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Sarah Ann's PCOS & TTC Journal


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  #1  
August 18th, 2011, 08:50 AM
MrsOrganization2011's Avatar Veteran
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Location: Glace Bay, NS, Canada
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Hi Everyone ... My name is Sarah Ann and I am currently 32, my DH (Colin) is 28.

My story starts long long long before my DH and I ever met. When I started getting AF in grade 7 (age 13) it was not very regular and WOW oh WOW did I ever have horrible cramps. I thought it was normal though so as much as I complained about the pain/cramping I never thought that I needed doctors intervention.

Fast forward 4 years and I am getting ready to head to college. I don't want to suffer with cramps and irregular periods. It was hard enough living at home and not knowing when my period was going to come, but I couldn't do that while I was away from home for the first time. I went to the doctors and asked for Birth Control ... he asked me why I wanted to be on them and I gave him my list:
  • Irregular Periods
  • Painful Periods
  • and to be protected from Pregnancy

His original response to me was "well your irregular and painful periods will stop when you get pregnant"

I was dumb founded, I was 17 and he was basically saying oh its nothing to worry about just go get pregnant. I said well doctor that isn't an option for me, he just chuckled and put me on TriCyclin 21. I stayed on it faithfully till January 2008. I missed a week or so due to forgetting to pick up my next package so I stopped taking them for a few months and sadly I didn't even see a sign of AF. I also noticed I was gaining weight uncontrollably. Some other things I noticed were skin tags all around my neck, hair on my chin, toes and fingers. I also started to see some darkening skin under my boobs, my knees, elbows and around my neck.

So I went to the doctors, and sadly, although it was a different one than when I was 17 he was even more useless. He wouldn't even do any type of bloodwork, he said it was "all in my head" and because I'm overweight I should just diet and all will be fine.

I have dieted since I was in grad 6 (12 years old) and sadly just kept gaining weight. I finally got up the courage to get a second opinion and low and behold after Blood work & Ultrasounds .... I HAVE PCOS.

Now here is the thing, I was told I have PCOS, however, the ONLY course of action that was ever offered to me was Birth Control since I wasn't trying to get pregnant at the time. I was put on Yasmin and while on it I lost weight, close to 45 lbs. I was ecstatic!

On June 30th, 2009 I got engaged and my DH and I planned on getting married on Oct 9, 2010 ... So off to the doctor I went again.

I wanted to know what I should be doing because we were sure we wanted to have a baby as early in our marriage as possible. I was 31 when we got married and he was 27. The doctor said to just start off by dropping the birth control pills and see what happens about 6 months before the wedding night.

So in March of 2010 I stopped my Birth Control and I waited ... and waited ... and waited ... I didn't see AF till mid August and I had gained close to 50lbs AGAIN

Low and behold AF stuck around till late November. YES Straight through my wedding night ... We did have 2 or 3 days on our honeymoon where I didn't have any bleeding at all so at least we did get to consummate our marriage but sadly it only happened twice before I finally went back to the dr to find out what the heck was going on with me.

The doctor (knowing I wanted to have a baby) still put me on Birth Control right away just to STOP AF so they could do some tests. Even on BC my periods were really screwy till March 2011 when I finally started to have a normal 28 day cycle. I also had lost 20lbs in 3 months. Once that happened my doctor referred me to an OBGyn that did 2 biopsies. She told me that all the tests came back fine, however, she wanted to keep my on BC because it seemed that being on it allowed me to lose weight.

One thing that has bothered me from the beginning of my diagnosis is that no one has done more than one set of blood tests, I was never given/shown the results. I was never told what they were looking for during the Biopsy nor was I told the results other than they were fine.

I had my most recent appointment with my OBGyn on June 29th and she asked me to stay on BC for just a little longer (till October) in the hopes of losing more weight before we TTC, however, a few things led me to screw up my pills.

I ran out while I was away on vacation and didn't realize it so I ended up missing a full week of my pills so I just "started over" These mess ups also happened to fall when my DH and I seemed to have a huge hormone surge and just wanted to have sex over and over and over again ... low and behold I missed my period. I stopped my pills right away just in case I was pregnant but AF is now 3 weeks late and no BFP's .... I still don't see my OBGyn till Oct 5th.

I realized after reading all the forums/posts that I really don't know enough about my own body and PCOS. I had started a low carb diet in March and have had success on it. I was reading that some people have had success taking Cinnamon Capsules to help with weight loss since some PCOS Patients have Insulin Resistance too. Now I have no idea if I have IR but I figured its a natural remedy why not try. I have also started Temping (even though I seem to be in the middle of a cycle) to learn the ins and outs of it to help me figure out when and even if I ovulate. So here's my journal to vent on how confused I am ... on my trials and tribulations from this day forward ... I hope to get all this figured out soon but I really don't have a whole lot of faith since I'm now 32 and have had symptoms since I was 13
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Happily but Cautiously Awaiting our First!


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  #2  
August 19th, 2011, 01:11 AM
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Sometimes a little knowledge can be dangerous ... I keep seeing signs.... Early Pregnancy signs, Ovulation signs, AF Signs ... and yet I am pretty sure none of them actually occurred yet

Do you ever feel like all this knowledge is floating around in your head and even though its supposed to make sense none of it does?!

I know that is how I feel ... almost daily

I am 32, as I mentioned earlier. I have been with my husband for almost 7 years and married for almost 1 of them. We WAITED to have sex, yes I said WAITED. We were adamant that we wanted to be married before we shared this experience. But we never ever thought that getting pregnant would be an issue.

I have known I had PCOS for a few years, but I really didn't know enough about it to worry that it would cause us issues. The doctors all said "lose weight and you will get pregnant right away" No one has ever said "oh you are going to have a difficult time getting pregnant" but since I really know nothing about what my body is doing from day to day even with charting/temping it is frustrating.

In 2010 there were 10 weddings of friends/acquaintances. Of those 10 marriages we are one of only 2 couples to not be pregnant yet.

I know it has been a battle to find out what is actually wrong with me, it has been a battle with my weight (and always will be I'm sure), but there are times I don't think my doctor really understands how much I want a child. Yes she knows but I don't know if she really gets it. And to make matters worse it is months between appointments.

In between the appointments I read and learn more about my PCOS, I read up on ways to lose weight, I pray constantly that God will bless me and DH with a child and that HE will guide me and my doctors in the right direction to help remove some of my doubt/worry/confusion.

On a side note last evening was HORRIBLE for me ... I was so tired I couldn't keep my eyes open from about 6:30pm on, that on top of pain in my lower abdomen & lower back had me in bed at 9pm but sadly now here I sit at 4am wide awake and I still have work from 8am - 4pm today

This morning I am just trying to get things said that have been in my head for a while I guess ... I figure with them out and "on digital paper" at least I can re-read them and maybe get the courage to ask my doctors for more clarification/direction in my TTC journey.
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  #3  
August 22nd, 2011, 07:10 AM
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I had a pretty good weekend, however, I seemed to have spent a LOT of it in bed. After work on Friday I was so tired I didn't even want to go get groceries. I went to bed around 10pm and didn't get out of bed till 9am the next morning. I NEVER sleep that long. Sat evening I took a nap at 6 and didn't get up til 8 ... and then Sunday, even after almost 11 hours of sleep I went back for a nap at 12:30 and didn't get up till 4pm. I couldn't seem to even get out of my own way I was that tired.

This morning when I got up and even now as I type I feel nauseous, tired, and have had headaches off an on since Friday.

I would LOVE for it to be pregnancy symptoms, but I have a feeling I'm just coming down with the nasty flu that's going around.

I have started taking prenatal vitamins again. I was told to take them months ago and started but then stopped, then started again and I figured if I really am serious about wanting to get pregnant I need to take some things more seriously like my own health. I also started taking Cinnamon capsules. I had been reading that it is good for PCOS patients that also have IR and even though I have never been told if I am IR or not I figured its natural why not try and see where it takes us.
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  #4  
August 30th, 2011, 01:56 AM
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I am still feeling oddities of the last few weeks, sore boobs (from time to time not all the time), frequent urination, cramps, even had a little bit of an odd colored CM.

I am heading to Walt Disney World in 15 days I really wanted to find out what has been going on so my dr is sending me for bloodwork. I don't believe I'm pregnant because none of my HPTs have come back with BFP's however he said its possible that they are all false positives (which shocked me) he said if I am pregnant its too early to do an ultrasound because of my weight right now but that bloodwork will give us a clear positive or negative. Luckily since I leave in two weeks he's letting me call in for my results.

I'm hoping for a positive but highly doubting I will get it. Bloodwork in an hour, but might be a day before I get the results!
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  #5  
September 1st, 2011, 07:18 AM
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Well I have finally received my blood test results and sadly it was a no, but I'm really not that upset. Everyone though I was going to be pissed off, upset, crying ... but I'm not. I am just glad to have an answer.

I am still blown away that in this day and age our part of the province doesn't have the results online for the doctors to see, instead they have to wait for them to be either sent via a courier or faxed.

Now I just wait for AF to show up!!

I leave for Disney in 13 days so having a negative might actually be an ok thing. It allows me to enjoy all the rides and even lets me have sushi and just relax and stop stressing!

I will now concentrate on weight loss and staying happy & healthy
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  #6  
September 20th, 2011, 11:18 AM
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I just wanted to say hi and hope you are having a fabulous and relaxing time in Disneyland. I am just returning to JM after being on hiatus for a few years as it was too painful to come on here anymore. I am TTC'ing #2 and have been for over 6 years. I understand your struggle and frustration completely. I am just beginning my weightloss journey and have a long way to go. If you'd like a buddy when you get home maybe we can take this journey together. I'm in BC on the westcoast so we have some commonalities as the US medical system can work differently then ours.

I hope you and your DH have a wonderful vacation and you come back feeling renewed.

Blessings to you both and I look forward to getting to know you.
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  #7  
October 6th, 2011, 06:28 AM
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I've been back home for a little over a week now and life is going really well. I was able to stay pretty much the same weight wise while I was on vacation ... I only gained 1lb which was awesome!! I have finally had my doctors appointment with my OBGyn and god love her she listened and explained and understood finally!!!

I have been married almost a year (Married Oct 9th, 2010) I am 32 years old. My husband and I want children really badly. All our friends around us are getting pregnant and here we are unable to ... mainly we were unable to because my OBGyn was keeping me on Birth Control to help control my PCOS symptoms. So when I went to the doctors yesterday I told her flat out I'm done with Birth Control ... I asked for more/better assistance in getting my hormones back in check, and hopefully I can get pregnant.

So yesterday since I haven't had a period since June 29th she prescribed me Provera to bring on my period. I started it last evening and now I wait ...

She also prescribed me Metformin which I start this evening (at supper) I am hoping that this helps with some of my symptoms and gets me back to "normal"


Heart_and_Soul, I would LOVE to take this journey together with you. It is a rough journey and I can't even imagine what you have and are going through but I hope that we can help each other out!!
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  #8  
October 16th, 2011, 05:57 AM
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Well I'm so excited to FINALLY be on CD1 I literally jumped for joy this morning ... I have been waiting, not so patiently I might add, for AF to show up. Now to go out and get some OPK's and see if we can make this cycle count!!!
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  #9  
October 16th, 2011, 07:48 AM
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Hi!! My names Aubrey and I am also trying to conceive with pcos. I noticed your journal and just wanted to say hello. If you ever have any questions or just need some girls to talk to who are dealing with the same issues you know we're all here for you :-)
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  #10  
July 18th, 2012, 08:07 AM
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Well as I have mentioned a few times in the regular form I have decided to have LapBand Surgery. I am approximately 200lbs over weight and I have tried to lose weight MANY MANY times. I can never seem to lose more than 20lbs at a time and then gain that and more back.

I know that a large part of my weight is caused by the PCOS but it also acerbates the PCOS so I am at a loss

I just received financial assistance and later today I will be calling to get my surgery date. What will happen is this:
  • I schedule my surgery date
  • For 3 weeks prior to the surgery I will be on a High Protein Shake for all meals. I can not have ANYTHING other than the shake, water, and some low GI vegetables. Absolutely no sugar or anything else for those 3 weeks. This is done to help me quickly lose fat from my liver so that it doesn't get damaged during the surgery.
  • I will then get the surgery done and its pretty simple. Its done laproscopically and will take about 45 minutes. I will be in and out of the hospital in about 2 hours.

On average without doing anything but getting the surgery done they say I should lose 55% of my excess body weight. But if I stick to a low fat diet and join a gym I could lose all of my excess body weight. A friend of mine started his journey on March 4th, had his surgery on April 4th, and as of yesterday he has already lost 135lbs. He has been an INSPIRATION to me.

I can not WAIT to start my journey. I am not going to start it till Sept 1st because I have already paid for a week camping with family and I don't want to deal with a liquid diet in the middle of the woods.

As I continue on this journey I will be posting pictures, and keeping a running blog I do believe. It will help me get everything out and maybe even help someone else take this step.

As a final outcome it is said that I should be able to get pregnant AND safely carry a child because at this weight right now its almost impossible without a LOT of medical assistance. That is my ULTIMATE goal in life, to have a child with my DH and live a happy life!
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  #11  
July 18th, 2012, 08:30 AM
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Sarah Anne, so happy to see you have the path laid out in front of you and have an idea of when it will all take place!! I am so excited for you!
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  #12  
October 3rd, 2012, 05:53 AM
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Well surgery day has come and gone. I am so happy with my decision and the outcome so far. I have lost 32lbs to date and feel AMAZING. I had a spontaneous period which was nice to see, I don't think it was a true ovulatory period but just a result of the weight loss. Regardless of what caused it I was very happy to see it
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  #13  
October 3rd, 2012, 08:14 AM
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Good Luck and be safe!
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  #14  
February 10th, 2013, 05:09 PM
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Well I am back again and this time I am sticking around. I am currently 20 weeks post-op from my lap-band surgery and I feel absolutely amazing. It was definitely the best decision of my life and I hope it helps in our TTC journey.

On Tuesday, Feb 12 I will finally see a reproductive endocrinologist. It has taken over a year to get an appointment. I am scared to death to hear what they have to say but am so ready to start this journey again. DH and I stopped TTC for the last few months due to the surgery.

I am currently down 67lbs and going strong!!!
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  #15  
February 15th, 2013, 10:36 AM
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I thought some of you might want to see my progress so far with weight loss ... Below are pictures of me at my start weight, 30lbs down, and 60lbs down




I saw my RE this week and she is absolutely amazing. I also saw one of her nurses and an intern and even they were awesome!!! She explained everything that is going on with me so easily. I went for blood work the same day since I'm CD2 and then since we really don't know if I'm truly ovulating I will go for blood work again the day my breasts get sore or the day after ... Since we don't really know what day it will fall on.

I am also being sent for a hysterosalpingogram (a Special X-ray done with dye to make sure the are no blockages or issues with my tubes or uterus)

After a 2 hour appointment with this RE I have learned more and come out with more hope than I have had in the last 2 years of TTC. Oh and she is also sending DH for a SA since no other doctor even asked about my husband.

Things seem to be looking up regardless. I have had 4 un-medicated periods since my surgery. The first few were really wacky but then I had 2 pretty normal ones, just not sure if they are ovulatory or not so that is what the blood work will hopefully tell me!!
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  #16  
February 22nd, 2013, 11:20 AM
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I can't get over how happy I am with my new doctor. Her name is Dr Gillian Graves and she is a Reproductive Endocrinologist at the IWK in Halifax (which is a 4 hour drive from my current residence) Before going I read a ton of reviews and she sounded amazing. I know I'm repeating myself but it just has to be re-said!!

Well she was even better once I met her in person. She explained PCOS in terms even my husband understood lol After we were done talking she sent me for blood work because I was on CD2 and she wanted to see where we stood. This would be the first blood work I have had done for PCOS since right before I was diagnosed and even then I have no idea what the results were because the doctors around here won't give you numbers just whether they are good or bad.

So I was VERY shocked when I got a call today to tell me the results of my blood work.

FSH - 4.34 (Normal 3 mIU/ml - 10 mIU/ml.)

TSH - 2.79 (Normal 0.3 to 3) They said they would like it closer to 2.5 while trying to get pregnant and as I lose weight this should level out

Prolactin - 9.8 (Normal 2 - 29 ng/mL)

I am happy with the results and now have to wait for my next blood work results to tell me if I'm ovulating. Since I am not positive if I am or not due to how irregular my cycles are they told me to go when my boobs hurt again. I'm just waiting for that day now
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  #17  
March 1st, 2013, 10:38 AM
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WOW my new RE in Halifax is AMAZING she already has me referred to one of her co-workers in my local city that will take care of me locally. This is a HUGE help since it is a 4 - 5 hour drive to see the RE. The doctor locally will work in correspondence with my RE and hopefully I can get my blood work, ultra sounds etc here.

I'm really happy about that.

On a sad not I still haven't had sore breasts so I haven't been able to go for my next blood work. I don't know if I'm not ovulating or if my breasts just aren't sensitive this month.
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  #18  
March 25th, 2013, 04:24 AM
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I went for my second blood work on Mar 12th ... I was told to go when my breasts hurt and although they had been hurting off an on for a few days that was the most painful and luckily the only day I could get it done regardless due to schedules.

A week later I called for my results and sadly the person I spoke to on the phone wasn't nearly as helpful as the last one. I had to DRAG my results out of her and she asked a LOT of questions. She wanted to know why I went for the blood work and why I chose the day I did to go etc. I explained it all to her (from what my RE told me) and I finally said could you please tell me my Progesterone level and whether or not it looks like I ovulated.

March 12th was CD 30 for me but seeing as I still don't have a regular period I didn't think much of it. She said my Progesterone level was 9.4 so it looked like I didn't ovulate but she did say she would talk to my RE. I haven't heard back yet so I will be calling again this week sometime to double check.

From my research I see that 10+ is a sign I ovulated and anything below it means I didn't. Which is ok as I know I'm still getting back on schedule after my Lap-Band surgery. I am happy to say that I ended up back on CD1 on March 23rd though so something must have gone on

Someone mentioned to me that I should have had a few blood work draws over the cycle just to keep checking, since I don't know if my RE will do that just yet I am going to start using my OPK's again and see if they shed some light on the situation!!
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  #19  
June 26th, 2013, 10:05 AM
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I am down close to 90lbs and loving my life so much but sadly still haven't conceived, however, I have recently had majorly sore breasts, more so than the last time for sure. So I decided to take some OPKs.

I'm not sure if they are positives yet but at least they are getting there which is new!



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