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I haven't had a period since I went off BCP in January. After testing the doctor called today and said I have PCOS. First course of action is for me to lose weight. I am about 40 lbs overweight right now. I am watching calories but my exercise is still limited because I was in a car accident earlier in the year and am still recovering from a whiplash injury. I know I need to push through it though. I am scared because it has taken almost 5 years for my husband and I to decide we were ready, and now I feel like I may not be able to have a baby. I know PCOS isn't the end, but right now my mind is telling me all the worst case scenarios. I am feeling broken and like I can't fix myself. PCOS is not something I know runs in my family but diabetes is which I guess is a risk factor for PCOS? I am so confused and overwhelmed. I need to educate myself on what exactly this means for not only TTC but my future. Funny thing is that now that I know what the symptoms are I am pretty sure it's why my doctor put my on BCP at 17 even though he didn't know it was PCOS. He just said it was normal to help teens regulate and with acne. Here I am at 26 and now that I am off the pill it shows that it wasn't just a teen phase.
*sigh* Looking forward to doing whatever I can to better myself and my ability to conceive.
Any advice on what to expect and suggestions would be greatly appreciated. I am going to start reading through some of the old topics now.
I've been lurking around here for a couple weeks, but I wanted to give you some encouragement. I was diagnosed with pcos when I was 18 and was put on bcp right away too. Since then, I knew it would take some work ttc when I was ready. Before I got married 2 years ago, I was about 40 lbs overweight as well, but lost a little over 20 before the wedding and I've managed to keep it off. DH and I decided ttc about 7 months ago, and we wanted to try it naturally before any fertility treatment. to my surprise, it only took 6 months of ttc to get a bfp without any treatment. I was always told that losing just 10% of my body weight would help me a lot when ttc, and I actually think that was true for me. Talk to your dr. about other treatment while also trying to lose weight, I know metformin has helped for a lot of people.
I don't know if this works for everyone, but I lost my weight pretty easily by limiting my carb intake. A lot of women with pcos are insulin resistant, as I am, so limiting the carbs really helped.
pcos is extremely frustrating! sorry you're going through this!
I was diagnosed with PCOS when I was 13. I started my period when I was 10, had it til I was 12 and it just magically stopped for a year. They did all the blood tests and came back PCOS. They put me on birth control and I pretty much never went off of it. A little over a year ago, I had a doc do my blood tests and hormone levels to see what was going on since it had been a really long time. Came back for sure PCOS, of course. They said it was moderate to severe. I've been overweight my whole life, so of course losing weight was the first thing they mentioned, they also put me on metformin and aldactone to help. I took my birth control and meds as ordered for a couple months until I moved out of the state and wasn't able to get them again, but my period showed up mostly on time so I didn't worry about it. Well, I started dating someone new and a month after we started being intimate, I was pregnant. This is NOT what I wanted and frankly it happened the one time we didn't use a condom. My periods weren't really regular so I did't think anything of it when I was a few days late. But here I am at 34 weeks pregnant having gotten pregnant the first cycle EVER without protection.
THe point I'm trying to make is that while PCOS does hinder fertility, it only takes one good cycle. I was on birth control for nearly 13 years straight, wasn't on my metformin and hadn't lost any weight...and here I am pregnant with my first child. I don't want to give you false hope, but I want to assure you that getting pregnant is NOT impossible with PCOS. Be sure you get your hormone levels checked - a FULL PCOS panel and get on some metformin to help with the insulin resistance and fertility if that is what your doc recommends.
The biggest thing is try not to stress. Stress is bad for your hormones and bad for ttc. I'm sure you've heard all the stories of couples that gave up trying and that's when they got pregnant.
Thank you for the positive encouragement everyone. I scared the crap out of myself yesterday looking at articles online that varied from doom and gloom to saying it's nothing. I think the one that scared me the most was one article said about 50% of PCOS pregnancies are miscarriages...but then I immediately read another article talking about the horrible lack of scientific method used in studies that come out with numbers that high. So I think I've decided to avoid "articles" and look more at real life examples.
I have been losing 1.5lb/wk since I have started actively tracking my calories again. My goal right now is to lose the first 20 and then I'll take on the second 20.
The number one thing I am seeing is I need a full PCOS panel both to calm my nerves and to make sure anything that needs addressing is seen. Diabetes runs in my grandpa's generation so I want to make sure there's nothing additional going on. The last time I had my blood sugar and cholesterol checked it was great, but I was still on the pill then.
Excitedly Expecting #1 w/ PCOS around June 16, 2014
Adopted mom to DS (16)
Your story is very similar to mine. I went on BCP when I was fifteen bc of abnormal periods, but was never diagnosed with PCOS (even though thats probably what I had). When I first diagnosed I was heartbroken. I didn't stop taking the BCP until we were ready and we really want to have a baby, but things never happen as you plan. :/ However, since my diagnosis, and seeing an RE I have a totally different outlook and know its not impossible for me to have a child; it is just going to take more time than we would have liked. My RE said to me, most of the people who walk into his office have PCOS and it is the most common type of infertility issue. So no reason to give up hope.
Have you thought about seeing an RE? They can deal with this issue alot better than your regular gyn. My gyn was amazing and did try 2 rounds of clomid with me, until he recommended I go see a specialist. He couldn't follow me as closely as the RE will be doing. Good luck to you on this journey! Remain positive!
I'm so new to this that I haven't looked into an RE, but my husband and I have agreed that after one year we will go see a specialist. My health plan (Kaiser) is really big on waiting one year before they refer to a specialist and I'm ok with that at this point. I'm happy to start finding some more people with positive outlooks because there seems to be so much negativity out there.
Beginning of July I have my check up appt with my gyn and so I'm compiling my list of questions to ask.
Excitedly Expecting #1 w/ PCOS around June 16, 2014
Adopted mom to DS (16)
Great idea to right down all your questions. I hope your doc can answer all of them. this group is great in providing support, answering questions and being positive!
Totally understand the waiting to see specialist...do you just love health plans? lol