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Forum: Pregnancy and Motherhood After Loss

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  #1  
June 6th, 2011, 05:11 PM
Mega Super Mommy
Join Date: Sep 2010
Posts: 1,171
Update: My ob got me into an MFM on June 17 in the morning for ultrasound and consultation.

We went in for an ultrasound today and baby was moving and heartrate was 176.
We were so excited and I was even ready to start announcing it on fb.
Then we met with the doctor and could tell immediaty that she was somber.
Turns out that the ultrasound show a small cystic hygroma which is fluid in the head and spinal area.
We have to see a high risk doctor for a detailed ultrasound to get an exact measurement an determine if it is a chromosomal abnormality or something else.
She mentioned trisomy 18 as a possibility but said the best diagnosis time would be between 12-16 weeks and best determined by the high risk dr.
They are trying to get me in ASAP but they might want to wait until the 12 week mark.
I am in shock and so sad. I cannot believe this could happen to us after all we have been through and we were just now getting excited for this baby.

Anyone with a similar experience here?
Thanks in advance...
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Last edited by NsMommy; June 8th, 2011 at 08:51 AM.
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  #2  
June 6th, 2011, 05:22 PM
ohnicole's Avatar Platinum Supermommy
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I'm so sorry you're going through this stress I don't have any information to offer you, but I hope you can get in soon and find out everything is fine with your little one.
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  #3  
June 6th, 2011, 05:26 PM
missy123's Avatar Platinum Supermommy
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I knew nothing about what you are going through so I did some googling. It sounds like not all babies with this end up with a chromosomal abnormality. The next few weeks are going to be so hard for you. ((hugs)) I will pray for you.
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  #4  
June 6th, 2011, 05:31 PM
OurSweetLabs's Avatar I LOVE My Boys!!
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Oh

I am so sorry. I pray that it is nothing, are you going to ask for testing further than an ultrasound?
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  #5  
June 6th, 2011, 05:37 PM
Mega Super Mommy
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I am so sorry you are going this! I don't have any experience with this but I wanted to let you know that you're in my thoughts.
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  #6  
June 6th, 2011, 05:50 PM
Mega Super Mommy
Join Date: May 2011
Location: New Jersey
Posts: 1,364
I am so sorry to hear you are going through this. Hopefully everything will work itself out and you will get good news, but I have to tell you I have been in a similar situation. With my second pregnancy we went for the 20 week ultrasound and everything looked great at first. Then, about 20 minutes later other doctors kept coming in and out of the room and consultng in hushed tones. I had no idea what was going on and was terrified. Turned out the baby had spina bifida and his legs weren't moving (why they couldn't see this when they checked the gender I will never know). We made the horrific decision to terminate and i live with the guilt every day, even though i know it was the only decision we could possibly make (and several doctors concurred) as there was also extensive brain swelling and damage. After that loss I had a missed miscarriage at 12 weeks and am now pregnant for the third time (fourth if you count my perfect son). I am sick to my stomach waiting this time around, not sure i can go throuh a third late loss. I know how awful the wait is for you and I will keep you and your little one in my prayers. Please keep us updated.
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  #7  
June 6th, 2011, 05:52 PM
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Join Date: Sep 2010
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Oursweetlabs, i am sure that the ultrasound is the first step and that they will do further testing. My sil went to them during her pregnancy and said they are extraordinary.

Missy, I am starting to read some positives with the negatives too and I think that, as long at the fluid doesn't get very big, it might be okay. It is so hard to be positive right now, though.

Beccalee, I am so sorry that you lost your baby like that. It is so unfair. We might be offered termination as an option too. I never even imagined having to face that as a possibility but it might be. I hope we don't have to go there.
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  #8  
June 6th, 2011, 06:03 PM
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I'm so sorry for you to go through this stress We're here for you!
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  #9  
June 6th, 2011, 06:38 PM
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I truly hope with all of my heart that you don't have to go there, and I didn't mean to scare you. I just wanted you to know you aren't alone.
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  #10  
June 6th, 2011, 06:48 PM
mom2moose
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I'm sorry. The good news is, there IS still hope that everything will turn out ok. I'm so sorry that you're going to have to wait for results. It'll be a stressful time for you and your family. I'll be thinking of you and praying the baby is fine!!
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  #11  
June 6th, 2011, 06:56 PM
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Join Date: Feb 2010
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Oh Hun, I hate that you are going through this! I cannot imagine the stress and worry you are under. I don't know off the top of my head what my sister's one twin had, but she had gone in for a 10 week scan and twin A had something on or around her brain. From there she went to the specialist, and they did another scan and several other tests for "markers" to rule out trisomy 18 and one other abnormality. What it came down to was that in all likelyhood she was fine, but they wouldn't know beyond about 90% until the baby was born. Twin A is now my neice Alli, who is a perfectly healthy 7 year old...and her twin Sam is also perfectly healthy.

I will be keeping you in my prayers that you and your baby have a perfectly happy end result, just like my sister did! (((HUGE HUGS)))
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  #12  
June 6th, 2011, 07:14 PM
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Hubshope, thanks for the positive story! I needed it!
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  #13  
June 6th, 2011, 07:42 PM
JessP's Avatar Lovin life and family
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I am so sorry and pray that all works out ok. We are here for you over the next couple weeks so please post as you need to. I am so sorry that you got such hard news today and pray you don't have to make a decision to terminate.
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  #14  
June 6th, 2011, 08:04 PM
NutMeg76's Avatar Platinum Supermommy
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(((hugs)))
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  #15  
June 6th, 2011, 08:11 PM
L-SBB's Avatar Bébé Cowgirl
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Location: Texas
Posts: 9,810
i just wanted to give you HUGS...i don't have any experience with this, but i was treated by a perinatologist until 20 weeks, try not to panic until you meet with yours...the difference in the quality of the u/s equipment for those level II scans is really significant and i'm holding out hope for you that once they get better visibility in a few weeks it'll turn out to be a false alarm.

We have had a number of ladies in PAL who had early scares with scans (bright spots on brains & hearts) that turned out to be nothing. I'll keep you in my T&Ps...please KUP on your appts!
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  #16  
June 6th, 2011, 09:25 PM
Brittanie's Avatar just me
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  #17  
June 7th, 2011, 04:48 AM
Mega Super Mommy
Join Date: Sep 2010
Posts: 1,171
The news is starting to sink in a little now. I've gone from flying high and feeling good about this baby to thinking that this cannot be good and to prepare for the worst.
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  #18  
June 7th, 2011, 05:13 AM
Regular
Join Date: Jan 2010
Posts: 61
I'm so sorry. My prayers are with you that everything goes right. My desire is for a healthy birth for you and your beautiful baby.
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  #19  
June 7th, 2011, 06:04 AM
momof8lopez's Avatar Platinum Supermommy
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Location: illinois
Posts: 8,306
I dont have any experience with this as well, but know from so many story's here on JM that alot of these early diagnosis's resolve themselves later on. It does not take the stress away unfortunately, and for that Im truly sorry. I will keep your little baby in my prayers and pray that in a weeks time you get much more promising news and can begin to celebrate again.
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  #20  
June 7th, 2011, 06:22 AM
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I am wishing you the best and please please keep us updated . Will be thinking about you
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