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I am so happy to hear she is growing and doing well! I have been praying for you and your family. I will keep praying that she gets taken off the vent by Halloween. Thanks for sharing your story with us and reminding us all how grateful we should be of the little things in life. You are a strong person.
Sam and I came up the hospital to see Allianna today. She had a really bad night and is a little better now, but still having problems. They took her off the ventilator Sunday evening and off the fentinal. She did very well off of them, til about 3am this morning, when she stopped breathing. They had to give her CPR because she was unresponsive. They had to intivate her for a little while, til she was stable. She is on the ventilator now, but through her nose, not a breathing tube down her throat. Her heart rate has been unstable since last night, but is more stable now than it has been. She is also having problems keeping her oxygen levels up. She is getting a blood transfusion right now, so will be off feedings til tomorrow. Since she's off fentanol she is wide awake and totally aware. She is very upset today and just keeps crying. It tears me up because all I want to do I'd hold her and make it better and I can't. I held her little hand for about 2 minutes and she had calmed right down, but I had to let go before she started getting cold. She got so upset when I let go. I started tearing up. She really needs everybody's prayers right now!
I must have missed that update, sorry. I'm sorry to hear she was not doing so well. It breaks your heart to see them cry at any age but with her being so tiny I bet it's even worse. I hope that she's doing better and will watch for the next update.
Wife of 18 years to Anthony
Mommy to 4 daughters Elinore 05/27/95,
Phoenix 12/14/01, Pascale 06/03/05
& baby Wren on 12/10/12