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My 7 yr old was just scoped and biopsied yesterday and we were told he has this disease.
Once the biopsy is back we will know whether its Crohns, UC, or a combo.
Anyone have any good advice on foods to have him eat or books to read, etc to help me understand this better and all that jazz. Once we get the biopsy results and the consultation and know what meds we'll be trying Ill have that end of it but Im really looking for some advice and support from those having been there with their child(ren).
How has school figured into it...have you had to make concessions or anything with the school, etc.
Sorry. The only intestinal issue I have experience with is my friend's daughter (homeschooled) who has Celiac disease. She has to avoid some things, but it's probably different for Crohns or other types of diseases. I've known a couple of adults with Crohns, but that was years ago.
I did homeschool but we've moved and I want him in the school system here. This is a better system then where we lived before and he refuses to listen to me so homeschooling is kinda over for us(unless I can find someone to homeschool him for me LOL).
Depending on the laws of your state, yes, you can find someone to homeschool for you - either privately at your home or as part of a homeschool academy where he'd "go to school" 2-3 days a week and do assignments at home for 2-3 days. Those offer access to teacher emails, classroom blogs, etc. to help parents guide their kids, but they strive for independent work, taking the pressure off parents. (Google "university model" homeschool or "homeschool academy" in your area.)