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  #1  
July 2nd, 2011, 04:11 PM
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I think Lily needs her tonsils taken out... fairly soon.

She has always snored, prone to throat infections and strep, but prior to lately she hasn't been *that* bad.

Recently she has been sleeping really crappy, moaning in her sleep, almost whistling in her sleep, and make a gargling type noise when she's sleeping. She has a red throat, no strep spots, so I have been giving her tylenol and rest at home. She said she felt fine, just tired. She has been sleeping horribly. Last night we were up until 3 together, because every time she went to sleep she would immediately wake herself up with the gargling noise and not breathing very well. No fever, she seems quite normal except for this business with her throat and then her sleeping.

Well she was just eating and she said the baked potato hurt her throat. It's nice and soft, so I was wondering, why the heck would it be hurting? Then I had an "aha" moment... the salt we had on the outside of the potato skins. I took another look inside her throat, and wow.... her tonsils are very inflamed and big. I had to show my mom and ask her to make sure these two large pocket things were her tonsils, and sure enough, they are. So now everything makes sense with being sensitive to salt, not breathing well, and the interrupted sleep patterns.

So now I need to find an ENT doctor to take her to, which most likely she will need to have her tonsils removed. She got pretty freaked out and I had to explain to her what the procedure is, how she will be okay, and she gets lots of ice cream!

Ah thankfully it is the Summer and we can get this done without it interfering with school!
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  #2  
July 2nd, 2011, 09:55 PM
plan4fate's Avatar I may bend, but not break
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YIKES!!!!

DF needs his out too, but the bill is too much to swallow.

I hope she can get them out quickly so she can get some good sleep. Poor kiddo.
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  #3  
July 2nd, 2011, 10:58 PM
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Poor kid got all sorts of freaked out when she heard us say "surgery" with it. But shes calmed down once I told her how fun it will be to eat popsicles for dinner and mommy cant say no So we will have to take her to our doctor or get an ENT referral. For now I need to make sure she doesnt eat anything too hard or salty, because the salt is absolutely hurting her throat.

Hopefully she can get it done soon and get some relief!
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  #4  
July 3rd, 2011, 03:21 AM
Nekinna2402's Avatar Anniken <3 Tanja
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We have the same issues, also pretty sure they are whats causing her speech issues.



Good luck with it all!
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  #5  
July 5th, 2011, 04:17 PM
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Quote:
Originally Posted by Nekinna2402 View Post
We have the same issues, also pretty sure they are whats causing her speech issues.



Good luck with it all!
Yup, that's what Lily looks like! Except it looks almost greyish in tone, and has a weird pattern on it. Hard to describe.

But she has an appointment in the morning, and I am going to ask for an ENT referral anyways even if it isn't her tonsils. She has horrible snoring problems as it is, so I want to have her looked at to see what is going on. She definitely isn't feeling up to par, so Im glad they were able to get her in quick.

My sister is a nurse, and she looked at Lil's throat yesterday. She said she has honestly never seen a throat look like Lily's, and she thinks it might not be her tonsils. She isn't quite sure what is going on in her throat, but if it is her tonsils she has never seen them look like Lily's does. So I'm glad we were able to get Lil in quick, because I really want to know what is going on in her throat. Even more so, I just want her to get a good nights sleep for once.
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  #6  
July 6th, 2011, 01:54 PM
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It definitely is her tonsils! We went to the doctors today and got a referral to an ENT. She may not qualify for a tonsillectomy yet, but she might based on her history with strep, her breathing, and whatever the ENT doctor says. We should get a call by Tuesday, so I'll find out more soon!
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  #7  
July 6th, 2011, 01:57 PM
Nekinna2402's Avatar Anniken <3 Tanja
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Hopefully she gets the surgery, sounds like she'd be better off without them by the sounds of it.
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  #8  
July 6th, 2011, 02:39 PM
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Originally Posted by Nekinna2402 View Post
Hopefully she gets the surgery, sounds like she'd be better off without them by the sounds of it.
That's what I'm thinking. I of course won't push it if there is another option, but I just want my kiddo to get a good night sleep for once. It's bad enough when she isn't sick, but when she is sick she's really bad because her breathing is obstructed. So I just want to get her feeling better as soon as possible.

She slept with me last night, but I just had to change the dose of my meds so I didn't hear a **** thing last night, I was out like a light. But she woke up looking tired and down, so I don't think she got that great of sleep. I'm going to try to stay awake to at least listen to her breathing, get a record of symptoms going to take to the specialist, whenever we can get an appointment.
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  #9  
July 6th, 2011, 02:47 PM
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I agree, when we went in the specialist said that they'd rather not do something but to have a follow up and I'm going to say that I think we are better off with the surgery as it affects a lot of things such as ; sleep, speech, health, breathing, eating, etc so I rather her feel okay and since the doctor didn't offer any other alternatives, there is just sugery left that I can think off.

The specialist I went to asked about how she breathes (mouth or nose), sleep, snoring, sickness, pain and similar things so its a good idea to keep information about all these things ready when you do go in.
I had almost everything down beside the breathing, couldn't remember because it is not something I think of or notice on a daily basis so you might want to look out for that too?
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  #10  
July 12th, 2011, 01:12 PM
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Quote:
Originally Posted by Nekinna2402 View Post
I agree, when we went in the specialist said that they'd rather not do something but to have a follow up and I'm going to say that I think we are better off with the surgery as it affects a lot of things such as ; sleep, speech, health, breathing, eating, etc so I rather her feel okay and since the doctor didn't offer any other alternatives, there is just sugery left that I can think off.

The specialist I went to asked about how she breathes (mouth or nose), sleep, snoring, sickness, pain and similar things so its a good idea to keep information about all these things ready when you do go in.
I had almost everything down beside the breathing, couldn't remember because it is not something I think of or notice on a daily basis so you might want to look out for that too?
Yeah, we notice her breathing. She breathes super super hard and deep, and loud. She is a tiny girl, and she breathes like her body is overloaded with weight. I've partially thought about videotaping her sleeping and breathing, just so the doctor can see and hear what she does everyday. My sister is a nurse and she said that it's really not normal the way she breathes, but up until now her throat or breathing haven't bothered Lils.

She's been feeling so crappy lately and just blah (I mean heck... shes barely excited to wake up to go to Summer camp), that I am almost really wanting the surgery. She just isn't up to par and I don't want to wait to see how things change. But we will see. We did get the specialist changed from Monday to Friday... we said she was just miserable and if there is any way they can see her before, it'd be great. So we shall see how things go on Friday!
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  #11  
July 13th, 2011, 05:27 AM
Nekinna2402's Avatar Anniken <3 Tanja
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¨Good luck and I hope it goes well

I would videotape her just so you have it
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  #12  
July 15th, 2011, 02:00 PM
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So she will be getting her tonsils out! She may need her adenoids out as well, but we wont know that until she goes into surgery. The doctor said that considering how Lily has been feeling and how often she gets sick, that the best bet is to take them out. She is 99.9% sure she has a form of child sleep apnea, which is different than what adults have. She said a sleep study was an option, but it just may prolong what will most likely need to be done... which is have her tonsils out. So its better to get her feeling better quickly.

Waiting for the scheduler to call me, and then we will get her into surgery. Lil isnt scared, which is good. Though I am sure she will be a bit more upset when shes going into surgery. I will stay with her overnight while shes there, and then she will get lots of mommy time at home
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  #13  
July 15th, 2011, 02:55 PM
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Oh, for those that had kiddos that had a tonsillectomy, did their voices change after? They said Lils voice may change slightly after. I found that kind of odd, lol.

And how was the recovery time? What are some good foods to make? They said she might be feeling pretty crappy for a week to two weeks, but in the long run will feel a lot better.
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  #14  
August 2nd, 2011, 12:14 PM
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Everything went great! She had huge adenoids, those were taken out too. I have to admit, I pretty much lost it when she was being put under because I'd how she acted. Just hate sering my baby like that. But she's out, recovering, pretty doped up but ok. She should be able to go home tomorrow as long as she is drinking enough water. Thanks for the thoughts everyone!
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  #15  
August 3rd, 2011, 05:57 PM
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A bigger update... everything was written on my phone last night.

Everything went well! It's been a rough 2 days, just because I can't stand to see my baby like that. When she went under she was grimacing and moving her arms around in a way that killed me. I lost it, absolutely lost it. The doctor told me to be strong for her, and that it was her losing control of her body movements because of the anesthesia. I had myself controlled until then, and walked out crying because I just don't like to see her like that. But she was okay, her adenoids were "huge huge huge" as her surgeon said. She had those taken out as well, and so far it's been pretty good. She threw up twice yesterday, but then she hasn't stopped eating, which is great! She's a little loopy from meds, but she is really doing well. Eating well, drinking lots, not in much pain at all. Though her surgeon told us to keep her on a strict schedule of pain meds every 4 hours, she said "There is absolutely no reason for her to be in pain." She told me that if that meant waking her up throughout the night, to do it. The hospital staff felt a bit different, and didn't want to wake up a sleeping child for medicine. I was a stickler and told them I'd prefer her to have it, because it's going to be much worse if she goes without and wakes up in pain. So I set my phone for every 4 hours, and I am following the schedule. Besides that, hospital staff was great. Gave her a neat little backpack with some cool stuff, they had a neat wii station they could bring into her room. Lots of books and toys (she didnt play though) and overall the stay was really well. We left this afternoon, the hospital wanted to see her have a certain amount of fluids before she left. My sister came to see us, we had an okay stay. I was freezing *** cold and could not sleep at all, neither did really. She slept a little off and on, but it's just good to be home. I am nearing 4 hours of sleep in over 36 hours, so I am just exhausted. I think I will try to get some sleep after her next dose of medicine.

Thanks so much for your thoughts, my mind is a little frazzled, but between everyone that knew and my family... we surely appreciate the great thoughts and well wishes!
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  #16  
August 4th, 2011, 05:41 AM
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Glad to hear everything went well. I hope she has a speedy recovery!
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  #17  
August 4th, 2011, 08:20 AM
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Awe that makes me abit teary hearing how she acted after surgery Must have been really hard for you to see her like that, but I'm glad that it's all over and done with and she's on the road to recovery.

How old is she?
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  #18  
August 4th, 2011, 08:33 AM
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Hope she has a speedy recovery!
I'm surprised they had you with her when they put her under, unless our hospital is just weird. (Noah had webbed fingers and had them separated when he was 17 mo old. They took him out of the recovery room totally awake.)
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  #19  
August 4th, 2011, 11:18 AM
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Dayna, she is 7 1/2.

Yeah, they feel it is better for the child to be with their parents when put under, because it helps calm them. When I was taken back to her room, she was just waking up but didn't really know what was going on. I remember feeling the same when I was put under for my surgery last year... I remember being told to "deep breather," then all of a sudden Im asking for asthma meds and my parents were already in the room. I don't remember waking up at first until i had an asthma attack.

But I'm glad I was able to see her go under, even if it was really hard for me to watch. I just wanted her to know we were there the whole time, and she is so close to me that I know she would have been more relaxed with me there. So despite it being hard... I would have rather been there than not.

She is doing well, feeling okay off and on. As long as she has the pain meds she is okay. Though she woke up at about 3 feeling pretty bad, but it was half an hour before she needed meds, so I figured it was just the pain starting to kick in. Overall though, she's doing pretty well
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