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Forum: Children with Developmental Delays and Disorders

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  #1  
January 8th, 2008, 08:05 PM
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Join Date: Oct 2005
Location: Texas
Posts: 190
Hi everyone,

I just wanted to introduce myself. My name is Lindsey and I have a 21 month old son, Hayden. My son was born with bilateral Adductus Metatarsus (his feet turn inward and toes curl under when walking) and so he was a little late walking. It was understandable since he has to wear corrective shoes and so when he wasn't saying a word by 12-13 months we just figured he was going to be a little late since he was wasnt even walking yet. Well by 18 months I expressed my concerns to our doctor and was told its normal for boys to be behind. I contacted our local ECI/child find and they came right out to screen him. He qualified for services and we have worked with them for about 3 months now. It was suggested to get a hearing test done since he was Not mimmicking any words and rarely babbled(plus I have a family history of hearing impairment). Since our insurance is not good it took about a month to finally get a referral to the audiologist!

That appointment was today and it has been a difficult day for me. The first thing he did was a 'pressure' test to check for fluid. His left ear was a 'flat line' which means that he has very little hearing if any in that ear. His right ear did show a small 'peak' so we know that he has some hearing in it. What was so heartbreaking was the next part of the test. We were taken to a sound proof room and sat in a chair with a speaker on each side. The lady called his name over and over and made different noises in the left speaker....he just sat in my lap, picking at his blanket. then she did the same thing in the right speaker and he just sat there still as can be looking at the toy car we brought. No response. I could feel the tears coming at that point. The audiologist said that there really is no way to know if after the tube surgery he will have good hearing. I am sure that it will help a whole lot but it just sickens me that all this time I thought he was being needy and not talking was out of him not wanting to listen to me(now I know its because he can't!!!! ). Now I know why he crys so much, I would cry too I had no way of verbally communicating to anybody. I'm sorry, I just had to let this all out, I'm in tears now just writing it, I feel like a horrible mother. I'm sure things will work out and he'll be fine a few years from now, its just all so overwhelming at this point.

Thanks for listening and I hope to get to know you all and your kiddos better. JM has be a great place for support I dont know what I would do without it!

Edited to add pics:
Hayden and Hannah (my kids)

One of my favorite pictures of Hayden
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  #2  
January 9th, 2008, 07:32 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
Welcome, I am Jennifer, mommy to Alexis who is 5. She has septo-optic dysplasia, a condition that causes visual impairments, hormone deficiencies, brain structure defects. She is also autistic, has moderate mental retardation, and is globally developmentally delayed, even at 5.

Your children are beautiful. Absolutely adorable.

And no you are not a bad mommy. He is getting the services he needs now, and it is definately still earliy enough. I have heard of kids in my dds special ed schools who haven't been diagnosed with vision or hearing problems until they are 4-5 years old. i have even heard of kids been diagnosed as late as 7 years. You caught it early and he will have lots of time in therapy to progress in his skills, learn sigh language if needed and catch up on his other delays. Above all he is a beautiful child and with the right therapies and time he will be able to catch up.

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  #3  
January 10th, 2008, 12:20 PM
leslie_dawn's Avatar Veteran
Join Date: Jan 2008
Location: Oklahoma
Posts: 251
Welcome. I'm Leslie mom to ds Scott (4 next month) who had tubes put in at 16 months old (before that he didn't respond to hardly anything in the "normal" voice range) and dd Makayla (7 next month) who has recently been referred to an ear nose and throat specialist and told they want to put tubes in her ears ASAP. I've talked to speech pathologist, school staff, counselors and NO ONE would listen to me about dd hearing problems. They've finally referred her to another speech pathologist who said she's not hearing the beinning and ending of words, and is trying to read lips. They've put her in two special classes at school and we've been working at home & we're making progress...I only hope after her tubes are put in, we move forward still.

You aren't a terrible mother. It's normal for children Hayden's age to not talk or not talk much & you had no idea it was his hearing. What's important is that you're getting him the help he needs now. True, he'll probably be behind for a little while, and he might need more help but just keep on the path you're on and I'm sure Hayden will be fine! Good luck & keep us posted. I'm sure you can always find a good ear and sympathetic should here at JM!
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