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Sorry I haven't updated much. In a nutshell we have switched hospitals and MGH has without a doubt saved my sons life. I always plan to update and then in a blink it's 8pm and I'm wrecked. We are making huge improvements! We went from signing paperwork for organ donation to having J pooing on his own and gaining weight (things he hasn't done since birth!) For once we can look forward to tomorrow!!! A GIGANTIC thank you to everyone who has prayed for us and supported us on this journey <3 Here is some spam <3