[Lady Lotus]

My 7 yr old was just scoped and biopsied yesterday and we were told he has this disease.

Once the biopsy is back we will know whether its Crohns, UC, or a combo.

Anyone have any good advice on foods to have him eat or books to read, etc to help me understand this better and all that jazz. Once we get the biopsy results and the consultation and know what meds we'll be trying Ill have that end of it but Im really looking for some advice and support from those having been there with their child(ren).

How has school figured into it...have you had to make concessions or anything with the school, etc.

Id appreciate any help and support. Thank you!

[BensMom]

Sorry. The only intestinal issue I have experience with is my friend's daughter (homeschooled) who has Celiac disease. She has to avoid some things, but it's probably different for Crohns or other types of diseases. I've known a couple of adults with Crohns, but that was years ago.

Here are some links that may help you.

• CICRA cool zone
• CCFA.org: Kids & Teens
• Social implications of childhoo... [J Pediatr Gastroenterol Nutr. 1999] - PubMed - NCBI (In light of this, would you ever consider homeschooling? I know several parents who homeschool for medical reasons.)
• Childhood Crohn's Disease - Crohn's Disease Center - EverydayHealth.com
• Medscape: Medscape Access (you'll have to create a free account to read this in its entirety... it talks about nutrition)
• Crohn's Disease Diet Plan: Foods to Avoid, Low-Residue Diet, and More

At the very least, I'd suggest keeping a diary of all foods/drinks along with any side effects of those so that you can figure out what the trigger foods are.

[Lady Lotus]

Thanks for the links.

I did homeschool but we've moved and I want him in the school system here. This is a better system then where we lived before and he refuses to listen to me so homeschooling is kinda over for us(unless I can find someone to homeschool him for me LOL).

[BensMom]

Depending on the laws of your state, yes, you can find someone to homeschool for you - either privately at your home or as part of a homeschool academy where he'd "go to school" 2-3 days a week and do assignments at home for 2-3 days. Those offer access to teacher emails, classroom blogs, etc. to help parents guide their kids, but they strive for independent work, taking the pressure off parents. (Google "university model" homeschool or "homeschool academy" in your area.)