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I am so sorry you had to go through all that. Same for us last fall with our oldest son. I dunno what your ped. is suggesting next, but if you are like I was, its very confusing to know which direction to go next. My ped. Was saying neurology, but we weren't ready for that. I didn't want to try a whole list of pain meds to fix things....I wanted to solve the problem at the root! Once we got the clear ct, we decided to think about chiropractic and diet. It ended up being that he has a gluten sensitivity. After going gluten free, the headaches stopped within a week and all the vision issues stopped as well. I am so relieved for you that the scan was normal...music to a mamas ears. I have never made myself so physically ill with worry as when we were getting that scan and the results. Funny thing, was that my son was sad when we told him there was nothing on the scan. He was hoping there would be something they could just take out of him to make the headaches stop, bless his heart! He had no idea of the magnitude of it all. Think about the diet thing. It could be something she has been fine eating her whole life that is just now bothering her. If you ever need to chat about it, message me!
Wow I know, it's so hard to know if we should just over look her symptoms now or what! I can tell you understand :-) I might have to check into that! . did you just do trial and error to figure it out that it was the gluten?
I had been doing some reading up on gluten on and off, and just realizing how bad it is. I guess most people are affected by it in ways they don't typically associate with diet, or if they do, they don't think of gluten first. Because I knew that so many people are sensitive to it, even if they don't have celiac disease, I wanted to start with eliminating gluten and then try dairy if we got no results from gluten free. It's daunting knowing you might have to try something drastic for a stretch of time, and have it still not answer questions, and I was so worried we could be trying diet changes for a year before discovering his issue. But, honestly, I would suspect gluten first with your daughter and then go from there. What gluten does, is it tears up your intestines and stomach, allowing all the junk a person could eat, to go straight into their bloodstream. So, true, it may be something else that she is eating that is actually the irritant, but its the gluten that often allows the other things to bother us in the first place. You could get her tested, but its a much better test just to go gluten free for a while and see. The tests aren't perfectly conclusive anyway. My son takes communion with no trouble. But he can't eat a slice of pizza without getting a headache. I don't think he's celiac, but he's just sensitive to it. I read something the other day that said if you have the bumpy dry sort of skin on the back of your arm, it could be an indication of a gluten allergy on some level. Whether or not that is true or not, I dunno, but, I do remember a marked change in my daughter when she was starting to eat more foods. She had the softest skin and then suddenly had bumps, like dry skin bumps all over the backs of her arms. She is not gluten free, but we are transitioning that direction as a family.
FYI, gluten free is way easier than you might think. If you need good recipes, I like the wellness mama blog. But she does NO grains, not just gluten free. She's more paleo. Also, you can buy gluten free rice pasta, that tastes almost the exact same. Theres even a sort of oreo type gluten free cookie called ktoos . And, most of the time, we just skip whatever bread we were going to have with our meat and vegetables. Your daughter might not even need to know she's on a diet while you test it out. .
Are her symptoms really bothersome for her?
Wow, my life's been hectic. Soo sorry for not replying sooner! As of now they aren't very bothersome. She did have some double vision again yesterday, but no, that headache was out of nowhere and she didn't have any since. But allergies would make sense, since right now it's 1:30 and I'm up with my son because of his milk protein intolerance. We had his first Birthday party, and I soo dilegently made him a dairy free cupcake instead of letting him dig in his cake. And then "someone" fed him their cake!! Ugh!! But anyways I might have to check into that more if her symptoms continue. Thanks!!