Log In Sign Up

Absolute last straw with our pediatrician. *Updated post 14


Forum: 2009 Playroom

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To 2009 Playroom LinkBack Topic Tools Search this Topic Display Modes
  #1  
February 23rd, 2010, 08:00 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
I should have switched pedi's a LONG time ago. I haven't been pleased with how we've been treated since Parker was born (though i LOVED them when Holden was a baby).. and yesterday was the last straw.
After four weeks of force feeding, we FINALLY got ahold of our nurse. They haven't even bothered returning any of our calls and continue to claim they're "just too busy"-- although i'd think a baby who has lost a pound & a half and still can't eat on his own would be a HUGE concern.. nope, not to them.
We told them what we're still going through and ALL they said was "oh, at least you're getting nutrition into him!".. no concern.. no wanting to bring him in to figure out what the hell is going on. Just told us to "make goals" for every day.. or "try longer in between feedings"
Seriously?? It does not matter HOW long Parker waits between a bottle. It can be over 3 hours and he will still only eat an ounce and refuse. If I didn't force feed him, he would dehydrate and need to be hospitalized. He only ate TWO bottles on his own today (and he eats 7 bottles a day because we have to feed him so frequently to sustain his weight).

Once I heard that, I was DONE. Him not eating for so long, even when he's so obviously NOT sick anymore should send up red flags. And it does to EVERYONE but them.
I decided we are never going back there again. NEVER. My baby deserves better. He doesn't deserve to struggle so much and for so long because they are SO hung up on cystic fibrosis testing with no basis for it, that they're willing to let him suffer for another MONTH just to rule it out and move on. That's not ok.

So I took a friend's advice (and researched the practice/doctor she suggested online) and we called her practice and told them what's going on. INSTANTLY they were shocked that we're having to literally DROPPER FEED Parker almost every single bottle. So we have an appointment tomorrow, and the doctor wants to spend a LONG time with us finding out exactly what's going on.
I feel relieved that someone finally cares who is a medical professional.. but i'm still worried that just like with the SEVEN other doctors we've seen.. it will just get written off again. As recovering from RSV, as teething.. or even more insisting on CF testing with no factual bases for it (I have done an overwhelming amount of research, HOURS of research, and he doesn't match any of the symptoms at all).
I don't know what i'll do if that happens.. i'm just hoping it doesn't
I honest to God don't know how much more I can take. or how much more Parker can take. The more I force feed him, the less he tolerates it. He knows it's coming and spits it back out instead of swallowing. He HAS to be hysterical to take any at all.. and that is so traumatizing I can't even tell you.

Cross your fingers for us that this doctor actually CARES and realizes there is something WRONG with Parker and it is NOT CF. It's his stomach, it's SOMETHING causing him not to eat, not to even WANT to eat.

ugh. just so frustrated I'm so ready for this to be OVER. I want my normal piggy baby back
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!


Last edited by fishysticks; February 24th, 2010 at 01:45 PM.
Reply With Quote
  #2  
February 23rd, 2010, 08:18 PM
~Paula~'s Avatar Platinum Supermommy
Join Date: Sep 2006
Location: Ohio
Posts: 27,123
I hope you finally get some answers. KUP
__________________



Reply With Quote
  #3  
February 23rd, 2010, 08:55 PM
Platinum Supermommy
Join Date: Jan 2005
Location: New Haven, CT
Posts: 53,701
Send a message via AIM to MommaDucks Send a message via Yahoo to MommaDucks
this post really just tugs at my heart. I am so sorry things are so difficult right now and your current pedi sucks so much. I really hope this new one is your knight in shining armor and takes great care with your sweet baby boy
__________________

Nicole: Tom's Wife [5.7.05]; Mommy of Thomas [9.6.05], Collin [1.17.08], & Bailey [10.2.09]
Reply With Quote
  #4  
February 23rd, 2010, 08:57 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
thanks ladies. I really hope the new doctor comes through. I've just lost SO much faith in doctors at this point that I don't have much optimism left. I hope I get proved WAY wrong tomorrow. We'll see
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #5  
February 23rd, 2010, 09:39 PM
*Hayley*
Guest
Posts: n/a
I REALLY hope you get somewhere constructive at the appt. Please let us know how things go.
Reply With Quote
  #6  
February 23rd, 2010, 10:36 PM
SusieQ2's Avatar Jersey Girl
Join Date: Dec 2006
Location: New Jersey
Posts: 39,051
I hope this Dr actually listens and gives you some real answers.
__________________





Reply With Quote
  #7  
February 24th, 2010, 06:37 AM
Adriana's Mommy's Avatar I <3 my kids
Join Date: Jul 2007
Location: Inland Northwest
Posts: 7,977
Hang in there..

I'm going through something similar.. It's vary hard to see your baby suffer.. I pray you get answers soon..

Just remember to keep pushing and ask lots of questions.. Maybe ask if you can get referred to a different specialist..

Good luck!
__________________








Reply With Quote
  #8  
February 24th, 2010, 08:32 AM
~Paula~'s Avatar Platinum Supermommy
Join Date: Sep 2006
Location: Ohio
Posts: 27,123
What time is your appt? Thinking of you today!
__________________



Reply With Quote
  #9  
February 24th, 2010, 09:29 AM
Platinum Supermommy
Join Date: Apr 2008
Location: Sitka
Posts: 8,182
Send a message via Yahoo to natty
how did it go??
__________________




Reply With Quote
  #10  
February 24th, 2010, 09:48 AM
wildflower_142's Avatar Mega Super Mommy
Join Date: Sep 2008
Location: Ohio
Posts: 4,137
Send a message via AIM to wildflower_142 Send a message via Yahoo to wildflower_142
Good for you, i'd have found another doctor to. It sounds like your old doctor was just to busy to take your concerns seriously. I went though the same thing with our old pediatrician. I had suspicions that my daughter madisyn was autistic. They refused to help me get her tested, and actually told me even if she was autistic there was nothing they could do for her, so why get tested. We switched doctors, she was tested, and was found to be mildly autistic (just like i thought). I love our new doctor, i hope you like your new one too.
__________________
Chris mom to 4 girls: Ashleigh, Madisyn, Emely, & Cathryn


Reply With Quote
  #11  
February 24th, 2010, 10:12 AM
mommy2Breana+Brandon's Avatar Platinum Supermommy
Join Date: Dec 2006
Location: PA
Posts: 39,401
I totally don't blame you for switching you would think they would care.

Good luck today with your new one
__________________

Do you love food, entertaining, cooking?!?! Then you will LOVE Tastefully Simple. www.tastefullysimple.com/web/cpisch

Reply With Quote
  #12  
February 24th, 2010, 10:20 AM
*Jennifer*'s Avatar Platinum Supermommy
Join Date: Oct 2008
Location: California
Posts: 5,500
(((HUGS))) I'm so sorry you're dealing with this. Good for you for switching to another pediatrician.
__________________
Reply With Quote
  #14  
February 24th, 2010, 01:44 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
Well, doctor #8 and the answers were exactly the same.
Just keep doing what we're doing and EVENTUALLY she's pretty sure he'll get his appetite back.
Thanks to my hard work he's gone from 13lbs2oz to 14lbs6oz (before getting sick he was 14lbs10oz).. but seriously- no one cares that we've been force feeding for 4 weeks.
And even though Parker had a CF screening when he was born- she STILL wants him to get the sweat test done "to rule it out" before she'll send him to a GI specialist to figure out if it's something else because she can't think of any GI problem that would cause him to just not be hungry.
I know for sure it is not reflux. He doesn't pull off of the bottle crying.. he just stops eating like he's full very early into the bottle and gets mad if I try to keep feeding him. not the same.

she checked his breathing, no rattling.. his BPM is back to normal, no temp.. no congestion. Nothing. He is perfect. She didn't even think the little bit he's still sucking in from his ribs was abnormal..
so.. then how is the force feeding ok??

If it weren't for the fact that when I got home and he gulped down 5oz.. i'd be INFURIATED right now. I'm mad.. just not the level I would be had he refused that last bottle. Though i'm not getting my hopes up the next bottle will go just as good.

Honestly- his ONLY symptom at this point is lack of appetite. He can go 3 hrs after eating only 3 oz at the previous bottle and eat an ounce and pull away. He wakes up in the morning and i'm LUCKY if he'll eat 3 ounces by himself. Before he got sick, almost 2 months ago, he was eating 5.25 every bottle, without any trouble.. sometimes more.
His poops are normal, although he's pooping a little more than usual.. and he's a little gassy. Other than that, NOTHING out of the ordinary.

It's clearly not cystic fibrosis. The test would make sense if he were eating normal amounts and not gaining weight along with the breathing problems he had (which were due to RSV).. but when I CAN get food in him, obviously he gains weight perfectly.. so it's just a HUGE waste of time , an UNHEALTHY waste of time to sit here and wait a month and possibly have to keep force feeding him for that long when it's clearly something else. If the appointment were in a few days i'd have no objection, but to make us wait a MONTH before even considering something else? that's not ok.
We have an insurance plan that allows us to see specialists without being referred so i'm tempted to just call a GI specialist and bypass these morons.
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #16  
February 24th, 2010, 02:12 PM
** Tay **'s Avatar Mega Super Mommy
Join Date: Feb 2009
Posts: 2,148
Ugh, what a pain for you.... I agree .... Skip the Peds, go straight to the GI
__________________




Reply With Quote
  #17  
February 24th, 2010, 02:13 PM
SusieQ2's Avatar Jersey Girl
Join Date: Dec 2006
Location: New Jersey
Posts: 39,051
I'm sorry you didn't get any good answers. I hope that he just starts eating better so you won't have to worry about it any more.
__________________





Reply With Quote
  #18  
February 24th, 2010, 03:05 PM
Mama2EZ's Avatar Super Mommy
Join Date: Jun 2009
Location: Oregon
Posts: 701
I'm sorry you have to go through this. I have been thinking alot about you these last few days. I have some really lame ideas that you have probably alrady tried, so I just don't know what to say.

I am wondering if you have considered taking him to an alternative medicine doctor. I know insurance probably doesn't cover it, but they probably have herbs that will increase appetite. I have a good friend who was being told that she should take her 15 month old to the eating therapy clinic, because she didn't really have an appetite. She is vegan and was afraid they would tell her to start feeding babes dairy or meat. So, she went the aternative route instead. She was nursing and began taking alfalfa supplements. Her daughter's appetite increased so much and it wasn't so much of a struggle anymore. She still has issues and my friend calls them hunger strikes. But in the long run the alternative gave them something. It might be worth a try.

I believe in both conventional and alternative medicine. I think the two go hand in hand. I am a firm believer in Hylands products. If the conventional docs aren't listening then maybe it is not a conventional problem. :shrug:
__________________
Ezra Ray 7lb. 7oz. born at 4:20

Reply With Quote
  #19  
February 24th, 2010, 03:14 PM
~Paula~'s Avatar Platinum Supermommy
Join Date: Sep 2006
Location: Ohio
Posts: 27,123
Wow, I don't even know what to say. I hope he just starts eating.
__________________



Reply With Quote
  #20  
February 24th, 2010, 03:34 PM
Mega Super Mommy
Join Date: Aug 2006
Posts: 3,546
Hugs! I just wanted to chime in and say Claire went through something similar for about a month with the eating thing.

She was eating 4-5 oz a feeding every 2.5-3 hours and then all off a sudden in Jan. she started eating 2-2.5 oz and refusing any more. She also didn't seem hungry after 3 or 4 hours. I just kept feeding her every 3ish hours anyways. She would cry if tried to give her more, too. I took her to the peds and ruled out reflux and just hung in there. All of a sudden this week she has been eating 4-6 oz a feeding and back to "normal". The ped wasn't concerned b/c she was still gaining and said she may just be in a slower growth period right now. That was a week ago and I'm thinking she may have been right.

It did help sometimes to feed her in her room and away from any distractions. We noticed she always ate better at night when it was quiet.

Good luck and I hope you get some answers!
__________________
Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 09:53 AM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0