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Emmett Updates. (new update August 30th)


Forum: July, August & September 2012 Playroom

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  #1  
August 27th, 2012, 06:17 PM
2Reasons2Smile's Avatar Love my little family <3
Join Date: Mar 2008
Location: Canada
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I am from Shannon's jan 10 pr just so you know who I am.

Here is the newest update on fb from Shannon. Things are not looking up yet.

"Please keep praying for our son Emmett. We have run out of time to hope things resolve themselves. Something is definitely wrong and now we are doing more testing to find an answer. First up is a CT scan and he is on his way down for that right now.

I'm so worried. And I don't know which is worse, not having an answer or hearing what's wrong with my baby."


Please keep praying for Emmett and keeping Shannon, Ben and Lilly in your thoughts.


August 28th update:

Emmett update:

Did a swallow study this morning (drank barium under x ray to make sure food isn't going into his lungs) and he passed that. 8 out of 45 swallows had a little go the wrong way but they interpreted that as clinically insignificant.

His CT scan was abnormal. It's showing "crushed glass" in his lungs, worse on the right bottom but throughout all of both lungs. They're saying he has a nonspecific congenital interstitial lung disease. Basically something is wrong with his lungs and it's not specific and he was born with it.
...
So the two directions that points us in - one is it's a surfactant issue and they don't think that's likely, but it's a blood test so they're going to send off for it. That will take several weeks to come back. The other plan is do to a lung biopsy. They'll do surgery to take a sample of tissue from his lungs and because this is super rare, it will be sent to a woman in Colorado who specializes in this. Basically whatever ISD it is is named for how it looks under the scope. Treatment could mean more time, steroids, or who knows. It depends on the type and they follow other cases of people who've had it to see what the best treatment for that type would be. Results for this will also take weeks.

The plan moving forward is to keep him at 100% o2 and continue to wean flow. (he is currently at 1/16) and do another blood gas tomorrow to check his carbon dioxide levels. We are hoping after all of the diagnostic testing is done that we could bring him home on oxygen to be closely monitored while we await results.

They also mentioned a feeding tube since his respiratory rate is so fast they worry he may aspirate. But the doctor was kind of back and forth on if that's overkill or not since he passed his swallow study and has been nursing fine for the ten days since he's been born.

So that's that.

August 30th update some good news

He has been off the oxygen & flow since 3pm yesterday and is doing great. A couple of people have thrown around the magic words: "going home!"

Our main pulmonary doctor will be in to see us this afternoon. He sent Em's case to a specialist in Cincinnati yesterday and so we are hoping for lots of good news in a couple hours. Fingers crossed!
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Last edited by 2Reasons2Smile; August 30th, 2012 at 11:26 AM.
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  #2  
August 27th, 2012, 06:20 PM
Hopefulpinkangel's Avatar Mega Super Mommy
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Thank you for the update! Keeping Shannon and baby Emmett in my T&Ps!!
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  #3  
August 27th, 2012, 06:29 PM
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thinking and praying for them.....hopefully they get answers ASAP so that the correct treatment can follow.

the hospital they are at is fantastic.... my niece had several heart surgeries there as a child, my brother in law had a heart transplant there at age 16, and they just solved a major mystery for another friend of ours whose baby had a staph infection in her spine - so i have my fingers crossed they will figure out what is wrong with baby emmett soon!!
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  #4  
August 27th, 2012, 06:30 PM
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Oh no! I was hoping for a much different report . Still praying and hoping for the best for little Emmett. Lord, grant them peace!
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  #5  
August 27th, 2012, 07:15 PM
aubers68's Avatar Mega Super Mommy
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Many thoughts and prayers that things start to look up soon for them!
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  #6  
August 27th, 2012, 07:18 PM
Jessimaaka's Avatar Pink in a house of Blue
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Keeping their family in my thoughts. Hope they get answers soon and start taking action.
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  #7  
August 27th, 2012, 07:46 PM
Jenn1320's Avatar Mega Super Mommy
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Oh my, not what I expected to hear. Praying for them!
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  #8  
August 27th, 2012, 09:28 PM
K.A.T's Avatar Enjoying her Sticky Bun
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Oh man this isn't what I hoped to have read. I will keep them in my thoughts. Thanks for the update.
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  #9  
August 28th, 2012, 06:25 AM
MosaicWife's Avatar Missa
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Thanks for the update even if it is sad news. Shannon and family will be in my thoughts until they can bring baby Emmett home.
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  #10  
August 28th, 2012, 06:31 AM
Corrupt's Avatar Happy Mama
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Thinking of them and hoping things get resolved soon
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  #11  
August 28th, 2012, 06:39 AM
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Oh no! I am so sorry to hear this. I will be praying for them.
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  #12  
August 28th, 2012, 06:41 AM
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Oh no. Shannon, if you are reading this, my thoughts are with you.

(My apologies to everyone else, I'm stalking updates on her in your DDC.)
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  #13  
August 28th, 2012, 06:54 AM
magz88's Avatar First Time Mum
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You are all in my thoughts.
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  #14  
August 28th, 2012, 08:36 AM
Mom to Madeline
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Thoughts and prayers for Emmett and Shannon.
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  #15  
August 28th, 2012, 10:49 AM
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Praying for baby Emmett, Shannon and her family. I can't imagine how hard it is not having answers and watching your baby struggle. I hope they have answers soon.
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  #16  
August 28th, 2012, 01:39 PM
magz88's Avatar First Time Mum
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My heart goes out to you Shannon and family.
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  #17  
August 28th, 2012, 01:56 PM
irunpink's Avatar Sophie
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Poor thing. Praying for the best.
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  #18  
August 28th, 2012, 01:57 PM
Hopefulpinkangel's Avatar Mega Super Mommy
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Continuing to pray for them!
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  #19  
August 28th, 2012, 03:12 PM
Jenn1320's Avatar Mega Super Mommy
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Continuing to pray!
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  #20  
August 28th, 2012, 03:34 PM
Mom2JDub's Avatar (formerly junie22)
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Thinking of you all, Shannon, and hoping for the best.
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