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Hemangioma update (x posted to FB)


Forum: October 2012 Playroom

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  • 1 Post By Pageturner
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  #1  
May 19th, 2013, 05:00 AM
Pageturner
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It's been a while since I have mentioned anything about it, but I wanted to update you about the hemangioma on his eyelid. We ended up going to the cardiologist and she put him on beta blockers. We started with a very low dose and gradually increased, and went for a visit to the Dr. every week for a few weeks to monitor his blood pressure (beta blockers are a blood pressure medication which could possibly slow a baby's heart rate, but are also very efficient at shrinking hemangiomas, for whatever reason). Before starting the medication he had an EKG and everything looked great for him to be a candidate for the medicine. His blood pressure remained normal on the medication and the hemangioma has been shrinking a lot! It is still there, but it is MUCH smaller. He will probably be on the medicine until at least 1 year of age...we have another appt with the cardiologist in August to check up.

We visited the Ophthalmologist last week, and I'm not a huge fan of her. She said it doesn't look like there has been any change in size...which she said is good, but she's insane, because every other doctor I've seen, as well as family and friends, see him and say "Wow look how much smaller it's gotten!" I have not been a fan of this ophthalmologist since Day 1, and thankfully she retired so i'll be finding a new one, hopefully more competent. Anyways, she did say there is still a little bit more nerve pressure on that eye than the other one, so we are going to follow up with another doctor and just keep monitoring it. DH needs glasses, so it may just be that his eyesight won't be perfect...but since the hemangioma is shrinking I don't think that's going to continue to be a problem.

Anyways, just wanted to update you!
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  #2  
May 19th, 2013, 09:43 AM
LoverlyJules's Avatar Mega Super Mommy
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Glad Michael is doing well.
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  #3  
May 19th, 2013, 10:50 AM
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So glad that the meds are working! Thanks for updating!
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  #4  
May 19th, 2013, 01:45 PM
jlstebbins's Avatar *Super*Mega*Mommy*
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That sounds like great news!! Glad all is going well!
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  #5  
May 19th, 2013, 07:49 PM
bostoncreampie's Avatar Platinum Supermommy
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Sounds great! He is such a doll. Do you think it will take until he is a year old before it's totally gone? I'm glad it doesn't bother him too much.
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  #6  
May 20th, 2013, 03:27 AM
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Kristen, I think so. He's 7 months now, and it's still fairly big, even though it's shrunk...so I think it will take at least that long, unfortunately.
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  #7  
May 20th, 2013, 04:49 AM
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Yay, for the good report. I pray it all shrinks to nothing soon.
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