[**Mary**]

Well I don't know if ya'll remember its been a while since I heard anything about this and can't find the other post but anyways....I told ya'll that the little boy was supposed to get tested for the stuff that the little girl had and they said that he has goy it too this is so sad ya'll they are gonna lose both of there kids and on top of all this the parents are seprating because they don't wanna be together.....and they also found out that the Little Girl has only 6 more months or less to live and my Father in law said today that it is getting closer she could go completely blind before she passes away this is all so terriably sad and the family is going through a hard time right now I just feel so bad for the parents and what they are going through they are about to lose one of there kids and then like a yr later they may be losing the other one I mean I don't see how anything can hurt these Little ones..but it is a birth thing that has been with them since birth and they said its Very Rare but its scary.

[Maddux05]

Oh no, I'm so sorry to hear about this. I'll be praying for a miracle the family. It must be difficult for everyone to deal with. I'm sorry

[**Mary**]

Thank you and yeah it is very hard for all us to deal with this it is way to sad and very scary.

[Melissa_A]

I'm so sorry to hear about this. What is the disease they have, do you kow what it is called? Will the children have pain? That is so sad.

[Kierasmom]

That is sad. I'm so sorry.

[Natalies_Momma]

OMG!! - this is awful! I'm so sorry to hear all this! I'm most definitely going to keep them in my prayers, How sad.

[Heather1628]

That is so horrible, those poor parents and kids. What do they have Mary. So is the mother a carrier or the father? They are in my thoughts

[**Mary**]

My Mother in law told me what it was but it is a really long word and I don't remember what it was but it is a Birth defect...it runs in you at birth and shows up later on in life and it usually shows quick when you hit one years old....and then it starts taking effect but your Baby will never learn how to walk or talk..The Little girl can only say momma and eat and she calls her daddy momma its so sad she can't say nothing else she used to and she stopped learning her brain cells are going so fast its so sad to hear about this and I have been mopping around ever since I heard about it...I just wish there was something I could do....and the little boy he is one he turned one in Nov last yr and he never learned how to walk or crawl he crawled for a little while and then he just stopped...The girl learned how to walk but she doesn't walk good she falls down a lot and she gets all kinds of brusies a lot when I see her I feel so sorry for her....They put her through special classes to start with and she just got weaker and weaker so when they did the test she had this stuff and now they can't help her.

[Stephanee]

oh my gosh that is so sad to hear.. i am so sorry... i just want to give them big hugs and make everything ok. i couldn't imagine... ive never heard of anything like this before! my prayers go to them!

[babyblue]

It sort of sounds like something I remember hearing on the news about a child here locally.

I am so sorry for you and your family. How devastating that both of them have it!! That just seems so unfair and cruel. I cannot imagine what you all are dealing with. My heart goes out to all of you. It really makes me sad to hear this.

That is so sad... my heart goes out to the family and yours as well...

[Amandalulu]

I do remember your post from before.
This is so sad, my thoughts are with you and your family.

[Colee]

I am so sad to read this I feel sooo bad for those poor babies!!!! And their parents...omg,they are in my thoughts and prayers....I can only imagine how scary it must be for you and your husband as well...being that it sounds genetic....

[Juliee8]

I can't even begin to imagine going thru that with 1 child let alone 2 children. They will all be in my thoughts and prayers.