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Forum: Children with Developmental Delays and Disorders

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  #1  
January 5th, 2008, 01:16 PM
bunni0407's Avatar Mega Super Mommy
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My name is Kelley,25 married to Nathan,34 and we have 2 boys Thomas 3 and Andrew almost 2 months. We really didnt have any idea that Thomas had any signs of Autism until someone mentioned it to DH. So I was able to get him in for an appt wiht his pediatrician on Jan 2nd. She watched him and talked to him for a little while and recommended that we go see the specialists, so I had to wait and get those numbers (which I finally did on Fri). She said just from watching him he more then likely has a mild case but she cant be 100% positive. So after I got the number for the specialist I called, I was told it would more then likely take a few months before he was able to be seen, and they can get him in on Jan 8th after he gets done with school. I was very suprised that they could get him in that early but the lady I talked to said someone had cancelled and if they hadnt just cancelled it would have been late March before he was able to get in. Im a little scared to see what they have to say but I know that no matter what this will be in his best interest to get this figured out. So if anyone wants to know I will update on Tues after the 2+ hrs appt.

Thx for listening.
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  #2  
January 5th, 2008, 03:10 PM
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Hi Kelley, I'm Crissy, my ASD kiddo is Angus, he'll be 4 in February, he was diagnosed with autism in October of 2006. Welcome to the board. That's great you are getting him in so soon! Early intervention can have a huge positive effect. I'm sorry this is short I have to run some errands but I just wanted to say a quick hello!
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  #3  
January 5th, 2008, 04:20 PM
Tammyjh's Avatar Platinum Supermommy
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Hi Kelley

I think its great that an appointment was available so soon and it will be interesting to hear what they said. Sending you lots of peaceful vibes for appt. day.
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  #4  
January 6th, 2008, 10:13 AM
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Hello, and welcome. I'm glad to hear you and your hubby were open to whomever it was that suggested your son might be affected.

I'm Yolanda and my son is Hunter and he just turned 10. He was diagnosed August 9th, 2001. Back then he was non-verbal and prone to tantrums and had sensory issues. Today he is in a regular 3rd grade classroom with some accomodations, but is doing very well. He still has trouble with his words and communicating and he gets so distracted and seems lost sometimes, but I'm not quite as worried about his future as I was in the beginning.

It was brought to my attention (he was my first child, so I had no one to compare him to) by my sister, who is an elementary teacher. She was very hesitant to mention it, but I'm glad she did. I didn't go to my ped., I personally think they don't know anything about it, but instead called what is called Early Intervention in Michigan, where we were living at the time. People came two days later and evaluated him in our home and found him to be Speech and Language Impaired. An ST and OT worked with him and he attended a special preschool. Then at age 3 his teacher, who had training in autism, suggested he get evaluated for that. We had a three month wait, but it wasn't just a two hour appointment. I was very impressed with how thorough (sp) they were. They watched him at home, at school and in a neutral environment and interviewed me. After about two weeks we had the final meeting, but at that time, I had read up on autism a lot and I had already decided for myself that he had autism, but it was still upsetting to hear it from the team.

I hope whoever is doing this is as complete as the people who worked with Hunter were. There's another mama on this board who's son was diagnosed, but from what she says he's doing and she has even said other professionals don't think so, I think whoever did the evaluation jumped the gun, IMO.

If he is, don't worry about his label, it will help get him the services he'll need and every other year, at least here in Ohio, Hunter is re-evaulated. That was this spring and he was still found to have autism, but he has come a long, long way!

Good luck!
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  #5  
January 6th, 2008, 03:57 PM
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Hi, I hope the evaluation goes well. My ASD son is 11 1/2, he wasn't given a formal ASD diagnosis until he was 6 because they didn't like to formally say autism before 6 back then. I'm glad they do it earlier now as it opens a lot of doors for early intervention. My son was non-verbal, aggressive and very frustrated at three and we wondered what he would be like when he got older. He is now in mainstream school with lots of friends, he does have autistic traits and get depressed very easily but all in all autism hasn't been too bad for him.
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  #6  
January 7th, 2008, 05:35 AM
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Everyone thank you so much for being so helpful. When I talk to my mom about Thomas she says were the ones who are pushing this label on him. I havent pushed anything on him and neither has DH. Im very nervous about Tues, just cuz I will find out what the Dr has to say along with having an 8 wk old baby in the appt with me and Thomas.
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  #7  
January 8th, 2008, 07:27 AM
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Thinking about you today and hope that it all goes well.
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  #8  
January 8th, 2008, 12:40 PM
bunni0407's Avatar Mega Super Mommy
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Well we went to his appt today and he has moderate autism. We have an appt with another dr on March 6th. We have to come up with a group of people that are in life the most that are willing to help him out. So I figured me,DH, MIL & his preschool teacher would be great.
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  #9  
January 9th, 2008, 05:25 AM
outnumbered's Avatar Platinum Supermommy
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Hopefully you're feeling some relief with the diagnosis, now he can get the help he needs and he just might be one of those boys who "grow out of" the label!

You have to come up with a group of people that will help him out? I don't understand? Is anyone trained in autism going to work with him, or do they just mean when he's at home, get a group together so they can learn how to help him the best?
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Jump into Spring! BPAFreeKids.com wishes you good times and warmer weather!

I am a breastfeeding, cloth diapering, co-sleeping, no crying it out, baby wearing mama of 3 boys, one of which has autism. Meet my boys here (having technical difficulties with my website). My blogs are On Top of Mt. Laundry and The Cache Checkers.

Most frequently found at the Cloth Diapering board but also a member of the July '05 PR, Austim board and the Choosing Not To Vaccinate board.

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  #10  
January 9th, 2008, 06:29 AM
bunni0407's Avatar Mega Super Mommy
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Yeah we have to set up a group of people that he spends alot of time with,teachers,parents,grandparents,ect... and make a list of things he needs to work on. The dr will explain more in March.

And yes I feel better but his type of autism, fits in alot of the other catagories. He has pdd-nos, so we have alot to look up.
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