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Update -- Walking and Anemia


Forum: June 2013 Playroom

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  #1  
July 5th, 2014, 03:42 AM
alittlelost's Avatar Platinum Supermommy
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Good News:Isabel's walking now! First steps were around 11 months, taking a few steps at a time started at 12 months, and since 12 1/2 months she has been walking up to 20-30 steps at a time (I think that counts since that's about as many as it takes to cross any room in the house lol). I'm surprised because my other two preemies (born at 8 months) walked at 13-15 months, and Isabel was born at 7 months, so I really didn't expect her walking until later. Size wise, she is also caught up. Doctors said most preemies take 2 years to catch up and are impressed Isabel caught up so quickly. I am too, especially considering she spent the first 9 months of her life sick with one serious problem after another. She also does a lil talking, waves, dances, recognizes animals, and can do the circle on the shape sorter. She seems energetic and strong, which makes the next part of this post confusing to me.


Bad News:
Isabel's 1 year labs came back anemic. We see a specialist about this on Monday. I know that generally anemic just means low iron, which is common in breastfed babies, but none of my other kids were anemic and I don't understand why her doctor thinks I need to rush off to a specialist and why they didn't just prescribe an iron supplement or suggest a change in her diet, such as eating more iron-rich foods or maybe me taking an iron supplement since Isabel is still breastfeeding. I don't think Isabel shows any of the symptoms of anemia either. I know a baby can seem perfectly fine and still be anemic, but I just can't wrap my head around this--especially that my doctor things I need to see a specialist over it. I asked what the lab numbers were and she told me she would send the labs to the specialist and I should talk to him about it when I get there. I don't know if I should be worried or if for some reason she thinks she needs to give me incentive to go to the appt. I would think by now she would know I go to all my appointments and am very proactive about Isabel's health. Sorry to ramble on like this over such a small issue! I know some babies are dealing with worse--I know compared to Isabel's first 9 months of life, this is NOTHING. But I just wish I had answers NOW and waiting sucks. Has anyone else dealt with this and if so, could you please (in detail if you don't mind) share your experience?! I want to know what to expect and how long it will take before Isabel is "better" again.


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  #2  
July 6th, 2014, 11:15 AM
alittlelost's Avatar Platinum Supermommy
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Any feedback would be great. I'm curious if anyone else was referred to a cancer center over anemic blood test results.
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  #3  
July 6th, 2014, 07:12 PM
TeresaV's Avatar Mega Super Mommy
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A cancer center? For real? I'm no doctor but that really seems excessive to me. I can't believe your doctor refused to give you her level. I would get a second opinion. How do you feel about her doctor in general? Is this the first "issue" you've had where you don't agree with her action? I don't have any first-hand knowledge in this area but it seems like a drastic first step. I hope you get some answers soon.
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  #4  
July 6th, 2014, 08:01 PM
MissyBee's Avatar Mega Super Mommy
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I don't have any advice. As far as I know, Porter's was normal. I hope everything is ok though! That seems a little excessive to me.
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  #5  
July 6th, 2014, 09:26 PM
navywifey2003's Avatar Home Birth Mama
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It does seem a bit excessive, I would demand the levels. There is no reason they should keep that from you.
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  #6  
July 7th, 2014, 08:18 AM
Madison.Hailey.Zack's Avatar Mom of 2 Girls and a Boy!
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I have no advice on the anemia front since Zack's came back normal. I am but wasn't diagnosed till I was a teen and I was told to take an iron vitamin. I have been taking prenatals since I was pg with my first m/c. I nurse Zack too but his doctors biggest worry was Vitamin D deficiency. I would call and ask for the numbers again and if they again refuse to give them to you then I would get them tested again somewhere else. Its crap that they would not give them to you. A cancer center seems extreme! Hugs hon
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  #7  
July 7th, 2014, 03:39 PM
alittlelost's Avatar Platinum Supermommy
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Thanks everyone. Actually, her doctor is really awesome and one of the reasons we go to her is because she is SO knowledgeable about everything. She deals with kids who have rare disorders that no one else in the world has. Of course, this is why I don't understand how she wouldn't be able to handle something like anemia. My husband said though maybe I'm just assuming it's iron-deficient anemia and it's another kind of anemia that's less common. I don't know. I thought the appointment was today but it's NEXT Monday so I have to wait another week. I'm going to call again tomorrow and ask for the levels. I feel like if it IS Iron shouldn't she wants to tell me so I can at least give more iron-rich foods in the meantime? I'm a little frustrated right now. I feel like they are giving me unnecessary reason to panic as I sit here wondering why they referred me THERE unless the anemia is really bad and if it's really bad HOW can she be doing so well otherwise? It must be mild, I would think. Sorry to ramble. I just wish I had answers and could be looking back on this thinking how silly I was to panic over nothing.
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  #8  
July 7th, 2014, 07:54 PM
ashj_1218's Avatar Hiya!
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I'm lurking but we are currently dealing with some anemia issues (we think) with our daughter. Her labs also came back low (at a year), but not excessively so. But we have seen a huge uptake in sleep lately and it's a sign that the anemia is getting worse. So we are having more labs drawn. But our practitioner is handling it. And I anticipate my practitioner, despite being great, is no where near as credentialed as yours (our town is small and she has basic patients, nothing extreme). So, I'd be asking WHY exactly this is her recommendation and stressing that her behavior over the lab work is causing you worry because you need to know what is happening with your own child. You can get lab work from the lab who drew it too, we do. So that is something to look into if you don't get anywhere with her.

And with her mild anemia, Jo showed no signs of having it. We only knew when the doc called and told us. But we have seen some more signs lately and they are excessive sleeping and more susceptible to cold temperatures (she gets chilled easier). She also is less physically active (which puts her close to the average kiddo, she is a wild-woman normally). I think our next step is supplements, since she still nurses a good amount. Plus increasing iron-rich foods. But our doc never even mentioned seeing someone else for this problem. I assumed it was prett basic to handle.
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  #9  
July 7th, 2014, 09:07 PM
alittlelost's Avatar Platinum Supermommy
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Thanks. I guess I have to find out what lab, if any, to talk to. They took the blood at the doctors office, and I am not sure if they process it themselves. They are pretty "big". They run the child find and early steps in our area, too. They are basically "the" doctor for all big issues. That's why we go there in the first place--and again why I'm concerned they would refer out for something like this, if for no other reason than why not tell me if it's the iron so I can do something in the meantime? I left a message today and hopefully they call back tomorrow or I will call again. I'm sorry you are going through this as well. We can't SEE anything wrong with Isabel, so IDK what to think. Her levels can't be that low, at least not yet, as if anything it's hard to get her TO sleep and she's very active, even surprisingly slow. And she's strong! She's caught up already at a year when they say most preemies take two. I just feel sorta lost right now and the referral to a specialist is unnerving since IME if it's iron-deficiency related I don't see why the doctor couldn't handle that? Also I wonder if it has anything to do with her being so sick in the first year (she got two colds, whooping cough, and then the flu, all back to back/overlapping) But she's been fine since I think around 9 months old? Sorry to ramble on. I hope things with your little one's anemia sort out soon too. Please keep me updated.
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  #10  
July 7th, 2014, 09:14 PM
alittlelost's Avatar Platinum Supermommy
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And if it's iron related, I might literally go berserk. I don't think I mentioned this, but they also have *a nutritionist on staff*. Wouldn't it make sense to have me talk to her about this? They even recently added dentistry to their services. It just seems like if they do all this, they could handle it without referring her out. I understand when they refer her to other places for other things, but for this they actually have me worried and I'm sure it's all for nothing, but still. I guess I just have to see what they say tomorrow. It was a care coordinator who called me about the lab results, not the doctor herself, so maybe she didn't know what to tell me and didn't think it was a big deal. I requested info from the doctor so maybe I'll get a different response this time.
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