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Forum: Children with Developmental Delays and Disorders

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  #1  
March 8th, 2008, 12:34 AM
pautumnsun's Avatar Mega Super Mommy
Join Date: Feb 2005
Location: Boston Ma
Posts: 1,226
Hi Eveyone,

On Tuesday I was told by Aidan's new EI therapist that he possibly has PDD-NOS. I am not sure what to make of it. I am a bit sad but also glad that he may get the help that he needs. My son is very sweet and bright but is limited socially. Aidan is 2.4 years old. At 9 months I noticed that he didnt respond like the other babies. He didnt respond to his name and looked aloof. As he got older his symptoms increased. He repeats phrases, he doesnt play with the other children, he likes things more than people, he doesnt ask for my attention, he doesnt yell out when he gets hurt, he doesnt like to be touched,and he gets very upset during transitons. I am angry at my sons Dr. because I have been telling him things are not right. He is passing it off as a behavioral problem and referred me to a social worker. Aidan's EI therapist is setting up a diagnostc evalution in a couple of weeks. I really dont want to hear that he has autism, it hurts my heart that he has a disability because life is hard enough without one. I am so glad I dont have to wait another six months before he gets a developmental evaluation. I am so glad EI has a place that will take Aidan.
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  #2  
March 8th, 2008, 08:51 AM
Tammyjh's Avatar Platinum Supermommy
Join Date: Nov 2004
Location: North
Posts: 7,824
I'm glad you are getting an eval for him. I find that while I really like our ped., he's not an expert in a lot of my dd's special needs so asking his advice on those issues aren't always going to get me accurate answers. But, on the other side, he's learned a lot because of us and has done at least a little research in those areas.

It does sound like your little guy has a lot of signs that point toward the spectrum but he's young yet so he may grow out of some of them. Also, the fact that he's in EI already is a huge plus. Hang in there...I know its hard to wait for the eval. and that you don't want him to have a dx of autism...just try not to worry too much(I know, easier said than done). Enjoy your little guy...he sure is a cutie

Let us know how it goes.
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  #3  
March 8th, 2008, 09:55 AM
Platinum Supermommy
Join Date: Jun 2006
Posts: 6,966
Hi and welcome. My name is Christina and I have two boys. Jay will be 3 in June and he was dx with moderate autism 2 weeks and 2 days ago. Jonathan will be 16 months tommorow.


It does sound like your little man is on the spectrum. Hang in there. I know how hard the wait is to find out if they have it or not. Feel to ask any questions. The ladies are good support here.
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  #4  
March 8th, 2008, 02:54 PM
Lilah's Avatar Platinum Supermommy
Join Date: Feb 2005
Location: Boston, Massachusetts
Posts: 14,078
Just wanted to say I am glad you posted here. You know I love you and will always be there if you need me.
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  #5  
March 8th, 2008, 07:01 PM
picklesmama's Avatar <;,><
Join Date: Apr 2006
Posts: 22,604
Hello, and welcome. I'm sorry your doctor didn't seem to take your fears seriously. Glad to hear Aidan is in EI - that made a world of difference for my son and I learned a lot from his teachers there! I totally understand the heartache thinking about our little ones having to deal with autism their whole lives - yes life is hard enough. It will take therapy and patience but your little guy will be okay - I really think they all will - there is so much more help avaialble nowadays, and understanding. I hope your son's evaluation goes well - keep us posted!
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  #6  
March 11th, 2008, 09:56 AM
outnumbered's Avatar Platinum Supermommy
Join Date: Jun 2005
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Your son is so cute!

Honestly, I didn't even think of discussing my concerns about Hunter with the ped. I guess back then I was already feeling like they weren't all high and mighty, don't know. But I called EI and am so glad you have done so, too. Even though my son has recently be re-evaluated and still found to be on the spectrum, he has come a long way, over a lot of obstacles, and so will yours! Be strong and keep being your son's advocate!
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  #7  
March 11th, 2008, 08:26 PM
pautumnsun's Avatar Mega Super Mommy
Join Date: Feb 2005
Location: Boston Ma
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Thank you all for your kind words and support.
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