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Anyone have a child with this?


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  #1  
November 14th, 2005, 07:06 PM
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Does anyone have a child with a bothersome pancreatic rest? My 5 yr. old was just diagnosed with this after an endoscopy. It sits right next to the opening to his intestines and may be causing intermitant blockages. Thus why he has episodes of on and off vomiting all his life.
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  #2  
November 14th, 2005, 08:07 PM
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Quote:
Originally posted by momof3@Nov 14 2005, 08:06 PM
Does anyone have a child with a bothersome pancreatic rest? My 5 yr. old was just diagnosed with this after an endoscopy. It sits right next to the opening to his intestines and may be causing intermitant blockages. Thus why he has episodes of on and off vomiting all his life.
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How interesting. I've never heard of this, though now I'm researching it. Has your son had any GI bleeding? What did the GI Dr. say to do about it? Keep an eye on it endoscopically? How frequent are your sons episodic vomiting?
Though we aren't familiar with this particular diagnosis, we have a lot of experience with my daughter having a lot of different GI issues- I might be able to find more information for you if I knew more.
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  #3  
November 15th, 2005, 10:45 AM
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Well, it is kind of a long story but he has had reflux problems since birth. We went thru nutramigen formula, zantac for the first year, ect. He always was a very gaggy kid, threw up a lot. Especially when he cries, gets upset, or get very excited. We also have asthma we deal with which can trigger the reflux. We got aggressive this past year in finding out whats wrong because we feel he should have outgrown this by now. He dosen't throw up all the time but when he does, its usually after a good dinner. About ten munutes after he gets the look on his face and we rush him to the bathroom, everything comes up , and then he is fine. Its been very fustrating. He may do this 3 times in one week and then go a few weeks without any symptoms. He does gag and seem like he is "pushing" something back downa lot of the time. I just got his results from his biopsies and they where normal. His PH probe showed signifigant reflux so we are upping his prevacid to twice a day, 30mg in the morning and 15mg. at night. Now the question is will this do the trick or is this pancreatic rest really the culprit.If it does, he can't stay on the prevacid forever, so how do we cure the reflux? I don't know much more about the pancreatic rest, I have researched it myself. The GI doc says that he does see them in people but generally they are at the side or tops of the stomache. Its basically a nodule of pancreatic tissue that forms through the stomache wall and has been there since birth. My sons however is a little on the large size and sits in an unusual spot; right up next to the pinhole that leads to his intestines. Thats why there is speculation about wether or not this is causing intermitant blockages. Normally, they don't do anything about them when they are elsewhere in the stomach because they are simply just some excess skin that dosen't do anything to you so they are just left there. To remove it is a pretty involved and long surgery. There is no easy way to get to it and when they do its not a superficial thing, its embedded in the stomach wall. They want to treat him more aggressivley for the reflux and see what happens. I'm not ready to throw him into stomach surgery yet and I don't think they are either.We have had him tested for food allergies and so far have found nothing. Hope this helps you understand a little more.
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  #4  
November 15th, 2005, 01:56 PM
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Thank you for the info. In my research yesterday, I actually saw a photo of one just above the pyloric orifice- I'll see if I can find it for you.
http://www.vh.org/pediatric/provider/pedia...h/pancrest.html

I can see how involved the surgery would be. Are they positive that the nodule is to blame for the reflux? Could it be a coincidence? I ask only because I haven't been able to find any info. about it being involved with reflux- just gastric bleeding. I don't know if there are nerves involved or anything; but I can keep looking for you. Where is your son being seen? Has teh Dr. talked about reglan or a nissen fundoplication at all? the fundo is surgery, bit it's done laproscopically. Keep us posted on what the new plan is and how it's going.

My daughter, Anika, has had severe reflux disease since she was born. She has low tone cerebral palsy, and we believe that her reflux disease is caused by her having low muscle tone in her smooth muscles (GI tract) as well. She basically takes medication for every GI function there is- because seh lacks the ability to keep he rfood down and move things along through the whole process. She eats by g-tube & had a Fundoplication last summer. I understand the frustration of waiting for them to "outgrow" reflux. At first we were told that Anika had reflux because she was a preemie; which is pretty common. First she would out grow by the time she was 3 months old (term), then it was 6 months, then they said that she would DEFINATELY out grow it by 2 (I know this all sounds familiar to you). AFter her 2nd birthday she was once again dx'd failure to thrive (again) and her reflux started to get worse! Her chronic lung disease & asthma were also getting worse and worse (she also has trachealmalacia and laryngealmalacia which got worse as well); she was aspirating stomach content into her lungs everytime she laid down, etc. She was dx'd with CP around that time as well. The fundoplication has really helped respiratory issues. Her asthma is still pretty bad, but she's not taking as much resp. meds as she was before. She can't eat now though, we aren't sure if the fundo messed with some of her nerves, or if it's just too tight- we will see soon. So this looks to be a life long thing for Anika.
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  #5  
November 17th, 2005, 07:31 AM
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Wow, with all you have going on I feel like my issue is so minor. So sorry to hear of all your troubles with your daughter.

The docs are not ready to say that this is the cause of his reflux, just a possibility. They have increased his prevacid to 2x a day and in 5 wks I see them again to see how his symptoms are. If he still has them then they will redo his ph probe while on meds to see if this nodule really is causing more problems. He has no history of bleeding.

We live in the suburbs of philly so we have been going into town to a GI specialist at Childrens Hospital of Philadelphia. It is one of the top hospitals in the country so I do have pretty good confidence in them. We may go for a second opinion just to get another persons perspective.

Thanks for the link, I have seen this pic also. My sons is more round in shape and little larger.
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  #6  
November 17th, 2005, 10:21 AM
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Quote:
Originally posted by momof3@Nov 17 2005, 08:31 AM
Wow, with all you have going on I feel like my issue is so minor. So sorry to hear of all your troubles with your daughter.

The docs are not ready to say that this is the cause of his reflux, just a possibility. They have increased his prevacid to 2x a day and in 5 wks I see them again to see how his symptoms are. If he still has them* then they will redo his ph probe while on meds to see if this nodule really is causing more problems. He has no history of bleeding.

We live in the suburbs of philly so we have been going into town to a GI specialist at Childrens Hospital of Philadelphia. It is one of the top hospitals in the country so I do have pretty good confidence in them. We may go for a second opinion just to get another persons perspective.

Thanks for the link, I have seen this pic also. My sons is more round in shape and little larger.
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All of our kids' issues are traumatic on us and our families. I remember when my first daughter was born, she had jaundice and they were going to keep her an extra couple of days. The thought of leaving the hospital without her was just too overwhelming- and at the time, I couldn't imagine anything worse. I never would have thought that my next child would be spending 1/4 of her life in the hospital- but either way it was still horribly traumatic, you know? Any situation where a child is sick (chronic or not) is stressful.
I"m glad to know you are going to CHP, it's a great hospital. It's always a good idea to get a second opinion too. I hope that they will be able to figure out the source of your son's reflux. I always try and prepare myself for how Anika will handle things like this when she is older; and I just can't. How does he handle this emotionally and socially?
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  #7  
November 19th, 2005, 05:53 PM
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I always say that I am so lucky that my son is the personality that he is. He dosen't seem affected by this at all on an emotional or social stand point. I always say that I could very easily have a child with a major eating disorder on top of this because he does throw up a lot. I think most kids would want to stop eating but with Ryan there is times when he is throwing up in the bathroom and wants to go right back to the dinner table. One time he threw up at the table, I saw it coming and quick moved his plate that still had food on it and put mine in front of him. He threw up in my plate and pushed it aside and wanted his back to finish his dinner!
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  #8  
November 19th, 2005, 06:52 PM
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Quote:
Originally posted by momof3@Nov 19 2005, 06:53 PM
I always say that I am so lucky that my son is the personality that he is. He dosen't seem affected by this at all on an emotional or social stand point. I always say that I could very easily have a child with a major eating disorder on top of this because he does throw up a lot. I think most kids would want to stop eating but with Ryan there is times when he is throwing up in the bathroom and wants to go right back to the dinner table. One time he threw up at the table, I saw it coming and quick moved his plate that still had food on it and put mine in front of him. He threw up in my plate and pushed it aside and wanted his back to finish his dinner!
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That's great! I swear the attitudes these kids have are such an inspiration!
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