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I have to have testing done for all sorts of blood clotting disorders and one is thrombophilia. I'm terrified on one level but relieved that if I do have it, it could maybe save my life the life of my baby and possible family members. It can be genetic and after I told him all the family members that have had blood clot issues he thinks if I do have it, it's genetic. My mom had a stroke due to blood clot at 41, an aunt had the same thing at 39, my grandfather had same thing at 67 and died, he had three sisters that had bad blood clots one who died, and my great grand father died from thrombosis.
He wonders if that's what caused the severe pre-eclampsia with DS#1, which may of caused the fluid overload which lead to heart failure, may of added to my early losses along with progesterone problems.
I have told everyone it's nothing but to be honest I'm scared that I'm a ticking time bomb.
I wish they would run these tests for everyone, but especially in pregnancy. I lost my first baby to 2 blood clotting disorders. Mthfr and Antiphospholipid syndrome are the two I have. Once I started the baby aspirin and folic acid I got pregnant easier, didn't mc, and finally had a living baby to bring home with me. I hope you get answers soon and will get the treatment that you and your little bean both need.
Thank you Mistyx5 for my siggy.
If I do have it, they can treat it. I just wanted to have a semi-normal pregnancy this time. Who am I kidding no pregnancy after a loss is normal, and no pregnancy after having pregnancy induced heart failure is normal.
Mrs.Poe, I have a question do you have to take meds. when you aren't pregnant?
I have the same 2 disorders as Mrs. Poe. For me it has taken baby aspirin, increased folic acid, B12, B6, progesterone supplements and injections of Lovenox to get pregnant and not miscarry right away.
I was told by my OB that I should continue the baby aspirin after the pregnancy and I should see a hematologist and rheumatologist for further treatment.
i tested posotive for thrombophilia with both protein c and protein s deficiencies, but only when pregnant. baby aspirin and Lovenox injections(and heparin injections when not on Lovanox) got me my Thea. my levels are slightly out of whack when not pregnant, but not enough to take meds. my ob did say i could go ahead and take a baby aspirin a day, just in case.
my grandfather also had a few clots and my greatgrandmother had more miscarriages than i could imagine (i think in the teens).
I can imagine how scary that must be, but I'm glad that your doc seems to be really on top of it. I had all sorts of testing done after my second and third m/c and for awhile I had myself convinced that I had Lupus (I had symptoms and a family history as well). Everything came back neg for me, but I remember how excruciating it was to wait for test results.
Well it will be nice to KNOW if you have it or not. At least that was the way I felt about it. I was diagnosed with FVL after insisting they test me for the thrombophilia disorders after my losses and a superficial clot. If you have it, it's treatable, and it feels good just to be doing something, KWIM. Good luck, can't wait to hear your results!
Dh, said I was complaining but I just am so scared already of something happening. If I do have it one more shot wouldn't be a big deal since in a month or so I will be starting weekly progesterone shots, and I already started insulin.