Log In Sign Up

Peri thinks I have a blood disorder


Forum: Pregnancy and Motherhood After Loss

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Pregnancy and Motherhood After Loss LinkBack Topic Tools Search this Topic Display Modes
  #1  
March 11th, 2009, 07:26 PM
Mega Super Mommy
Join Date: May 2007
Location: Upstate SC
Posts: 4,443
I have to have testing done for all sorts of blood clotting disorders and one is thrombophilia. I'm terrified on one level but relieved that if I do have it, it could maybe save my life the life of my baby and possible family members. It can be genetic and after I told him all the family members that have had blood clot issues he thinks if I do have it, it's genetic. My mom had a stroke due to blood clot at 41, an aunt had the same thing at 39, my grandfather had same thing at 67 and died, he had three sisters that had bad blood clots one who died, and my great grand father died from thrombosis.
He wonders if that's what caused the severe pre-eclampsia with DS#1, which may of caused the fluid overload which lead to heart failure, may of added to my early losses along with progesterone problems.
I have told everyone it's nothing but to be honest I'm scared that I'm a ticking time bomb.

On a great note baby is doing great.
__________________

http://stitchingthroughlife.blogspot.com/ my cross stitch blog, my outlet.
http://chriscrossdesigns.blogspot.com/ my Cross Stitch Designs

Reply With Quote
  #2  
March 11th, 2009, 09:35 PM
angelmomjen's Avatar Mega Super Mommy
Join Date: May 2008
Location: South Carolina
Posts: 1,648
Send a message via Yahoo to angelmomjen
I know its hard sweety, but Im glad you are seeing a Peri, and that they are running the tests! As long as they know whats going on they can treat it!!
__________________
Thanks Nami for my beautiful siggy!
Reply With Quote
  #3  
March 12th, 2009, 03:13 AM
princesskate's Avatar Platinum Supermommy
Join Date: Mar 2008
Location: huddersfield, west yorkshire
Posts: 22,139
__________________





My first weight loss goal is to lose 21lbs, which is 10% of my body weight
Reply With Quote
  #4  
March 12th, 2009, 06:15 AM
Mega Super Mommy
Join Date: Oct 2006
Posts: 2,632
I wish they would run these tests for everyone, but especially in pregnancy. I lost my first baby to 2 blood clotting disorders. Mthfr and Antiphospholipid syndrome are the two I have. Once I started the baby aspirin and folic acid I got pregnant easier, didn't mc, and finally had a living baby to bring home with me. I hope you get answers soon and will get the treatment that you and your little bean both need.
__________________
Thank you Mistyx5 for my siggy.

Reply With Quote
  #5  
March 12th, 2009, 06:27 AM
fairy9800's Avatar Platinum Supermommy
Join Date: Jul 2007
Location: Jackson, Michigan
Posts: 8,658
Send a message via Yahoo to fairy9800
(((HUGS))) Sweetie!!! That must be terrifing but atleast they can treat it if thats whats wrong.
__________________
Thank you Mrs. Jantzen for my wonderful siggy!




Reply With Quote
  #6  
March 12th, 2009, 06:41 AM
Mega Super Mommy
Join Date: May 2007
Location: Upstate SC
Posts: 4,443
If I do have it, they can treat it. I just wanted to have a semi-normal pregnancy this time. Who am I kidding no pregnancy after a loss is normal, and no pregnancy after having pregnancy induced heart failure is normal.

Mrs.Poe, I have a question do you have to take meds. when you aren't pregnant?
__________________

http://stitchingthroughlife.blogspot.com/ my cross stitch blog, my outlet.
http://chriscrossdesigns.blogspot.com/ my Cross Stitch Designs

Reply With Quote
  #7  
March 12th, 2009, 08:18 AM
AliciaF's Avatar Mega Super Mommy
Join Date: Jul 2008
Location: Southern Cali
Posts: 2,517
I have the same 2 disorders as Mrs. Poe. For me it has taken baby aspirin, increased folic acid, B12, B6, progesterone supplements and injections of Lovenox to get pregnant and not miscarry right away.

I was told by my OB that I should continue the baby aspirin after the pregnancy and I should see a hematologist and rheumatologist for further treatment.
__________________

Thank you *Kiliki* for my perfect siggy Follow us on Facebook

Reply With Quote
  #8  
March 12th, 2009, 08:34 AM
kalis's Avatar Platinum Supermommy
Join Date: Dec 2007
Location: IL
Posts: 6,523
i tested posotive for thrombophilia with both protein c and protein s deficiencies, but only when pregnant. baby aspirin and Lovenox injections(and heparin injections when not on Lovanox) got me my Thea. my levels are slightly out of whack when not pregnant, but not enough to take meds. my ob did say i could go ahead and take a baby aspirin a day, just in case.
my grandfather also had a few clots and my greatgrandmother had more miscarriages than i could imagine (i think in the teens).
__________________
Thanks to *Kiliki* for my pretty siggy!
Reply With Quote
  #9  
March 12th, 2009, 10:54 AM
kellyanne's Avatar Mega Super Mommy
Join Date: Dec 2005
Location: Washington
Posts: 1,960
I can imagine how scary that must be, but I'm glad that your doc seems to be really on top of it. I had all sorts of testing done after my second and third m/c and for awhile I had myself convinced that I had Lupus (I had symptoms and a family history as well). Everything came back neg for me, but I remember how excruciating it was to wait for test results.
__________________
Kelly




3 angels Feb, Mar, Aug of 2008
Reply With Quote
  #10  
March 12th, 2009, 10:57 AM
Wee3monkeys's Avatar Mega Super Mommy
Join Date: Mar 2008
Location: Nebraska
Posts: 3,352
Well it will be nice to KNOW if you have it or not. At least that was the way I felt about it. I was diagnosed with FVL after insisting they test me for the thrombophilia disorders after my losses and a superficial clot. If you have it, it's treatable, and it feels good just to be doing something, KWIM. Good luck, can't wait to hear your results!
__________________





Reply With Quote
  #11  
March 12th, 2009, 02:14 PM
Mega Super Mommy
Join Date: May 2007
Location: Upstate SC
Posts: 4,443
Dh, said I was complaining but I just am so scared already of something happening. If I do have it one more shot wouldn't be a big deal since in a month or so I will be starting weekly progesterone shots, and I already started insulin.

I just want this baby here safe and sound.
__________________

http://stitchingthroughlife.blogspot.com/ my cross stitch blog, my outlet.
http://chriscrossdesigns.blogspot.com/ my Cross Stitch Designs

Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 03:14 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0