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  #1  
October 25th, 2011, 04:03 PM
lindsey2000k's Avatar Platinum Supermommy
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by a comment today at my NT scan.
My DR office sends you to a Peri office for your NT scan and 20 week scan.
They asked me a million questions about all the drugs I am on, and what diagnosis I have from my OB.
After the scan the Peri comes in and says how everything looks great and they will do the blood test and give me my results in about a week. She then goes on to ask about my MTHFR and if they tested my histomine levels (I am not sure if they did or not). She then said "well we treat that with extra folic acid only not Lovenox". They also suggest that I have a Counseling session to talk about MTHFR and my pregnancy. So I have that next week. They also said something about talking to my DR about co working with them.
I am a little scared now I dont want to be taken off the Lovenox all the forums and online info says to treat it with blood thinners.
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  #2  
October 25th, 2011, 04:21 PM
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I don't know much about Levonox or clotting disorders but,I'm sure they would not take you off it unless they did further testing. Hopefully the counseling can give you more anwars and give you some peace of mind. My MFM works closely with my regular OB, so maybe once they communicate she will know more and then you can talk about.
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  #3  
October 25th, 2011, 04:32 PM
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Lindsey, my OB consults on my case with a MFM office and when I go there I see all different doctors. Some of them recommended that I stop Lovenox, others didn't, basically my OB said I could do what made me comfortable. Are there other peris at the office? I would just try to stand your ground about why you want to stay on the Lovenox- the risks of the Lovenox are minimal so the peris or your OB may go with your wishes even if it isn't what they normally do.

I know it is super stressful to get an opinion that terrifies you, though
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  #4  
October 25th, 2011, 05:15 PM
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Yeah, my OB said that Lovenox has been shown to be helpful in certain conditions but in others it is seen as "controversial." Apparently mine was not a controversial one, since I was on it all through my pregnancy and it was never mentioned that I should stop it. I have APS (Antiphospolipid Syndrome) and it comes with a different set of issues, I guess?

But I agree with talking to a different peri or getting a second opinion. You might find someone else has a different take on it. Hopefully you get it all explained and worked out. I certainly understand your nerves on stopping it. When we were talking about how to natural birth on Lovenox, I was freaking out every time my doc mentioned taking me off at 39 weeks.
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  #5  
October 25th, 2011, 05:36 PM
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I am going to stick with what my OB thinks. This might be my rainbow baby and I am not going to stop the lovenox and risk another loss.
I think it was just like her tone she took with me.... it was weird like she was questioning my choice.
My moms GYN said he also doesnt belive in treating it with blood thinners and called it a numbers game. I spoke with my OB about that and he said there is no real proof that the lovenox works but its like voodoo and for some reasons ladies on it carry to term.

She asked me if anyone in my family has blood clots or if I have ever had one and I said no and she looked at me like I was crazy my making up that I have this.
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  #6  
October 25th, 2011, 07:00 PM
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Peris tend to be much more "research" based than OBs. The OBs are usually more willing to do whatever you need to keep peace of mind and to get your baby here healthy when you've had multiple losses. The peris focus more on the science than the emotion. I'm having a similar problem with mine. I love him dearly, but every time they take me off my progesterone I start to have timeable contractions. My OB says to stay on it since it's not hurting anything and it seems to be helping my uterus relax. He keeps telling me there's no research to say that it helps in twin pregnancies. He thinks I should come off and when I have the timaeable contractions I should go and have my cervix measured to see if it's changing. I say why let it get to that point if the progesterone helps?

Anyway, if I were you I'd go for the consult and then take everything they say with a grain of salt when it comes to the Lovenox. Stay on it and just follow what your OB says. You've gotten a lot further than you have in the past with your losses, so even though the Lovenox may not be the reason, it may be. They'll have a hard time understanding that.
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  #7  
October 25th, 2011, 07:58 PM
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I don't know anything about this topic, just wanted to give you a big hug ((Hug)). Stick to what your gut tells you.
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  #8  
October 25th, 2011, 08:31 PM
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You can always talk it over with the OB and just see what they suggest but I agree with Missy...stick with your intuition!
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  #9  
October 25th, 2011, 09:10 PM
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If it were me, I would totally stay on the Lovenox. I don't think that it is going to hurt you. I would be so scared to go off of it.
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  #10  
October 26th, 2011, 07:32 AM
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Quote:
Originally Posted by luvmykids623 View Post
Peris tend to be much more "research" based than OBs. The OBs are usually more willing to do whatever you need to keep peace of mind and to get your baby here healthy when you've had multiple losses. The peris focus more on the science than the emotion.
Mines the opposite, my peri (who I actually switched all my OB care too during DS's pregnancy) is much more in touch with keeping me sane and what works for each patient.

I agree though it can't hurt to get what I guess would be a third opinion. Or just continue on with what your OB says. Unless they can tell you some detrimental issue with the Lovenox, I'd leave well enough alone.
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  #11  
October 26th, 2011, 09:20 AM
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Don't underestimate the importance of your own sanity. We had discussed heparin for my pregnancy and in the end I didn't do it... I have no idea whether it was the baby aspirin, acupuncture, prometrium or something else, but whatever it was it worked for me. Unless you were having side-effects, I wouldn't change a thing.
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  #12  
October 26th, 2011, 03:27 PM
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It took me 6 specialists to find one who had a plan we could agree on. I'm in the hospital now and fight the others peri's when mine is not available.

I'm not even sure if its reccomended to just abruptly stop lovenox. I have aps and I am not sure either if its the Lovenox, aspirin, bedrest, extended hospital stay, terbutaline, indocine, procardia, prometrium, or anything else we have done but this is the most pregnant I have ever been. Its hard to ignore another doctors opinion. But lovenox does not cross the placenta and my doctor puts it a good way. High risk pregnancy is practicing the art of medicine. That every woman and baby is different and though studies show one thing usually if you are to the point of seeing a perinatologist you are part of a small percentage that could easily fall into those 5% r 2% that the other doctors are using as a guideline.

I can't coun't how many times someone has told me "Well 90% of people..."
Or "Studies show that this is not effective most of the time."

Thats me. I am that small percentage, I am not most of people.

So if you trust your doctor and have already been using it I would just stick with it. How far along are you?
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  #13  
October 26th, 2011, 06:47 PM
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My OB said progesterone is "voodoo" but he still uses it. I wouldn't worry. Sorry she got snippy with you.
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  #14  
October 27th, 2011, 06:20 AM
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Quote:
Originally Posted by ll10 View Post
It took me 6 specialists to find one who had a plan we could agree on. I'm in the hospital now and fight the others peri's when mine is not available.

I'm not even sure if its reccomended to just abruptly stop lovenox. I have aps and I am not sure either if its the Lovenox, aspirin, bedrest, extended hospital stay, terbutaline, indocine, procardia, prometrium, or anything else we have done but this is the most pregnant I have ever been. Its hard to ignore another doctors opinion. But lovenox does not cross the placenta and my doctor puts it a good way. High risk pregnancy is practicing the art of medicine. That every woman and baby is different and though studies show one thing usually if you are to the point of seeing a perinatologist you are part of a small percentage that could easily fall into those 5% r 2% that the other doctors are using as a guideline.

I can't coun't how many times someone has told me "Well 90% of people..."
Or "Studies show that this is not effective most of the time."

Thats me. I am that small percentage, I am not most of people.

So if you trust your doctor and have already been using it I would just stick with it. How far along are you?


I am only 12 weeks. All of my losses have happened around the 8th week and we see a heartbeat and then its gone. MTHFR is a fairly new thing so DR's dont agree on treatment but I would rather be more aggressive and do everything I think helps rather than sit back and wait and loss another baby and wish I would have tried more.
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  #15  
October 27th, 2011, 06:33 AM
lindsey2000k's Avatar Platinum Supermommy
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Quote:
Originally Posted by JessP View Post
My OB said progesterone is "voodoo" but he still uses it. I wouldn't worry. Sorry she got snippy with you.
Yeah my DR said this exact thing about taking BA
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  #16  
October 27th, 2011, 06:34 AM
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I have the MTHFR mutation and we treated it with Folic acid, but this is how i understand it, though i am clearly not a doctor:

Some people have more frequent miscarriages because of the mutation, and unless proven to be something else, they assume it is a clotting issue and treat with blood thinners and folic acid, which it sounds like what you are doing. Others have a clear diagnosis of a NTD (which is what happened to me) which is attributed to a lack of folic acid and lowered histomine levels. So in my case, they knew what the issue was and decided to only give me an increased dose of folic acid, which worked. Typically, most friends that have been on the blood thinners have also taken the extra folic acid, since the MTHFR can lead to both clotting issues and neural tube defects, so if you are also taking the folic acid, i'd stay stick with both, even if it is for peace of mind!
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  #17  
October 27th, 2011, 06:38 AM
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Lindsey the way I see it is it's not hurting you and can only help if it's needed. This is the farthest you have gotten and since you have been on it your pregnancy seems to be going wonderfully. I say stay on it and if they push the issue push right back. Follow your heart!
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