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Forum: 2009 Playroom

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  #1  
May 20th, 2013, 09:25 AM
Mega Super Mommy
Join Date: Aug 2008
Location: Lancaster, PA
Posts: 2,182
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Hi Everyone!

Hope some of you remember me. Its been a very long time since I have been on here. I forgot my password and took forever to remember it. We have had some rocky few years with Crystal. I hope everyone is doing well and the little ones too! I have been browsing and see mine is not the only one growing up too fast. Crystal is keeping us busy. She was finally diagnosed after 2 1/2 years with Joint hypermobility Syndrome and she had PFAPA. She is on medication now and is doing PT and getting her Sure Steps Orthotics in a couple of weeks. We are on the road to making her pain free for more than a couple of hours. She has started gaining weight and is actually growing. We had her tonsils removed in November to hopefully cure the PFAPA and she it seems to have worked. She hasn't had a fever since December. Longest she has gone since Nov 2010! Needless to say we are exhausted with the battle but relieved with the results. I wish everyone a fun and fabulous summer.
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  #2  
May 20th, 2013, 02:55 PM
*Jennifer*'s Avatar Platinum Supermommy
Join Date: Oct 2008
Location: California
Posts: 5,500
Welcome back! So sorry your little girl has so much pain all the time. I hope you find something to help her.
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  #3  
May 21st, 2013, 05:52 AM
Mega Super Mommy
Join Date: Aug 2008
Location: Lancaster, PA
Posts: 2,182
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Thanks Jennifer! They have started her on Naprosyn 2x a day for 4 months. We should start seeing if it relieves the pain in about a month.
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  #4  
May 21st, 2013, 10:13 AM
mommy2Breana+Brandon's Avatar Platinum Supermommy
Join Date: Dec 2006
Location: PA
Posts: 39,401
Welcome back...

It is good to hear from you and the update on Crystal.. I am sorry she is going thru some pain but glad you are getting answers.
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  #5  
June 3rd, 2013, 11:04 PM
Platinum Supermommy
Join Date: Apr 2008
Location: Sitka
Posts: 8,182
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Wow so sorry you both have had to go through all of that. Its good to get an update!
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