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Plagiocephaly


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  • 1 Post By HeatherLopez

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  #1  
April 9th, 2013, 06:30 PM
HeatherLopez's Avatar Mega Super Mommy
Join Date: May 2009
Posts: 4,433
Hi everyone! I've been a member of justmommies for a while now. I just wanted to poke my head in here to share some info I learned about plagiocephaly. My nephew (now almost 3 years old) was diagnosed with this conditions when he was an infant. He ended up having to wear the corrective helmet, but everything is perfect now.

My best friend's daughter was recently diagnosed with it at 2 months old. I know she is really nervous and unsure right now, so I have taken it upon myself to do a little research.

The first place I started was with my sister in law, since she's been there. After talking to her, she told me about a company she used called BabyBegin. She had so many great things to say about them, and suggested I tell my best friend and anyone else I know about them, so I want to do that. I'm not trying to sell their business or anything like that, I just think they seem like a really awesome company that advocates for babies with this issue. Unlike a lot of other sites I found, they seem to be more prevention focused. Their website is www.babybegin.com. If you know anyone who might want to know more please let them know to visit the site. I know my friend felt lost until I mentioned that my sister and law had gone through the same thing, and that website has been a huge help.
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  #2  
April 9th, 2013, 08:53 PM
BensMom's Avatar Ephesians 4:29
Join Date: Apr 2005
Location: The Lonestar State
Posts: 50,214
My 7 year old was also born with plagiocephaly (along with a million other things), and was diagnosed in the O.R. during my c-section. We consulted several doctors, and all told us not to use any corrective helmets or bands until at LEAST the walking stage, because the muscles will naturally put the bones back in place through rolling and crawling. We were given intervention techniques to do at home, and he began physical therapy when he was just a few days old. His head was misshapen, his jaw was out of alignment, and his ears were in completely different places (one was significantly smaller than the other as well). The doctors were right. After the first year, the difference was unnoticeable to most people, and after 2 years, the difference was completely gone. He's still seeing the same therapists for all the other issues, but he hasn't had any treatment at all for plagiocephaly since he was 10 mos old.

I'm not saying you didn't list a good resource, of course. I'm just saying that plag is usually cosmetic and doesn't need any sort of device to correct it - especially in the first year. Most insurance companies don't cover helmets or bands, but they'll almost always cover physical therapy.


*edit*

I just briefly looked through the site you listed, and it seems that they also recommend therapy and home techniques rather than any type of corrective bracing. That's great!

Last edited by BensMom; April 9th, 2013 at 08:56 PM.
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  #3  
April 10th, 2013, 08:10 AM
HeatherLopez's Avatar Mega Super Mommy
Join Date: May 2009
Posts: 4,433
yep, from what my SIL said and from looking at the website, I think they are mostly about therapy and doing stretches and things like that to prevent the need for the helmet.
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