Log In Sign Up

back to square 1 (xposted)


Forum: 2009 Playroom

Notices

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to boards@justmommies.com.

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To 2009 Playroom LinkBack Topic Tools Search this Topic Display Modes
  #1  
February 26th, 2010, 09:31 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
I want to apologize if i'm taking frustration out on anyone- i'm just so upset that maybe I need to vent some more or need some coddling/support.. i'm so sick of being told what to do when i've done it all already and not being listened to.

I really feel on the verge of SNAPPING. Parker finally seemed to be making some improvement. The past few days he was eating 4oz a bottle on his own with hardly any issues.. it finally seemed that maybe the doctors were right and it was just time he needed to get his appetite back..

And then today. I force fed him EVERY bottle. He would only eat 1.5oz on his own, regardless of how long he went between each bottle. He hasn't been this bad in weeks. It is SO frustrating because it just doesn't make any logical sense.

If his stomach is just smaller and it needs time to stretch, how did he manage a 6oz bottle with no problem before bed? If he's supposed to be having steady improvement, how did he revert back to the very beginning today?
Why is his poop 99% snot?
He isn't coughing, there's no congestion.. his breathing is back to a normal rate (though he's still sucking in a little under his ribs but maybe that's just normal because the new doctor didn't say there was ANYTHING abnormal about it), no fever..
He is teething, but other than chewing everything it doesn't really effect him that much.

I just don't understand WHAT is wrong. And we've seen NINE doctors and none really seem the slightest bit concerned that after 4 weeks, i'm still force feeding him the majority of his bottles. How do they not care? I don't care if he's gaining weight- he's only gaining weight because I FORCE him to eat. He shouldn't still be refusing.

I know i'm doing everything I can but I feel helpless. And I feel terrible because when I force feed him, he HAS to be crying or he won't swallow anything. Which means I have to MAKE him cry. It is not only traumatizing for him, but for me and for Holden who is feeling neglected obviously because he is lashing out by crapping his pants.

I don't know what to do anymore. I don't know if I can do this anymore. I feel at my breaking point. It's been SO long and SO much stress, it isn't fair. I cry every single day because Parker isn't getting better and no one will listen, they just keep concentrating on crap that isn't going to give us any answers and not listening to ME, and I am his MOTHER and I know BEST.

I want to go over the doctors heads and go to a GI specialist, but I fear it will come back with no answers just like everything else- and with all the money we've spent already (about $500) on dead ends and pointless appointments, we can't afford another dead end.

what would you do?? people keep saying to stop forcing him.. but they don't get it. If I STOP, he will (and I hate to say this but it's true) die. Literally. He will dehydrate and end up in the hospital.. why would I LET that happen to him?? To get attention?? I can't do that. As much as he deserves a doctor to pay attention, he doesn't deserve to be in a hospital in an unfamiliar setting hooked up to tubes. I can't do that to him.

but I can't let this continue. For me.. for Holden.. and especially for Parker


__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #3  
February 26th, 2010, 09:58 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
EXACTLY!!! I keep thinking how House (or at least one in his team) would figure this crap out!!! gaahhhhh all 9 doctors i've seen are worthless
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #4  
February 26th, 2010, 09:59 PM
~Paula~'s Avatar Platinum Supermommy
Join Date: Sep 2006
Location: Ohio
Posts: 27,123
I don't know either, I have no idea what I'd do after 9 Dr's. I do hope he either just starts eating or the Dr (s) gets their head out of their arse!
__________________



Reply With Quote
  #5  
February 26th, 2010, 10:02 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
seriously! NINE!!! you'd think ONE would care that we've been force feeding for over a month with no real improvement.
and now the poopin straight boogers. Is it really just a coincidence with his teething.. or related?? could he have DEVELOPED a milk allergy at almost 5 months?
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #6  
February 26th, 2010, 10:26 PM
MrsSteele's Avatar Mega Super Mommy
Join Date: Nov 2008
Location: York, PA
Posts: 1,637
Send a message via AIM to MrsSteele Send a message via Yahoo to MrsSteele
I have no idea what is wrong, but I feel for you and your family..this just sucks! I know you have mentioned that you won't feed him soy..is there any other alternatives of formula that aren't milk based? Maybe you can try that?? I would go to a GI specialist, whatever it takes...you are absolutely right, he doesn't deserve to end up in the hospital. If you don't force it, how long does he go without a bottle? This is so bizaare and wish I could help...let me know if there is anything I can do (I know not much, but wanted to put it out there)
__________________
*People who mind don't matter, and people who matter don't mind.*
Reply With Quote
  #8  
February 26th, 2010, 10:34 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
He's not constipated at all. he's actually pooping MORE than he used to. Before he got sick he was a once a day pooper. When he got super sick it was 3+ and slightly mucusy. Then he got better and he was still pooping about 3 times a day but less mucus. Now it's ALL mucus and 3+ times a day. And gassy.

If I let him, he could probably go 4+ hours without eating or ever getting hungry and STILL only eat 1.5 ounces and then stop. It just doesn't seem to matter. Sometimes he can go two hours and gulp 4 ounces, other days it's 4 hours and only an ounce before refusing. There is NO rhyme or reason to it. No consistency.

I've been considering switching to a sensitive formula, but I just don't see the correlation because the refusal started the DAY he got RSV and has continued even though he seems better. If we see a GI doctor and they come up with a milk allergy, I will for sure switch, but I don't want to shock him when he's already having issues if cows milk isn't the issue, KWIM?
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #9  
February 26th, 2010, 10:46 PM
jesicaRN
Guest
Posts: n/a
hmmmm...mucousy poopies sound kind of suspicious. It may be the reason why Dr. are pushing for CF testing.
Sorry for the set back you had with feedings today hopefully tomorrow will be better. so sorry you feel worried to vent here--because HECK THIS IS A SAFE PLACCE TO VENT!!! so vent away because if you hold it in it really probably will build up faster. So by no means should you appologize for saying how you feel here when you need as much support as you can get! I am only sorry I don't have any more help for you. wish there was a magic answer you could get here. Hope you have a good night sleep and feel a little better in the morning. hang in there!
Reply With Quote
  #10  
February 26th, 2010, 10:49 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
from what I read CF is more greasy poop and not mucus poop.
We never told them about that before because it wasn't really an issue, and we definitely didn't tell the pulmonologist who suggested the CF testing because they didn't listen to us anyways. With CF he wouldn't be gaining weight but he's been PACKING IT ON lately. Over a pound in under 2 weeks. It's just the matter of GETTING him to eat. There seems to be no appetite.. or maybe his stomach hurts. It's too hard to tell with his age what the problem is because there's just no way to ask him.
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #11  
February 26th, 2010, 10:50 PM
MrsSteele's Avatar Mega Super Mommy
Join Date: Nov 2008
Location: York, PA
Posts: 1,637
Send a message via AIM to MrsSteele Send a message via Yahoo to MrsSteele
Please Please Please go see a GI specialist...I am hoping that they find something....maybe the RSV lowered his immune system and the milk intolerance is an immuno response that stayed? Hmmm...makes me want to do hours of research!!!
__________________
*People who mind don't matter, and people who matter don't mind.*
Reply With Quote
  #12  
February 26th, 2010, 10:53 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
I've done SO much research and it's all been fruitless. I can't find a SINGLE child with the same symptoms, same reactions, same issues for so long.
A lot of people say the mucus poop is due to teething.. and I can see that, I definitely can, because he is teething SO bad right now that he drenches his shirt in spit- but it's so hard to tell if it's coincidence or related to his eating issues.

If it's milk intolerance, he has no blood in his stools which is very common for that.

Nothing TOTALLY adds up. Everything has ONE symptom but no others. I'm going to call a GI on Monday but I fear they won't have space for us for another month just like the stupid Pulmonologist who is going on vaca and won't let us see one of the other THREE pulmonologists on staff to get this out of the way sooner
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #13  
February 26th, 2010, 10:56 PM
MrsSteele's Avatar Mega Super Mommy
Join Date: Nov 2008
Location: York, PA
Posts: 1,637
Send a message via AIM to MrsSteele Send a message via Yahoo to MrsSteele
Are you against trying some cereal or solids with him?...maybe that would help with the caloric intake and he might welcome the variety of consumption.
__________________
*People who mind don't matter, and people who matter don't mind.*
Reply With Quote
  #14  
February 26th, 2010, 11:06 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
he gets cereal every night and takes it pretty decently, and it has the same formula mixed in, so I don't think it's a taste issue there. Which leads to even MORE confusion
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #15  
February 26th, 2010, 11:08 PM
MrsSteele's Avatar Mega Super Mommy
Join Date: Nov 2008
Location: York, PA
Posts: 1,637
Send a message via AIM to MrsSteele Send a message via Yahoo to MrsSteele
hmmmm...well at least he is taking cereal...have you had any thoughts to switching him to mostly baby food for meals...wish it was as simple as he just didnt like the bottle anymore...this IS confusing...
__________________
*People who mind don't matter, and people who matter don't mind.*
Reply With Quote
  #16  
February 26th, 2010, 11:11 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
If he were older i'd consider it, but he definitely still needs the nutrients that formula offers instead of formula mixed with cereal so I can't just give up the bottle. Plus half the cereal he just kind of dribbles out of his mouth and the other half he NOMS like crazy, he really makes zero sense. If it were a bottle issue, he'd refuse EVERY bottle- but he ate almost 6oz before bed tonight with no problem
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #18  
February 26th, 2010, 11:17 PM
fishysticks's Avatar Platinum Supermommy
Join Date: Nov 2006
Location: South-Eastern Virginia
Posts: 20,417
Juice for Holden always gave him the mega runs, always considered it a bowel enhancer
__________________
Jenny, Mommy to Holden Milo 9-17-07 & Parker Cadence 9-30-09

Read my blog: Holdin' Holden!!

Reply With Quote
  #20  
February 27th, 2010, 12:53 AM
Veteran
Join Date: Nov 2008
Location: Colorado
Posts: 452
Did he take any meds for the RSV? Since it started then, maybe it has something to do with that.
__________________



Reply With Quote
Reply

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off



All times are GMT -7. The time now is 11:48 PM.



Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2014, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0