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Please read, I am hoping someone here will have some info that will be helpful to me and my son.
I have an 11 yr old son that has not been a bed wetter for several years (probably since he was 5) until recently. He started wetting his bed about a year ago, not ever night but something like once every week or two, but still out of the ordinary for a child who has not wet his bed since before he started school. Around the same time that the bed wetting started he had some blood in his urine. He was taken to the er and we were told it was from him pitching during a baseball game and the blood should vanish in a day or two, and it did. They also told me that alot of children don't stop bed wetting till their teens once all their organs mature fully. So all was well, until the bleeding came back. He is a very active child into sports and just an all around rough and tumble boy. I thought well the bleeding is just the same thing as before and it will go away. After three days and no change he went back to the doctor. He was referred to a urologist but we had to wait 2 months to see him. Before seeing the specialist we had to have an ultra sound of the bladder and kidneys, which we were told looked normal. The bed wetting continues and so does the blood in his urine (on and off). He has now seen the urologist twice. First visit the doc acted like it was just puberty, his prostate is growing in, that is what he thought. Just as a precaution he wanted to just get one more u/s to look at his bladder and kidneys again. So we waited 3 more weeks and went back to have the U/s. Now the doc says I really dont know what is wrong with him, his bladder should be between 350 and 400 ml and it is almost twice that at a whooping 781 ml. Now I feel scared and I do not know where to turn or what it do. This time we will be going back tomorrow so even though I am glad they are finally getting in gear I am affarid cause it could mean they really think it is something bad, or they wouldn't be hurrying. Tomorrow they will be putting a catheter in and filling him with dye to take a bunch of xrays of his bladder etc. (VCUG)
PLEASE if anyone knows anything about this or has any advice please post. I have tried to research with the info I have but not really turned up much. THANK YOU!
I can tell you from personal experience that a burst bladder is NOT something you want him to deal with! It's extreeeeeemely painful, so you need to throw any sort of tantrum you can to get this dealt with asap.
My hunch (only a hunch) is that there's a neurological reason for this. I bet his bladder and brain aren't sending the right signals, so his body doesn't realize it's time to go. I had to re-potty train myself after my bladder surgery. (Mine burst because of a hysterectomy... the cautorizing tool got a little too close to the wall of my bladder, weakening it, and causing it to burst 3 days post-surgery.) He may need a cathether for a while until his bladder shrinks back to the size it's supposed to be.
The blood is concerning. The urologist needs to look more closely at his kidneys. If you don't get an answer, keep seeing urologist after urologist until you do. Are they doing a CT scan or just ultrasounds? They really need to do a CT to figure out exactly what's going on.
I'm very sorry for all you're dealing with. I know it's not easy, but it'll be a lot easier to fix if the problem is found before the bladder actually bursts.
I hate to even mention this... but my only other thought is of sexual abuse. If he's not with you all the time, take a look at his friends, friends' parents, teachers, coaches, etc. to be absolutely sure nothing is going on. Has his behavior changed?
Thank you Bensmom. We went to the doc today,,,, appointment went very well. Turns out that everything is functioning properly. Doc says he just has a very large capacity bladder. But he sees nothing to be concerned with at this time. And the urologist said he is pretty confident that all the other "symptoms" (bed wetting, and bloody urine) are puberty and it is caused by his prostate growing in. Yahoo, I am one happy and very relieved Momma!!