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Spoke to ds's teacher and found a new dr.


Forum: Children with Developmental Delays and Disorders

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  #1  
March 28th, 2008, 05:08 PM
~Jess~'s Avatar Platinum Supermommy
Join Date: Oct 2005
Location: Central California
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I had quite the productive day today. I spoke with Zack's preschool teacher. I asked her what she would think if I suggested that I thought Zack might be on the mild end of the autism spectrum. She told me that she's actually been thinking that for a while (she's been his teacher for 2 years now) and that she had discussed it with another teacher as well, and they think that he may have Asperger's. I was FLOORED because that's exactly what I was thinking and here I thought I was going to have to explain to her what Asperger's was and she was suggesting it to me! So that was huge for me. She gave me the name of a center to call, so I left a message with them and I'm supposed to hear back in 5-7 days.

Then, I had an interview with a new pedi who came highly recommended by my sis, who is a trauma nurse, and told me that he has a really good reputation among the nurses that she works with. It was FAB! He is totally okay with my wanting to delay vax in the new baby, he is anti-meds (unnecessary meds obviously) and is pro natural healing, supports extended breastfeeding, etc. AND it turns out that he has extensive knowledge of the autism spectrum and is in practice with a dr. who specializes in behavioral medicine! OMG! This is an answer to prayer! He said that the center my preschool teacher recommended may not see Zack because he's over 3, and then we may have to go thru the school dist (just like you ladies said). Then went on to say that if that didn't work out, he would refer us to a specialist down near Los Angeles if need be, but that the wait to see this particular doctor is usually quite long, so to try the public school route first.

AND, my dh, who has always been very hard on Zack, and tends to get angry with me for "babying" him, is suddenly doing a 180 now that he realizes that it most likely has nothing to do with my parenting, and everything to do with a neurological disorder. To see him being understanding about Zack's strange rituals and routines rather than yelling and punishing brings tears to my eyes.

Hopefully we'll have an actual diagnosis soon and can start therapy! Is it possible to be heartbroken and yet happy & relieved at the same time??? I'm feeling a real mixture of emotion...
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  #2  
March 28th, 2008, 06:28 PM
MrsStuartD's Avatar Platinum Supermommy
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OMG I'm so happy for you! And yes it's possible to feel that way. I know it took about 2 weeks for it all to sink in when I got our diagnoses. And I will tell you that since he was diagnosed and I've been following his new learning plan he's just blossomed. Good luck to you!
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  #3  
March 28th, 2008, 06:36 PM
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That is awesome! Yes its possible to be heart broken and relieved at the same time. You will find you very well may be on a emotional roller coaster.
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  #4  
March 28th, 2008, 07:04 PM
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What a relief to find a doctor who's on the same page as you eh?! I'm very happy for you I sure do understand the mix of emotions. Relief that there is an explanation for your fears, that someone else recognizes the signs you do, but also heartbroken to be right, wishing you were wrong, that it was all in your head and explained away. (((hugs)))
But, chin up, now you know, and you can begin to help him
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  #5  
March 29th, 2008, 01:29 PM
Tammyjh's Avatar Platinum Supermommy
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Your new dr. sounds awesome Glad that the preschool teacher is thinking along the same lines as you...thats awesome I agree with the others, it is possible to be heartbroken and happy at the same time. Its hard to think about the dx's but its a HUGE relief when you find someone in the school system and medical system that are really supportive.
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  #6  
March 29th, 2008, 09:13 PM
Tofu Bacon
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Quote:
Is it possible to be heartbroken and yet happy & relieved at the same time??? I'm feeling a real mixture of emotion...[/b]
I am so relieved that you said this; I have been feeling so guilty about wanting the diagnosis, partly because I just know he has Aspergers and I just want...proof? Validation? Because if he isn't diagnosed...then what?
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  #7  
April 4th, 2008, 08:38 PM
pautumnsun's Avatar Mega Super Mommy
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Your message has moved me to tears because I felt the same way when I was told by my son's EI worker that my son may have PDD-NOS. I felt sad but validated and hopeful.
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  #8  
April 5th, 2008, 07:30 AM
Mjp121212's Avatar Platinum Supermommy
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Your new dr sounds great! If it was me, I'd go ahead and get on the waiting list near LA. I know here the school system is pretty bad about the amount of services they offer. We've been doing private care now sine August along with the services we receive from birth to 3, and we will continue the private care no matter what the schools say. Here you are lucky to get 1hr a month! Brayden was getting 4 hours per week 2 weeks ago and I had him dropped to 2 hours per week twice a month and 4 1/2 hours a week twice a month. FAR cry from 1 hour a month! But I know in most cases you have to have a def. dx too.
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