Log In Sign Up

Just diagnosed with PCOS, can't stop crying...Will Clomid work?


Forum: Trying to Conceive With PCOS

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Trying to Conceive With PCOS LinkBack Topic Tools Search this Topic Display Modes
  #1  
August 29th, 2011, 12:34 PM
Member
Join Date: Aug 2011
Posts: 23
Hi ladies,

My name is Mandy, I'm 26 and I am new to the board and was just diagnosed with PCOS. I had been tracking my temps and CM since March and noticed that my cycles lasted from 35-46 days. I also noticed that my luteal phase was only 9 to 10 days long. To make the long story short, when i saw my doctor this month, he ordered me to take blood tests and see how it comes back. Well he told me all the tests were fine except the AMH test and that it was elevated, telling us that I have PCOS. I could not stop crying yesterday when i got the news. I am so sad about this and hope that I can have children.

My doctor told me to try Clomid 50mg first because I have a period every month, just long cycles. I'm not overweight, I work out almost everyday and I eat healthy so maybe that's why I have not had any symptoms really, except a little acne. I just finished my last Clomid pill last night so now I'm tracking my temps and using OPK's. Fingers crossed I get a positive OPK and get pregnant this month.

I have read alot of posts of women taking metformin with Clomid... Have any of you gotten pregnant with just Clomid? I'm trying to be positive but I can't stop crying... I just wish I knew that everything would be okay.

Sorry for the long post

Mandy
Reply With Quote
  #2  
August 29th, 2011, 01:03 PM
Mega Super Mommy
Join Date: Sep 2010
Posts: 1,492
Hi Mandy!

Sorry about the recent pcos diagnosis. That is tough news to hear.

I am a little perplexed because I had thought the AHM test was usually used as a predictor of egg reserve? It can be elevated in women with pcos, but that alone shouldn't give a pcos diagnosis, if I am correct. PCOS usually shows high LH, string of pearls on ovaries as seen via ultrasound, high prolactin levels, high insulin, high testosterone - usually one of those.

Clomid can and does work alone for women with pcos, though for thin women with pcos it seems to not be as effective. I ovulated before while on it, but didn't conceive and carry to term. That doesn't mean it won't work for you though. Lots of women have great success with it. Clomid is often given for unspecified infertility as well. So in short, yes it can work for you! Are you seeing just a regular obgyn? I would perhaps second guess the pcos diagnosis if all you have is elevated AHM. I guess I would be curious about diminished ovarian reserved. I'm sorry, I am not trying to make you feel worse. I hope the clomid does work for you and hopefully someone else here will have more information they can tell you to help you out. Hang in there!
Reply With Quote
  #3  
August 29th, 2011, 01:23 PM
Platinum Supermommy
Join Date: Mar 2008
Location: Maryland
Posts: 20,233
I'm so sorry that you're going through this. I'm also curious about the accuracy of your diagnosis. I'm a case of thin PCOS. My cycles range from 29-39 days typically, though have been as long as 6 months. My blood work showed low estrogen and my ultrasound showed polyfollicular ovaries. Add in symptoms and there you go. I don't think I've ever heard of AHM alone being used for PCOS diagnosis? I'd definitely question that.

To answer your question about Clomid, my third is a Clomid baby. I was on 50mg CDs 5-9 and after 13 cycles our 2nd round of Clomid got me my beautiful baby girl. It can absolutely work without Metformin and it can help thin women as well. I truly hope that it works for you and please don't feel the need to hold in any of the frustrations you feel while on it. Women can feel very abnormal on Clomid (often called the Clomid Crazies) and it helps to talk about it. If you feel fine, that's great, but if not please don't feel alone.

Good luck!
__________________
~Thanks Babydoll213 for my awesome siggie!~



Reply With Quote
  #4  
August 29th, 2011, 01:39 PM
BeccaMenk's Avatar Mega Super Mommy
Join Date: Jun 2010
Location: Cincinnati,OH
Posts: 1,289
Yeah I think maybe you should get a second opinion..I don't know how they could says it def. PCOS with just the AMH test...Usually they will do an ultrasound to looks for cysts and check your insulin levels.

That aside...Clomid was tough for me but it brought my sister who has PCOS as well, her last two babies! So it just depends how your body reacts to it. I recently switched of it onto Femera because clomid dried my CM. My sister had success with clomid and never took Metformin or anything like it. I took it and couldn't tolerate and now I take Actos which basically does the same thing...

Even if you don't have PCOS the clomid might help give you that extra boost. ALso, if you really do have PCOS don't despair! I have to remind myself of that too. It just makes it harder to get pregnant but not impossible...many people do!
__________________
"That special power of loving that belongs to a woman is seen most clearly when she becomes a mother. Motherhood is the gift of God to women". - Mother Teresa.
Reply With Quote
  #5  
August 29th, 2011, 02:07 PM
OnesOnTheWay's Avatar #2 Due July 19, 2013
Join Date: Nov 2006
Location: Southwest
Posts: 4,631
I agree you need to get a second opinion! If all your blood work came back fine except for one I don't think that would even meet the requirements to be DX with PCOS. Not only that but they usually have to rule out cushings disease (at least in the UK) and other factors before dx with PCOS.
__________________
Reply With Quote
  #6  
August 29th, 2011, 02:19 PM
Ritzbitz's Avatar In love with my daughter
Join Date: Jan 2010
Location: Sunny Florida
Posts: 1,803
I would highly recommend getting an ultrasound to confirm because PCOS is quite evident on an ultrasound. BW usually is the first step to being diagnosed followed by an ultrasound to confirm.

you might have a mild case and since you work out and stuff, i think clomid will work for you, it has been successful for many cysters here! good luck and keep us posted!!!
__________________

thank you to Jaidynsmum for my beautiful siggy




Reply With Quote
  #7  
August 29th, 2011, 02:51 PM
HaydensMa's Avatar Mega Super Mommy
Join Date: Jun 2010
Location: Southwest Iowa
Posts: 2,390
I dont know too much about it, this is my first cycle with Colmid, but as I go along--I'll try and keep you informed
__________________

Sara Beth-Mommy to Hayden <3




Reply With Quote
  #8  
August 29th, 2011, 06:24 PM
pisceschik
Guest
Posts: n/a
Just wanted to chime in- I was also very upset when I found out I had PCOS. I just found out like 3 months ago, my only symptom was irregular periods. It was especially frustrating because I workout religiously, eat healthy, and am a normal weight. Being a thin PCOSer is tough b/c there's not much in your control to change things.

That being said, my only advice would be to find a really good doctor, a RE if you can. It takes a lot of weight off your shoulders having a doctor take control of everything. Just try to remember, women with PCOS are totally able to conceive and give birth to happy, healthy babies. It's just a little more complicated, but it can and does (all the time!) happen.

About Clomid, I took it for 3 months, two of which were unmonitored with my GYN. On the 3rd month, my new RE found that it was thinning my lining, so this month we switched to femara, which worked REALLY well, knock wood! Lots of girls have great success with clomid, and in situations like mine, there's other drugs to try. Just try to remember, you're healthy, there's no reason why you shouldn't have success. Just try to stay positive, and come to these boards when you have questions or need to vent. Good luck!!!!!!
Reply With Quote
  #9  
August 29th, 2011, 07:35 PM
Member
Join Date: Aug 2011
Posts: 23
Thank you all so much for the encouragement!

So the blood tests my doctor had me do were Estradiol, Prolactin, AMH, TSH and FSH. He told me that all looked fine, no concerns but then got the results for AMH and said that it was elevated and that it looks like I have PCOS. He has not done an ultrasound yet but will do one on my next appt. in mid-September to see if the Clomid worked. When I was there a month ago, he did an exam to look for cysts and said he did not feel any so it was okay to put me on Clomid.

He is my Gyn/OB and i have been going to him for over 5 years, he really is great but may need to run more tests. I'm going to try to see my tests results and do some more research... So high AMH is better than low because it means I have a lot of eggs?

Thanks again! I'm so glad I could talk to someone about this. My sweet husband listens and tries to console me when I'm upset but it's nice to talk to women who are also going thru the same thing
Reply With Quote
  #10  
August 29th, 2011, 08:41 PM
Platinum Supermommy
Join Date: Mar 2008
Location: Maryland
Posts: 20,233
He didn't feel any cysts? You usually check for cysts on the ovaries by ultrasound, you can't really feel them. Take mine, for example. Being polyfollicular what I actually have are a bunch of tiny undeveloped follicles which are a type of cyst. Mine need an extra push or most of the time my eggs are no good. You can't feel that by manual exam though. It doesn't sound like your doctor knows much about PCOS at all.

High AMH could indicate a great ovarian reserve or PCOS. Without more testing it's hard to say for sure.
__________________
~Thanks Babydoll213 for my awesome siggie!~



Reply With Quote
  #11  
August 30th, 2011, 02:27 AM
Expecting #1
Join Date: Mar 2008
Location: London
Posts: 1,152
I agree with the other ladies...I would consider getting a second opinion. He may be a good OB/GYN for ordinary things, but it doesn't sound like he knows much about PCOS at all.

But even without PCOS(if you indeed do NOT have it, since it doesn't really sound like you do) hopefully Clomid will work for you! It's not just used for those with PCOS, so hopefully you will have success! I was given 50mg of Clomid to take CD2-6 without metformin and I got pregnant with the first round. So it can definitely happen!
Reply With Quote
  #12  
August 30th, 2011, 02:37 AM
ETanny's Avatar Mamma 2 Moo & Pops
Join Date: Feb 2007
Location: Hull
Posts: 19,770
Send a message via MSN to ETanny
Just wanted to add - it took me three rounds of clomid to get pregnant
Good luck with your journey x
__________________



Reply With Quote
  #13  
September 1st, 2011, 03:28 AM
Newbie
Join Date: Sep 2011
Posts: 3
Quote:
Originally Posted by Trannyfromtheuk View Post
Just wanted to add - it took me three rounds of clomid to get pregnant
Good luck with your journey x
i got a quick question can u get pregnant with pcos without tryin anything im losing hope im young im 22 yrs old.
Reply With Quote
  #14  
September 1st, 2011, 04:51 AM
Platinum Supermommy
Join Date: Mar 2008
Location: Maryland
Posts: 20,233
Some women with PCOS can get pregnant simply by making lifestyle changes in diet in exercise. Others don't need anything at all. A friend of mine has PCOS with the majority of the symptoms, but her fertility hasn't been affected. A woman that used to be on this board did treatments for a long time and didn't get pregnant until she stopped. She only ovulated roughly once a year on her own. It is definitely possible to get pregnant on your own, it just depends on the circumstances. Good luck.
__________________
~Thanks Babydoll213 for my awesome siggie!~



Reply With Quote
  #15  
September 5th, 2011, 03:11 AM
ETanny's Avatar Mamma 2 Moo & Pops
Join Date: Feb 2007
Location: Hull
Posts: 19,770
Send a message via MSN to ETanny
Quote:
Originally Posted by babygirlandbud@yahoo.com View Post
i got a quick question can u get pregnant with pcos without tryin anything im losing hope im young im 22 yrs old.
I fell pregnant with my DD at 18 without taking anything. I was told by my Dr that she shouldnt exsist. In acutal fact she was a pill baby too.
I have also heard of women who have PCOS whose fertility it doesnt mess with but they have all the other horrid symptoms.

So it is possible. I would also imagine it would have something to do with how bad your PCOS is. Maybe discuss this with your Dr?
__________________



Reply With Quote
  #16  
September 5th, 2011, 04:17 AM
~* Natasha *~'s Avatar Mega Super Mommy
Join Date: Apr 2010
Location: Va
Posts: 2,323
Send a message via Yahoo to ~* Natasha *~
I agree that you should probably try to see a Reproductive Endocrinologist (RE's as we usually refer to them) for a second opinion.
They are considered the experts on infertility and the diagnoses that cause infertility.
I'm on my second round of Clomid this cycle at 150 mg.
My first cycle was at 100 mg because I had previously been on Femara and my body stopped responding.
This, after I had gotten pg last July on my second round of Femara.....
SO, different ladies respond different ways, and I'm definately an example of one that reacted differently to the same medicine at different times!

Good luck and KUP on anything else you may find out!
Also, we are here for you if you have questions, concerns, etc.!
__________________
*Mommy to LinLeigh Quinn December 8th, 2012*
Reply With Quote
  #17  
October 30th, 2013, 09:10 PM
Newbie
Join Date: Oct 2013
Posts: 1
Hey ladies I know this is an older threat but I wanted to just say that I also recently got diagnosed with PCOS with only my AMH test results being slightly higher.

However, I am curvy which I don't blame on the PCOS because for a few years after I got married I didn't exercise and we ate out all the time. I'm healthy now but I do find I have to try harder to lose weight.

I've questioned my diagnoses for a long time but I've had 2 out of 3 doctors agree that I have PCOS.

We've been trying for 6 years and have had 7 m/c's with 100's of internal scans none of them have showed any cysts out of the normal range. All my blood tests come back normal but my testosterone was only .5 up however my GP argues that I had just started weight training and eating a high protein diet which can increase it slightly.

I don't get any symptoms like I've never really had any acne ever besides the odd 1 popping up once or twice a year and I don't have any excess hair, I actually don't even have to shave the top half of my legs lol.

So yesterday I asked my new specialist is it possible to have pcos and not have any of these physical symptoms, normal hormone ranges and no pearling or normal follicles on scans and he said YES. Even though technically you need to meet at least 2 factors but because PCOS is so individual it can work so differently in peoples body. He argued that even though I've sat 3 hour glucose tests and my insulin has always been go just have any excess weight is enough to cause insulin resistances and that those tests can be quite off.

It's so frustrating because my head tells me logically I don't have PCOS and if so its very borderline, however I need to accept that I don't fit the normal ranges for PCOS and treat my body for PCOS because I should trust in these doctors.

Anyway I just wanted to share my diagnoses experience with you because I found this on the net and it was a help to me so I hope that I can also shard some light for borderline PCOSers like myself and the original poster.

Got a lot to learn from you girls! x
Reply With Quote
  #18  
October 31st, 2013, 12:51 PM
Newbie
Join Date: Oct 2013
Location: Texas
Posts: 5
i wanted to share my story and my hope. i was dx with PCOS this year (currently 25yrs old) as well (March to be exact), I was given Metformin because of my insulin levels and also started Clomid 50mg days 5-9 of cycle. In 2012 I had already done a full 6 months of Clomid of 50mg only and it didnt work, I just gained lots of weight, so this year when I saw a different Ob he dx with PCOS after tests and u/s. I did 2 months of 50mg, then increased to 100 mg for another 2 months and 1 round of 150mg of Clomid. August was the last month I took the last round of Clomid (150), found out I was pregnant on September 27 and on October 16, it was confirmed I am carrying twins!
Two days ago, I heard their heartbeats and saw them both growing so much from the 1st u/s, I wanted to share my joy with all of you but also wanted to let you know, there is hope even with PCOS, it is harder and a long journey at times, but it is worthed, keep the faith and dont give up.

PCOS is not only dx for big women but also for those who work-out so much that messes up their cycles causing imbalances on hormones and all. There is no wrong on getting a second opinion, it worked for me...in the long run
Reply With Quote
  #19  
November 5th, 2013, 07:06 PM
Regular
Join Date: Oct 2013
Location: Kentucky
Posts: 92
Sorry about the recent diagnosis, but know that it isn't a death sentence just makes "trying" a little harder, not impossible. I learned I had 'thin' PCOS after 1 year of trying for our first and very irregular periods (at one point I went 90 days w/o one). They started me on Clomid the first month and an increased dose the second month. All Clomid did for me was give me hot flashes like crazy! My progesterone level went from 0.4 to 0.5 ( needs to be above 4.0 to indicate ovulation). The next cycle we tried Femara and I ovulated the first cycle although I missed it because it happened later than anticipated and I had already stopped testing. The second cycle my progesterone level was 36. Nurse said she had never seen it that high in any patient and we conceived our daughter. Not trying to get your hopes down but don't want you to get even more disappointed if it doesn't work this round. There are other options out there. Good luck and FX for you!!
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 10:10 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0