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Sophie has hearing loss, not talking and motor delays


Forum: Children with Developmental Delays and Disorders

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  #1  
February 19th, 2008, 12:43 PM
MammaTo2
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So we are getting millions and billions of tests done to see what exactly is going on. We met with the otologist this am and she has hearing loss in her good ear so we are going to start some signing. She has major fluid in her ears resulting in this so she might have to go on antibiotics and/or get surgery.

She is meeting with a physical therapist once a week because she is 14 months old and not crawling yet......
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  #2  
February 19th, 2008, 01:22 PM
fiefer87's Avatar Mega Super Mommy
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Location: Near Buffalo, NY
Posts: 4,336
Oh sweetie, I am very sorry to hear this. I guess on the good side though, with a correct diagnosis, the proper treatments can be used to help Sophie catch up developmentally. I hope things go well with the PT, and that antibiotics will take care of the fluid in the ear.
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  #3  
February 19th, 2008, 04:03 PM
MammaTo2
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I sure hope so! Thank you for being soo nice Jen! People that I have told are like "well her hearing might come back right?!!" Well I don't know...maybe yes maybe no....I hope so but am willing to fight with her if it doesn't. Well don't worry about it until you know for sure! People can't a mother of an only percious daughter be a little worried and/or stressed?!?! ugh!
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  #4  
February 20th, 2008, 11:02 AM
fiefer87's Avatar Mega Super Mommy
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Location: Near Buffalo, NY
Posts: 4,336
You know, i get sick of comments like that all the time. I don't get them as often, but when Alexis was still an infant, everyone would ask oh will she ever see? How much can she see? Will it get better? Now don't get me wrong, I don't necessarily mind those questions and answering them, but going over and over the answers got really annoying, We know she has light perception, we don't know how well she sees, she can't tell us yet, vision develops until they are 2, so we can always hope for a little more. I felt like abroken record after awhile. Now, we get them, but its more in relation to how her school is going and the such.

I used to get worried and stressed all the time too, and I still do, especially since Alexis is still globally delayed at 5 years. Plus on top of the VI, she is autistic so that has created some problems as well. I worry all the time about how things are going to turn our for her.
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  #6  
February 21st, 2008, 09:35 PM
MammaTo2
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Sophie goes to the doctor tomorrow so we can talk about what we are going to do with the fluid in her ears. I sure hope something helps because I just hate the lost look in her eyes when I am talking to her!
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  #7  
March 4th, 2008, 01:30 PM
IansMom's Avatar Platinum Supermommy
Join Date: Oct 2005
Location: Burnaby, BC
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I hope that they figure out what is wrong, and are able to help! My son, Ian, is getting tubes in his ears sometime in the near future, as he has had fluid in his ears for about a year. He is not talking at all, is delayed in walking and other areas. We just found out that he has a Chromosome abnormality which affects speech, motor skills, swallowing, weight gain, so that might be part of the troubles, but I am hoping that the tubes make a difference.
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