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Forum: 2010 Playroom

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  #1  
January 17th, 2012, 12:10 PM
Kittynoah's Avatar Mega Super Mommy
Join Date: Jun 2009
Location: St. Louis
Posts: 4,367
So many of you on facebook already know some of this, but I thought I would give a little update on Julia.

She is now 3 months old and super cute! We found out that she will qualify for early intervention with the state for vision impairment so we should be having her assessment soon. She will be working with a vision specialist to make sure her gross and fine motor skills as well as speech/language develop normally.

We had to fight the insurance company to get them to pay for her contact lens (the initial lens was 400 bucks and each additional lens throughout her childhood is 150). Thankfully, we have an awesome doc who did a "peer to peer" phone call with a doctor at the insurance and got it approved. We will have to go through that process everytime she needs a lens, but at least it will be paid for.

We got an initial contact on Friday, but it doesn't fit well. It pops out about every 2 hours! The one time it popped out - we didn't notice immediately and couldn't find it. We searched and searched and eventually found it in the carpet near where she had been fed. I had a complete meltdown and cried because I was so overwhelmed at having to do this for 2 years. It is so stressful, constantly looking in her eye to make sure the lens is there. So we called the doc and he is having another lens custom made with a different shape to try and fit it better. Because her eye didn't form correctly, her cornea is steep and normal contacts don't stay on her eye. I am praying this next lens works because we already tried on 7 lenses before getting this one.

As soon as this next lens comes in, we will start patching. Her weak eye has already started wandering because her brain has not connected with that eye. She may need surgery to correct those muscles in the future. She will definitely need another surgery to evenutally put in a lens implant.

She is definitely my high maintenance diva! She is finally smiling a bit and trying to roll over.

If you made it through this - go get yourself a cookie!
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  #2  
January 17th, 2012, 01:26 PM
Platinum Supermommy
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Location: Bay Area CA
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So glad the insurance is at least paying for the contacts! That must be a big relief! I hope the new lens fits her better!
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  #3  
January 17th, 2012, 04:52 PM
palmetto_moon's Avatar Mega Super Mommy
Join Date: Jul 2009
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Wow Laura! I would be totally stressed. I can't imagine trying to keep a contact lens in a baby. I am so happy for you guys that you have a great doctor who stepped up to help out with insurance issues. I can't imagine having to fork over $400..that would stink.
Glad to hear that things are otherwise going well. Your kids are so cute- I sure wish you'd have put pics with your update! Let me know if you ever need anything...I'm only about an hour away...
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  #4  
January 17th, 2012, 05:12 PM
Meganpixel's Avatar Mega Super Mommy
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Posts: 3,964
wow- you are amazing momma!!

I can't even imagine wearing contacts in my own eye.

btw - Julia is beautiful!!
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  #5  
January 17th, 2012, 08:35 PM
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Location: Australia
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Wow that must be so stressful for you all. That is wonderful news about having a great doc and getting the lens paid for though!
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  #6  
January 18th, 2012, 07:15 AM
Shea131's Avatar Peyton Rylee's Mommy!!
Join Date: Sep 2009
Location: Illinois
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I really Hope the new contact is a better fit! Does your daycare put it back in when it pops out or can she not wear it to daycare? Poor baby girl. She's lucky to have you as a momma cuz I know you are taking amazing care of her!
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  #7  
January 18th, 2012, 01:52 PM
sandpaper06's Avatar Mom of 3 darlings
Join Date: Aug 2009
Location: Denver, CO
Posts: 2,590
You are amazing Laura. I'm so glad insurance finally got on the ball and is paying for her contact. But I'm sure it is so hard. I hope this next one fits better!

And I'm curious about daycare too. Does she wear it there?
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  #8  
January 18th, 2012, 02:25 PM
Kittynoah's Avatar Mega Super Mommy
Join Date: Jun 2009
Location: St. Louis
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Right now she isn't wearing the contact to daycare because it is popping out so much. Once we get a better fit she will be wearing it daily - she will actually sleep in it for a week. My day care provider will have a contact case and some saline in case it pops out. If we are having lots of trouble, we are considering switching her to a center based day care that deals with special needs and has a nurse on site. We are hoping we don't have to do that and the contact stays in.
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  #9  
January 20th, 2012, 07:07 PM
Amanda C's Avatar Platinum Supermommy
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Location: East Texas
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Insurance can be so annoying! Glad your doc got it covered though. Hopefully you'll find a better fit for her. Shes a cutie!
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