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Quad screening results are in!!


Forum: Pregnancy and Motherhood After Loss

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  #1  
July 22nd, 2011, 04:01 PM
Sillylittlefishey's Avatar Mega Super Mommy
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So as you most of you know, I declined having the quad sceen, but the specialists at my level 2 ultrasound talked me into getting it on the last possible day I could do it.

Well I had my usual weekly appointment (cervical checks-yuck) and the results are in. My dr said that the results couldn't be more opposite of my u/s. The specialists wanted to rule out Down Syndrome even though baby girl had no markers for it...just that she has short arms and legs (they think she's just going to be small like me). Anyway I tested negative for Downs but positive for spina biffida (sp?). My doctor isn't worried about it she said they've looked at her spine and it looks great and that if there is something wrong it would be so microscopic that they couldn't see it on the u/s. So I'm thinking this is just another false positive, but time will tell. I am refusing the amio, which my dr is fine with. They are repeating the level two in 2-3 weeks to check the growth on the baby's arms and legs. My doctor said they will try to talk me into the amio but to just hold my ground. That won't be hard because that procedure scares me to death!!
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  #2  
July 22nd, 2011, 04:32 PM
missy123's Avatar Platinum Supermommy
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It sounds like good news!!!


I had the amino done this pregnancy due to my age and we just wanted to know. I am so scared of needles so the nurse put a cloth over my eyes so I couldn't see. The doctor talked to me during the whole procedure and explained what was happening and my husband held my hands and prayed. I was on bed-rest for 2 days after as a precaution. Overall it was a scary thing but I have no regrets.

Also - in your case there is a blood test they can do to give you chances on any spinal issues with the baby. I totally forgot what they called it - rats! But with me they did it through bloodwork. Maybe you can ask about that?

--------

Here it is - this is what they tested me for. I came back at 1:17,000
The maternal serum triple or quadruple screen tests for a number of abnormalities including neural tube defects like spina bifida. Elevated levels of alpha-fetoprotein (AFP) in the blood can indicate a neural tube defect because this substance can leak from an open spinal canal in the fetus into the mother's blood stream. This test alone, however, is not enough to diagnose spina bifida, as false positives are not uncommon.
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  #3  
July 22nd, 2011, 04:51 PM
JessP's Avatar Lovin life and family
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So glad all looks well and you will have another check soon just to be sure. I love when we get good test results back
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  #4  
July 22nd, 2011, 05:13 PM
Brittanie's Avatar just me
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When it comes to that test, there is no true "positive." It's a matter of chances, likelihoods and ratios. And elevated number can possibly mean issues, but the negative is much more conclusive than the positive is. And really, it's an entire RANGE (x% and above) that they say is positive. There's no "it's there or it's not" result, it's how much of it you've got and what an elevated level could possibly mean. Since you've already had one ultrasound and not seen issues, and are having another, I'd be assuming it's just a false positive.
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  #5  
July 22nd, 2011, 06:04 PM
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Hooray for good test results...glad your doctor isn't concenred about your "positive"...I know there can be a lot of false positives so I think since your doctor isn't wroried and they already saw the spine looks good then you're good to go!
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  #6  
July 22nd, 2011, 06:06 PM
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Yay for good results
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  #7  
July 23rd, 2011, 05:02 AM
OurSweetLabs's Avatar I LOVE My Boys!!
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That is great !!
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  #8  
July 23rd, 2011, 05:13 AM
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Just so you know when you are declining the Amnio - it can not detect Spina Bifida. It can detect chromosomal abnormalities that may be more common with Spina Bifida but does not detect SB. I had an amnio with my SB diagnosis and i felt it was kinda pointless to do an amnio in that specific scenario. The case was quite severe so the u/s was conclusive anyway.

Also, there are three types of SB - two that are easily detected on u/s as a physical break in the spine and one that isn't. It is only the ones that are detectable on u/s that you really have to worry about so if they don't see anything wrong on the second u/s you should be fine. Even if the baby has SB - it could be the "benign" type.

The one that isn't detected occurs in a largish percent of the population and is rarely ever detected throughout life. No paralysis, loss of movement, etc. The AFP test, mentioned above, detects spinal fluid in the amniotic fluid, which would not be elevated in these cases since there is not a full break in the spinal cord, but since there is no real concern or reason for worry in these cases it's not an issue.
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  #9  
July 23rd, 2011, 06:06 AM
luvmykids623's Avatar Platinum Supermommy
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I'm so glad you got good results!
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  #10  
July 26th, 2011, 05:39 PM
Sillylittlefishey's Avatar Mega Super Mommy
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Quote:
Originally Posted by BeccaBee View Post
Just so you know when you are declining the Amnio - it can not detect Spina Bifida. It can detect chromosomal abnormalities that may be more common with Spina Bifida but does not detect SB. I had an amnio with my SB diagnosis and i felt it was kinda pointless to do an amnio in that specific scenario. The case was quite severe so the u/s was conclusive anyway.

Also, there are three types of SB - two that are easily detected on u/s as a physical break in the spine and one that isn't. It is only the ones that are detectable on u/s that you really have to worry about so if they don't see anything wrong on the second u/s you should be fine. Even if the baby has SB - it could be the "benign" type.

The one that isn't detected occurs in a largish percent of the population and is rarely ever detected throughout life. No paralysis, loss of movement, etc. The AFP test, mentioned above, detects spinal fluid in the amniotic fluid, which would not be elevated in these cases since there is not a full break in the spinal cord, but since there is no real concern or reason for worry in these cases it's not an issue.
Thanks for all that great info!! They were saying she was testing positive for an "open spine" and it was one in 1 thousand and so many babies...I can't remember the exact number. I'm really not worried about it...I know those tests aren't very accurate anyway....
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  #11  
July 26th, 2011, 06:04 PM
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Sounds like the odds are pretty low for the spina bifida, anyway. As BeccaBee said, the amnio can't tell you for sure if there was spina bifida. If you are going back for another level 2 ultrasound for the arms and legs, I'm sure they will also look closely at the spine again, which would be more useful in this situation than the amnio. Your odds are good, but I'm sending you positive thoughts anyway.
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