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Sooooo Frustrated!


Forum: 2008 Playroom

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  #1  
June 18th, 2009, 02:27 PM
luvmykids623's Avatar Platinum Supermommy
Join Date: Feb 2008
Location: New Jersey
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Maryella has had a fever between 102.7 and 104.1 for the last 4 days. I took her to the ped yesterday because she was really not herself. Her ped saw this and sent us to the ER. We spent over 5 hours there last night, and still have no answers. She has a rash that keeps popping up when the fever gets real high, and she has lesions on her throat. They tested for strep, and the rapid test came back negative. Her ped wanted them to get a urine culture and they didn't. She also wanted IV fluids and they didn't do that either. They gave her this stuff they called "magic mouthwash" - benadryl and malox to coat her throat so she'd drink more. She drank 4.5 ounces from 2pm to 9pm and the second dr we had at the 7pm shift change thought this was "good." For a kid that drinks a bottle every 3 hours religiously from the day she was born, that's not good! The second dr was such a moron. He did nothing that the first one planned to do. Her discharge papers say it's hand, foot, and mouth. It can't be. 6 doctors looked at her hands and feet yesterday, and that is the only place she didn't have a rash. When I asked the nurse if the doctor put that just so he didn't have to admit that he didn't know which virus she had, she said yes. I completely understand that it's harder to identify viruses than bacterial infections, and I'm fine with that, but don't tell me it's something (especially something she clearly doesn't have) just so you don't have to admit you don't know what it is! I was livid, but just wanted to get her home to bed. Which really didn't matter, because she didn't sleep most of the night. Her peds office called this morning to see how everything went, and when I gave them the run-down of the visit, they were pissed. I am so completely exhausted and frustrated at this point. They're almost positive that it's viral, so there really isn't much they can do. If she doesn't show improvement by tomorrow she has to go back to the ped and then they'll send her to a different hospital. Her temp is a bit lower today, but she won't drink. She's had 4oz of fluid all day today, and one wet diaper. The diaper wasn't even that wet. I changed it more because she was in it for a while than because it was wet. I've offered milk, water, pedialyte, and popsicles in hopes of keeping her hydrated, and she refuses it all. I'm watching her like a hawk, but I feel so helpless. I just hope that this goes away, because I really don't want her to have to go through any more poking and prodding, and I hate seeing her this miserable and lethargic. If you got this far, thanks for listening to my vent!
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Last edited by luvmykids623; June 18th, 2009 at 02:31 PM.
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  #2  
June 18th, 2009, 02:39 PM
::er!ca::'s Avatar Platinum Supermommy
Join Date: Jul 2006
Location: USA
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I'm so sorry I know where you are right now... it was terrible when Izzie was sick a few months ago and they put her in the hospital. I hope she gets feeling better, but if she does have to go back to a hospital remember that they will make her better!! Especially if they can give her some IV fluids. Izzie changed so much from getting those fluids, it was wonderful!

Definitely not something you want your little one to be going through though. Keep me updated

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  #3  
June 18th, 2009, 02:46 PM
mothra's Avatar Martha
Join Date: Nov 2007
Location: Massachusetts
Posts: 4,906
that's so awful!! are they sure it isn't scarlet fever? when i was a kid i had strep throat that turned into scarlet fever, and i had the rash and fever and all that jazz. either way, i hope the poor little one is feeling better real soon and that you find some answers soon!!
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  #4  
June 18th, 2009, 03:28 PM
~Allison~'s Avatar Platinum Supermommy
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Location: Illinois
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((Hugs)) I hope she starts feeling better soon.
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  #5  
June 18th, 2009, 05:48 PM
Mega Super Mommy
Join Date: Aug 2008
Location: South Jersey
Posts: 3,373
(((HUGS))) to you mommy and Maryella! Why don't you just go to CHOP ER if she is not better. Where did you go? We also have had great care at Virtua Voorhees ER, they have an pediatric ER. I hope she gets better and that they can identify what she has. That is what happened to Luke and they finally nasal swabed him and it came back as parainfluenza. Keep us posted, keeping her in my t & ps'!
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  #6  
June 18th, 2009, 07:46 PM
babybuckeyein2008's Avatar Platinum Supermommy
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((hugs)) I hope she is feeling better soon!! KUP!!
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  #7  
June 19th, 2009, 06:45 AM
luvmykids623's Avatar Platinum Supermommy
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Location: New Jersey
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Quote:
Originally Posted by MaMaLuke View Post
(((HUGS))) to you mommy and Maryella! Why don't you just go to CHOP ER if she is not better. Where did you go? We also have had great care at Virtua Voorhees ER, they have an pediatric ER. I hope she gets better and that they can identify what she has. That is what happened to Luke and they finally nasal swabed him and it came back as parainfluenza. Keep us posted, keeping her in my t & ps'!
I was stupid and went to Kennedy Washington Twp, because they were the closest hospital with peds in the ER. I knew better, but still went there anyway, because she really had me worried and I wanted her seen as quickly as possible. I'm so annoyed with that decision. If we wind up having to go back, I'm going a little further to either CHOP or DuPont. Yesterday she had a total of 10 oz of fluid and 2 wet diapers. The fever is lower, but I can't get her to drink or even eat enough of a popsicle to make me feel like she's getting enough. Today's events will determine whether she goes back or not. I'm praying she wakes up, the fever's down, and she sucks down everything I give her.
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