[stephie1012]

we are going to see the psychologist today at 3...im nervous im not sure what to expect hopefully we can get some answers or something..we got a sitter for cj i think its better for just us to take her alone...we have to bring toys with us so i assume hes going to watch her play idk
wish us luck!
will update later

[AmyT]

Good luck...Let us know what all they say!

[Jami&Marshall]

Good luck! I hope it goes well.

[pautumnsun]

I hope all goes well today. I am praying that you get answere to what's going on for Ky and what will work to help her. Do you only have one evaluation or are there going to be several? Aidan had a one day eval that lasted 3 1/2 hours. Sadly, I had to wait for the results. It only took a week but it was a long week. I hope they give you at least some indication of what it may or may not be. I will be thinking about you and I hope to hear some good news.

[Bakerybrat]

Good luck Steph. Please come back with some updates. Wishing Ky the best!!!

[Lisa N]

good luck. i'll be thinking of you guys. let us know!

[cindymat]

Good luck!! Thinking of you!

[stephie1012]

sorry i didnt update sooner.......so he said theres def something going on....all he really said was that her brain is wired diff then ours is..he said we are doing good handleing her with our techniques and he recomends when shes having her fits bc something is bothering her just let her go to her room and do it (she alms down alot when in her room) i thought he was going to do an eval but he didnt he just observed her and talked to us/.....i need to call the school district tomorrow to get them to test her...he doesnt think its a good idea for her to go to a reg preschool so we need to pull her out (she doenst start till sept)...he said whatever is going on isnt severe tho is mild...but he wouldnt come out and say so not much of an update but its something
im sad for her.....we drove past the school she was supposed to go to and she said yay look mommy my school and i had to tell her thats not her school anymore she was super sad about...idk what to do our town doesnt have a good special ed program
ughhh its so frustrating but at least we can start getting help

[lilangel91284]

sorry i didnt update sooner.......so he said theres def something going on....all he really said was that her brain is wired diff then ours is..he said we are doing good handleing her with our techniques and he recomends when shes having her fits bc something is bothering her just let her go to her room and do it (she alms down alot when in her room) i thought he was going to do an eval but he didnt he just observed her and talked to us/.....i need to call the school district tomorrow to get them to test her...he doesnt think its a good idea for her to go to a reg preschool so we need to pull her out (she doenst start till sept)...he said whatever is going on isnt severe tho is mild...but he wouldnt come out and say so not much of an update but its something
im sad for her.....we drove past the school she was supposed to go to and she said yay look mommy my school and i had to tell her thats not her school anymore she was super sad about...idk what to do our town doesnt have a good special ed program
ughhh its so frustrating but at least we can start getting help[/b]

I would call the school she was going to go to. Tell them what is going on and I bet they can give you a lot of recommendations to places.

[glasscandie]

Is there an Early Intervention program in NJ? It's state-run, we had it for Jules when we lived in CA, TX, and now here in MD. They have a 3 year old pre-school program with different areas of specialty. You should try to look it up. ((hugs))

The website for the one in Jersey:

http://www.state.nj.us/health/fhs/eis/index.shtml

[Lisa N]

at least you are getting some answers. i'm sure you'll get it all figured out. good for you for trusting your mommy instincts, that's sure to make a difference

[stephie1012]

thanks girls...the schooll she was going to is a private run so im not sure if they can help....thanks for the link courtney i forgot about that!

[pautumnsun]

Hmm, Why did the Dr say set up evaluation at school. I am new to this but I dont think I would settle for that. I would have a developmental evaluation at a hospital and this is why. Children diagnosed with special needs have a difficult time getting their individual needs met. If you have documentation from a clinic specifying her needs you as parents will get a clear understanding of her needs and you have ammo if the school system doesnt comply with the drs recommandations. The doctor told me that I am going to have to fight to get Aidan the care he needs. A friend of mine has a son that has been diagnosed with PDD-NOS and she is fighting the school system because they are not giving him what he needs. I wont settle until he is giving the treatment that the doctor recommend. I also like the idea that I will have 2 seperate evaluations to compare and contrast. He wont be having a school evaluation until the fall. I dont know if it is possible for you to get an evaluation at a clinic before school begins because these evaluations take a while to get at least it did for me. I am so glad you saught help and I hope your holding up ok. I remember wanting so desperately to believe there was nothing wrong but knowing something was. You dont want your child to stuggle. It is painful but it is also comforting to know that it wasnt all in your head and that there is help available. Take care.

[~Casey~]

I'm so glad she is getting help. That is the best thing so I hear.I have a friend whose son has dwarfism and she posted this on Myspace. She sisn't write it, but I think it is aso neat and can apply to lots of situations.

Welcome to Holland
Category: Life


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

[Frelle]

i wonder why he didnt evaluate her, and why he was so vague and offputting to you. I agree with the other girls that you should have EI evaluate her, and you should seek an independent evaluation with an OT or similar as well.

When Grace's myelination fell off the charts (the white matter in your brain is myelin, and she has the myelination of your average 2 1/2 yr old), I had to call all over and try to find someone to get her evaluated. Her neurologist wasnt that concerned, but it was clear that someone who was missing so much white matter was going to have delays somewhere, we just didnt know where. Turns out she was 3 yrs behind in her physical therapy tested gross motor skills, and smiliarly delayed in her fine motor and motor planning skils when the OT evaluated her. We had no idea she was delayed at all.

I dont know what places you have in town or around you for testing or therapy, but give them all a call and tell them what vague answers you got yesterday and see if they can set up a time to meet with you. Without knowing your daughter, I couldnt tell you whether or not she ought to be at her regular preschool.. and Im surprised that the person evaulating her would say that she shouldnt be there without you having some sort of diagnosis that would prevent it. Can she not go to regular preschool and then go to OT or something at another time? That just seems odd to me. I am thinking about you!

[stephie1012]

i was really surprised the way he was to...he told us he doesnt test kids just helps out the families by talking and stuff idk im hoping cj will nap soon so i can call ei
thanks for that casey i needed to read that...im so lost i dont even know how to go about gettig her tested at a clinic or hospital...our pedi is no help he sent us to the psychologist.....im really upset about this whole school thing the special preschool in our town is for kids who are severly handicapped.ky is very smart and i dont want her to miss out i dont know what to do

[cindymat]

since you dont have any definitive answers-what is the worst thing that could happen from sending her to preschool anyway? Maybe they tell you they cant meet her needs, you'd be in the same place you are now. Maybe you could try????

[Frelle]

i agree with cindy, to go ahead and send her.

[pautumnsun]

I agree with Cindy. I would send her to the school until you get a diagnosis.

[glasscandie]

Ditto that. And if the school doesn't think she should be there, you'd think it'd be their responsibility to assess her and see where else she should be, kwim?