Forum: Children with Developmental Delays and Disorders
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Okay Tori had her "evaluation" appointment today. Pretty much they asked questions about her. A survey.
I really didn't learn anything new, just a confirmation of what the dr already said. She is developmentally delayed in 5 of 6 things. Communication, problem solving, muscle tone, and something else she is delayed on. She passed the gross motor skills. She can't play peekaboo, patty cake, hand us the toy we tell her too, put her toes in her mouth, stand while supported, and many other things. All those are by 10 months. Since she is 10 months on Saturday that puts her delayed. The most interesting thing I did learn was she stands with her ankles rolled. She basically stands on her side of her feet with her legs curved or bowed. She has weak tummy muscles (just like mommy we need to do crunches together).
What does this mean? Well she needs therapy. She said that typically they pick one area we think she is the weakest in and focus on that... We picked muscle tone. Then we can add another area down the road. I have two more evaluations before therapy will start. But it should start in 2 weeks... So the next two appointments will be quick....
She did say she didn't think it was major either, but there is not anyway to know until she is older.
Okay now how I feel. Sad but relived. More relief then anything. I knew something wasn't right, you all know that... This is just conformation. BUT I still love my little girl. If it is something major, I STILL LOVE HER! If it is nothing, I still love her. Regardless of what it is, I LOVE HER. It doesn't change a thing. And it will be years before I really know the truth...
My DH finally sees the delays. The questions the lady asked really made him see how far behind she is... He took off work to be here. I know he was worried, he just didn't tell me.
My MIL still thinks she is fine and that there is nothing wrong. She even argued with some of the things the person evaluated. Like the standing...my MIL says she stands fine. That she never saw her stand on the sides of her feet. She is in denial.
REGARDLESS we are getting help and will continue. I still love my sweet little Tori!
Please don't feel sorry for her... she is FINE! I am not in denial, I am just glad to start getting help for her that I know she needs. Thanks for all your support!
I am glad the evaluation went well and that she will be getting the therapies she needs. And I completely nuderstand how you feel. My dd has been globally developmentally delayed since she was about 12 months old, and she is still delayed at 5. Good luck with therapy and keep us posted.
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
Glad she is getting the therapy she needs this early. My son had global developmental delays. He didnt get evaluated or get therapy until age two. He was delayed in speech, small moter skills, social, sensory motor, and problem solving. He was fine on large motor skills. He got all caught up shortly after turning five.
I really hate it when people think your baby is slow or somethin. That really irratates me. I had a preemie and my brothers girlfriend is consantly telling me my daughter is gonna be in special classes in school.
My daughter is not slow or retarded. She's a preemie and ALL babies have delays in some category.
My daughter didnt walk until she was like 17 months, rolled over for the first time when she was 7-8 months.
Kids have delays.. Your baby is fine. Your baby is PERFECT to You hon. Don't worry, your baby will catch up.
Baby#1 In Heaven----January 25, 2006
Baby#3 In Heaven----September 27, 2007
(Mom) Carol- 5.13.50-10.01.05
(Dad) Ted- 11.06.45-10.04.01
I love you guys & miss you terrible.
Taleika Jean was born August 24, 2006 at 27.5 weeks along. Born 2.2 lbs and 13 3/8 in long
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WOW!!! We're in the same exact boat (so far), with the two exceptions that DD did well in problem solving, and DD stands on her toes, not sides of her feet.
I know what you mean about MIL, except for a very long time that was the pediatrician's view too. I really had to push them to get her evaluated, and when we did it pointed out exactly how far behind she is and it was much more than we had expected.
DH was in the same denial boat. "Yea so she hasn't done it yet, she'll catch up. She's fine".
I certainly can't feel sorry for you guys, cause I know how relieved I was once we started the evaluations and what a great thing it is to have someone acknowledge it when you know there is something that isn't right. I'm so glad that you guys are bale to get the help that Tori needs, and our PT said that physically DD has a very good chance of catching up as long as she has help and continues to make progress (DD has always made progress, but at a MUCH slower rate than others).
We didn't roll tummy to back until 7 months.
back to tummy around 10 months.
doesn't stand even assisted more than 1 to 2 seconds.
DD can basically do most of what a 5 month old can do.
That's fine, my little angel will do it on her own time. I can't blame her for being a little diva, and choosing to take as long as she wants.
Best of luck for the docs in the future (we're currently in 2 programs and seeing 4 different kinds of specialists). In the month that we've actaully been able to get her help, she's already making quite a bit of progress.
BTW, She's beautiful..
and if you ever need to talk, I'm around.
"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."