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  #1  
November 17th, 2011, 08:48 PM
frgsonmysox's Avatar Platinum Supermommy
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Reading about all the April babies and how much they can do has me so discouraged. Charlie isn't doing any of it. Today at therapy his therapists are getting concerned enough that they are adding two new therapists to his team, getting him a "switch" (a device that talks for him), and if he hasn't made vast improvements by the end of Spring they want him evaluated by a psychiatrist.
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  #2  
November 17th, 2011, 09:38 PM
CanadianLou's Avatar Laura - mom of 3
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What kind of things can he do? Is it mostly his speech you are worried about? Livi is behind, I notice she has always been behind a lot of babies in the group. My dr. is not even talking about therapy yet though, until she turns 2.

Hugs to you.
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  #3  
November 17th, 2011, 10:40 PM
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I hope you feel you get support here, but I do get what you mean. I think I'd find it hard in the same boat - I'd probably want to bury my head in the sand for a while and avoid reading about the other babies... because yeah... that sucks for you and Charlie, and I get that it must be really hard to read about what other babies his age are doing.

Big hugs to you.
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  #4  
November 17th, 2011, 11:13 PM
sandpaper06's Avatar Mom of 3 darlings
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I know it doesn't help much, but I understand where you're coming from. My kids have progressed much slower than most kids their ages. But even past that, my niece (almost 2.5) still doesn't crawl, babble, pull up, anything and my younger sister is the same way. I don't have the exact perspective of a mother of a child with many needs (M only ever had 6 therapies a month but has had them from 7 months on), but I do kind of get it. PM me if you need anything. ever. I'm a pretty good empathizer.

Huge !
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  #5  
November 18th, 2011, 06:01 AM
frgsonmysox's Avatar Platinum Supermommy
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Charlie isn't saying ANYTHING. He doesn't even babble. The most he can do it point and make an "uh uh uh" sound. I don't even get a mama He throws temper tantrums out of frustration for HOURS every day and he's begun getting violent with himself and others. He scratches at us, bangs his head so hard he constantly has bruises on his forehead, he pinches and scratches and pulls at himself. His therapist said she's never seen any child who hurt themselves so much I think if he could just communicate he'd be less angry. We tried a communication book with pictures, he got so angry he ripped the pages out. He refuses to sign.

He definitely doesn't know his letters or what sounds they make. The flashcard post on Facebook made me pretty upset. Charlie is no where near ready for something like that. He can't point to pictures when you ask him "wheres so and so or such and such".

MAYBE, if I'm lucky, I get one kiss a day. He likes to nurse, but thats about the only affection I get. Chris and I are starting to worry he has Aspergers like Anthony.

He is still nursing around the clock. About 18 hours a day or so he is nursing still. I have no idea what I'm going to do when baby "Slater" comes.
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  #6  
November 18th, 2011, 07:06 AM
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i feel the same way about michael. i've actually been thinking about making a post about autism for a while because i really worry about it. Michael doesnt have most of the signs of it, but he doesnt talk at all and doesnt respond to his name. His therapist doesnt think he's autistic because there are a lot of other things he does that arent typical for kids with it but i can't help but worry bec/ when i look up signs, not responding to your name is the first one. he does babble, a lot which is even more frustrating for me that he wont form it into words. for the past few therapy sessions he barely made any noise while she was here. He was actually pretty social yesterday so his therapist is excited and that made me feel a tad better, but i just want ONE word We're going home for Christmas and i'm sure my 16 month old niece will be talking up a storm and its going to be so hard.The flashcard post got me a little also, as does videos of some of your LO's i've seen speaking in sentences and naming body parts/animals. I will say this (hopefully no one takes it the wrong way), it does seem to always been the same kids that are really early with things, and the same ones who are bringing up the rear with most things to me... i tend to not respond to a lot of posts about things like that but then i feel rude
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Last edited by Sam914; November 18th, 2011 at 07:09 AM.
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  #7  
November 18th, 2011, 10:47 AM
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I'm sorry, Beth. Just wanted to offer support and
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  #8  
November 18th, 2011, 12:35 PM
Kittynoah's Avatar Mega Super Mommy
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That would be really frustrating. I don't have any advice, other than to offer some hugs.
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  #9  
November 18th, 2011, 01:53 PM
JaxonsMom2010's Avatar Mega Super Mommy
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I totally understand your concern regarding Asperger's. My middle son has it, and it makes me more aware of things such as milestones. There are a lot of things that J isn't doing either. And he is one of the oldest babies in the group. And reading or seeing different things that others are doing - makes me worried. J didn't crawl or walk several months behind most of the babies. He isn't talking in sentences. He doesn't know any of his body parts except his eyes (and it is not because we don't try to teach him). He can't use a fork or spoon much less use it right. He doesn't imitate us (that is the one that really worries me). He doesn't like to interact in play (another thing that worries me). I could keep going.

I feel sometimes like I am not a good parent and it is my fault because I can't stay at home with him.

I am here for you!
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  #10  
November 18th, 2011, 02:55 PM
amazing_love's Avatar Platinum Supermommy
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I'm sorry I can only imagine how difficult that must be. I just wanted to offer some
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  #11  
November 18th, 2011, 05:23 PM
Shantastic27's Avatar Mega Super Mommy
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I'm really sorry Beth...that has to be so difficult.
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  #12  
November 18th, 2011, 07:47 PM
palmetto_moon's Avatar Mega Super Mommy
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So sorry Beth. Sending you hugs.
Mia is no where near ready for flashcards either. She doesn't know any letters or sounds. I haven't even thought to worry about it though...

I do sort of know how you feel. One of my twins is pretty significantly behind. He's five and can only say the alphabet to "G". He still can't write his name or anything. Therapies have helped him quite a bit and his speech has gotten so much better but it's been a long road. He did the opposite of Charlie though, instead of getting frustrated and mad, he would just get frustrated and give up. So if, for instance, his twin would take a toy from him, instead of yelling or trying to get it back, he'd just sort of walk off and accept the fact that she took his toy...so sad.

I wish I had something better to tell you. I don't even know what to suggest other than to just stick with the therapies and get as many services for him as you can. I hope that things pick up for him soon...Hugs, Beth. Please keep us updated.
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  #13  
November 19th, 2011, 10:32 AM
LisaBrown's Avatar Mega Super Mommy
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I'm sorry Beth. That has to be really hard. Lots of mama!
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