying for over two years now to get some answers and it is so nice to finally be getting somewhere!

We are also working with genetics now because all three of my kids have related issues. Our pediatrician thinks the chances or us getting three kids with similar problems randomly is quite low so we are looking to see if there is a genetic link. If they have some sort of syndrome, we want to know so we can be prepared for what comes next!

I hope the DP can give you guys some answers and guidance and where to go from here!
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz
Reply With Quote
  #5  
April 2nd, 2014, 09:56 PM
Kinsma90's Avatar Impatiently Waiting
Join Date: Feb 2014
Location: NWLA
Posts: 922
Seriously? I typed this huge thing and it got cut off! Anyway...

Don't be afraid of ASD testing. I know it is scary territory but the testing they do for Autism is really thorough. Your son may have some ASD behaviors, as did my DD. In fact almost every child has some behavior that has a stigma of being and Autistic behavior - much like lots of us have OCD like behaviors without having OCD. IT it completely normal. And her specialist also seemed like they already had their minds made up going in. But they will not give a diagnosis of Autism unless he has several markers in every category. So, if he doesn't have any social markers, he is unlikely to receive a diagnosis of Autism. But even if he did, the only thing that will change is doors will open for him to receive more therapies. I read a quote today that summed it up well: "Autism is a label that gets my son the therapy he needs." It won't change him or what he is capable of. And if you do the testing and he gets a diagnosis of not on the Autism spectrum, it wouldn't be all for naught. My DD's diagnostic packet says "Not enough markers for a diagnosis of Autism" but it also said "Dr recommends continued ST, OT, and early enrollment to Pre-K at age 3, which I think could only make it easier to get OT and keep getting ST from the school board when she ages out of her current ST at 3 like your son did. Obviously, you know what is best for your son, so take what I say with a grain of salt, but in my experience, the ASD testing can only help and they won't diagnose him Autistic from just a few behaviors.
__________________
Met DH 2006 NTNP. Engaged 1/1/07 TTC. Married 9/23/07 ATTC.
OPK, BBT, Prenatals, Vitex, PreSeed, Instead Cups, FHS Test, etc.
BFP 06/2011. EDD 3/2. Dx ICP @ 31wk5d. DD born 2/3 @ 36w0d.
NTNP 2/2012. TTC 7/2012. ATTC 1/2013. TTCMA 01/2014.
MA Cycle #1 400mg Prometrium. CD1 2/7. 50mg Clomid CD 3-7. BFN.
MA Cycle #2 CD1 4/3. 100mg Clomid CD 3-7. BFP 4/25 @ 3w2d.
EDD 1/6/15. Dx ICP @ 32wks. DS born 12/22/14 @ 37w5d.

Last edited by Kinsma90; April 2nd, 2014 at 10:05 PM.
Reply With Quote
  #6  
April 3rd, 2014, 10:40 AM
Newbie
Join Date: Mar 2014
Posts: 6
For a while I was terrified of ASD testing. I guess we all have fears when we realize our children aren't perfect. And I partly felt that having a diagnosis wouldn't really change anything as long as we got him the therapy he needs. That being said, my insurance company will pay for speech therapy, but only if his need for it is related to either a congenital issue or if he has been diagnosed with ASD. I've been taking him to speech privately since January, but I recently changed therapists because the original SLP spent the entire session with feeding therapy (which he does NOT need; he just turned 3 and weighs nearly 40 lbs lol). But the new therapy office is great, and I feel he has benefited from it. And the awesome ladies from EI mentioned that there's a Sensory Gym located close by. I'd never heard of that before, but she checked it out and they accept insurance. Between everything, I knew I had to put my own emotions aside and do whatever it takes to get him all the therapy he may be eligible for. And if it means he'll be labeled, then he'll be labeled. But you're absolutely right, and to hear it again makes me feel better And as crazy as it sounds, he's still having issues with his ears. All winter long, our entire family has been passing back and forth some nasty cold-like illness that we recover from but then it pops up again. I think one of us gets better and then someone else has it and gives it back That cannot be helping with his ears either. Thank you for the encouraging words! It really helps to connect with other people going through similar experiences.
Kinsma90 likes this.
Reply With Quote
  #7  
April 3rd, 2014, 10:57 AM
Newbie
Join Date: Mar 2014
Posts: 6
Hazel - It sounds like you're going through so much! It's torture to know there's something going on, but not knowing what it is. For me, the hardest thing to deal with is seeing my son get so frustrated because sometimes i just don't know what he wants. It's heartbreaking. Bryce reminds me so much of Linus. I know Linus connects on an emotional level with both of his sisters in such different, yet appropriate ways. He doesn't exactly fit the criteria for ASD either. I've read and read all of the signs for apraxia, and I'm really not convinced that that's his problem either. What signs of apraxia did your oldest son display that differs from your middle son? It's ironic because Linus didn't have any ear infections at all until the tubes were put in. Since January he's had 2 ear infections. I guess it's better that we're able to treat it now at least. But now he screams when we go into a doctor's office of any kind, probably because he's had quite a few evaluations over the past few months, and he's not a fan of the ENT specialist. One Saturday morning we went to have breakfast at a diner and it was busy, and I think the waiting area may have reminded him of a doctor's waiting room, and he just had it. He had such a tantrum that we had to leave. He's usually so easygoing too, so it was very out of character of him. Good luck with the neuropsych! I'm sure they'll be able to figure it out. Keep us posted on the results!
Reply With Quote
  #8  
April 3rd, 2014, 08:57 PM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
For my oldest, there's a disconnect between brain and mouth so he had trouble getting his muscles to do what they needed to. There's a good list of symptoms here: Dyspraxia Symptoms - What are the Symptoms of Dyspraxia? While he didnt fit all of them, most of them do. It's so much easier for him now (he's 8) but you'll still catch him pausing and see his mouth working as he tries to sync up what his brain is telling his mouth to do (not just in speech, eating as well).
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz
Reply With Quote
  #9  
April 3rd, 2014, 09:54 PM
Kinsma90's Avatar Impatiently Waiting
Join Date: Feb 2014
Location: NWLA
Posts: 922
Quote:
Originally Posted by Hazel View Post
For my oldest, there's a disconnect between brain and mouth so he had trouble getting his muscles to do what they needed to. There's a good list of symptoms here: Dyspraxia Symptoms - What are the Symptoms of Dyspraxia? While he didnt fit all of them, most of them do. It's so much easier for him now (he's 8) but you'll still catch him pausing and see his mouth working as he tries to sync up what his brain is telling his mouth to do (not just in speech, eating as well).
I know that wasn't for me, but I will ask my DD's SP about that b/c she has a lot of those! We both agree it seems to know what thigns are but not get her mouth to do what her brain wants.
__________________
Met DH 2006 NTNP. Engaged 1/1/07 TTC. Married 9/23/07 ATTC.
OPK, BBT, Prenatals, Vitex, PreSeed, Instead Cups, FHS Test, etc.
BFP 06/2011. EDD 3/2. Dx ICP @ 31wk5d. DD born 2/3 @ 36w0d.
NTNP 2/2012. TTC 7/2012. ATTC 1/2013. TTCMA 01/2014.
MA Cycle #1 400mg Prometrium. CD1 2/7. 50mg Clomid CD 3-7. BFN.
MA Cycle #2 CD1 4/3. 100mg Clomid CD 3-7. BFP 4/25 @ 3w2d.
EDD 1/6/15. Dx ICP @ 32wks. DS born 12/22/14 @ 37w5d.
Reply With Quote
  #10  
April 4th, 2014, 08:46 PM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
If she has it, it's good to know because then therapy can be more targeted to help her teach her muscles how to act
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz
Reply With Quote
  #11  
April 24th, 2014, 08:11 PM
Newbie
Join Date: Mar 2014
Posts: 6
Hi Again
Just wanted to say hello and write an update. Last Friday, my son had his evaluation by a Developmental Pediatrician and it turned out that he does have autism. He was diagnosed specifically with Sensory Processing Disorder, and Expressive and Receptive Language Disorder. I'm so shocked, because she pointed out behaviors that were considered stims, which, I really didn't know were. Before his diagnosis I was focusing on getting him accepted into a part-time pre-k program, but the DP said he's going to need a much more intensive program. I feel so bad that I didn't do this sooner, but he's still young. I naively thought that since he had so many non-autistic behaviors that they would negate the autistic-like behaviors. Hopefully now he's on the right track and he'll get the help he needs.
Reply With Quote
  #12  
April 24th, 2014, 08:56 PM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
It's good that you have some answers now--he'll get the services he needs

Oh, and a little update on Bryce--we had our intake appointment and the neuropsych wants to do a full set of evaluations. He has some doubts about the ASD evaluation that ruled out autism (it was through our county mental health department) so it looks like we will be re-evaluating that. So those evaluations are in a few weeks
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz
Reply With Quote
  #13  
August 19th, 2014, 08:31 PM
Hazel's Avatar Mega Super Mommy
Join Date: Jan 2011
Posts: 2,661
Quote:
Originally Posted by momtwothree View Post
Hi Again
Just wanted to say hello and write an update. Last Friday, my son had his evaluation by a Developmental Pediatrician and it turned out that he does have autism. He was diagnosed specifically with Sensory Processing Disorder, and Expressive and Receptive Language Disorder. I'm so shocked, because she pointed out behaviors that were considered stims, which, I really didn't know were. Before his diagnosis I was focusing on getting him accepted into a part-time pre-k program, but the DP said he's going to need a much more intensive program. I feel so bad that I didn't do this sooner, but he's still young. I naively thought that since he had so many non-autistic behaviors that they would negate the autistic-like behaviors. Hopefully now he's on the right track and he'll get the help he needs.


How are you and your son doing?
__________________
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Mom of S, B, and Iz
Reply With Quote
Reply

Tags
asd , language delay

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 07:23 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0