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Forum: Children with Developmental Delays and Disorders

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  #1  
February 24th, 2008, 09:07 PM
MrsStuartD's Avatar Platinum Supermommy
Join Date: Aug 2007
Location: Ontario, Canada
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How did you feel the day you found out your child was diagnosed?
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  #2  
February 25th, 2008, 07:25 AM
fiefer87's Avatar Mega Super Mommy
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Location: Near Buffalo, NY
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Well, for us it wasn't anything we weren't expecting. With the septo-optic dysplasia that Alexis has, autistic tendencies are very common. We knew from the beginning that there would be a very good chance that she would have some degree of it. So all of her therapies and teachers just revolved their work around this and taught her as if she was autistic, even though there was no official diagnosis.

What really got me that day was the doc said moderate mental retardation. I guess I could see that, but if the child is globally delayed, many of these things she's not going to understand, so does that make her mentally retarded? He also said even if she can't answer (she is severely speech delayed), there are non-verbal forms of communication she should use. ***? First of all, you just diagnosed her as autistic, and not many autistic kids I know of are very good with non-verbal communication and understanding those sutlties (I could be wrong, but just my experience) plus on top of that she's VI, so how does she see these non-verbal forms of communication? If she can't see them, how can she learn them. *SIGH* we won't be going back to him again.
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  #3  
February 25th, 2008, 05:15 PM
outnumbered's Avatar Platinum Supermommy
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I already knew he was before the word was put on the record. When he was recommended for an evaluation, the wait time was 6 months. I read a lot in that time span and already knew it was true.

It was hard. A lot of dreams were broken that day. I do have different ones for him, but his future is still so unsure.
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  #4  
February 25th, 2008, 06:40 PM
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When we got the actual diagnosis it was really just a confirmation. I did shed a few tears though, and grieved a little. Hmm, now I am going to go back and see if I made a post about ti when we got the Dx.
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  #5  
February 25th, 2008, 07:35 PM
MrsStuartD's Avatar Platinum Supermommy
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I think I'm still dealing with it. I know he's not a severe case, and we already knew before we got the diagnoses. But when they say it, I don't know. It just hit really hard. It changes a lot of aspects of your life. I still feel the same way for him. I don't love him any less or anything like that. I just need to accept that he's my special boy and I'll need to work extra hard to help him beat this.
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  #6  
February 25th, 2008, 07:48 PM
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Yeah, I couldn't find a post - hmm, odd, because I started posting here just days before he got his official diagnosis, then again, maybe it was just days after, maybe I only lurked before. It was a brand new forum then.

Have you read the essay Welcome to Holland? It says it so well. I posted it once before, I'll bump it for you just in case you haven't.
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