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Rory Update, Scoping Results


Forum: June 2013 Playroom

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  #1  
November 27th, 2013, 03:27 PM
Mega Super Mommy
Join Date: Sep 2010
Location: Cincinnati, OH
Posts: 1,834
Well. We kinda got a mixed bag here. We found nothing that would explain Rory's poor eating abilities. Everything on that front came out lovely. Instead, we found out that there is a "vascular compression of the left mainstem bronchus" which basically means that the artery that runs between Rory's heart and his brain is elbowing in on his bronchial stem. It's not severe enough to restrict his airflow or oxygen levels but it is something to run even more tests and studies on to determine if it is something to be fixed surgically.

What I couldn't get out of his doctors was if this was the source of his eating difficulties. What I have read so far suggests that it could obstruct his eating if the compression was enough to bulge into the throat/esophagus. But his GI doctor said that they ran into no obstructions during the scoping which says that no, this is not affecting how he eats.

So, we still have no idea why he isn't eating normally. He will be getting the G-tube in 2 weeks. And now we have to schedule a new shipload of testing and studies and involve more specialists. Awesome. Possum.
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  #2  
November 27th, 2013, 05:24 PM
navywifey2003's Avatar Home Birth Mama
Join Date: Dec 2007
Location: Clovis, CA
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Ugh how frustrating! I hope you can figure things out!
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  #3  
November 28th, 2013, 04:51 AM
Mega Super Mommy
Join Date: Dec 2012
Location: Northeast USA
Posts: 2,137
I am so sorry. Our son Alek had eating issues. Nothing as severe as Rory. Although I remember how stressed I was about my son not eating and losing weight. I think it caused me to loose a huge amount of weight as I could not eat when I saw him not eating. I hope they can change things really quickly.
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  #4  
November 28th, 2013, 04:14 PM
Mega Super Mommy
Join Date: Sep 2010
Location: Cincinnati, OH
Posts: 1,834
I have the exact opposite problem, lol. I can't STOP eating. I've put on so much weight it's terrible
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