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Forum: December 2013 Playroom

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  #1  
June 13th, 2013, 04:59 PM
strong mama <3
Join Date: May 2013
Location: Long Island, NY
Posts: 111
and we learned our baby boy has Down Syndrome Met with the genetic counselor today for a while to talk about all our options and what pregnancy/delivery/life would be like if we choose to continue ...

...just so many emotions going through my head right now- if we choose to terminate I have to call tomorrow morning and make an appt for late next week.

it's just so hard to process...He looks so perfect on the screen, heard a perfect heartbeat every time, he was bouncing around yesterday during the CVS being silly waving his hands in the air....

Doctor says that the amount of extra fluid is growing and if it continues to grow the baby ends up drowning and you have a risk of losing the baby at any point during the pregnancy. And its too early to know at this point if there are other issues too- with like the heart or liver etc. other complications that usually come along with down syndrome.

At this point, all I can think about are my two amazing sons and trying to explain to him why mommy isn't pregnant anymore...I feel like the more pregnant I get the worst it will be to lose the baby or find out even more bad news...

My head hurts from thinking so much
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  #2  
June 13th, 2013, 05:07 PM
anybodyinthere's Avatar Mega Super Mommy
Join Date: Nov 2009
Posts: 3,286
. I'm sorry. This has to be a terrible decision to have to make.

Please don't think that a child with Down Syndrome will be unhappy or make your family unhappy. The children I have known in my life who have this are happy, funny, loving people whose families are amazing. That said, some of them have serious health issues, like heart problems, but some of them don't.

I hope you find peace, no matter what happens.
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  #3  
June 13th, 2013, 05:29 PM
redbirds's Avatar Blessed Again!
Join Date: Jul 2007
Location: CO
Posts: 18,447
Oh no!!! I was praying that it was just a fluke. ((HUGS)) That is such a hard decision and I pray for a peaceful decision and a restful heart. So, so sorry.
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Hat's off to Vicki for my cute siggy, thank you!
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  #4  
June 13th, 2013, 05:31 PM
summerbaby1's Avatar Veteran
Join Date: Apr 2013
Posts: 394
Praying for you darlin
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  #5  
June 13th, 2013, 05:33 PM
Jodimarie's Avatar Proud mommy to Kaiden!
Join Date: Apr 2011
Location: Minnesota
Posts: 1,425
I'm soo sorry..
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Kaiden Leroy born 12/26/2013 weighing 7 pounds 4 ounces and 21 inches long

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  #6  
June 13th, 2013, 05:49 PM
blakesgirl09's Avatar Mega Super Mommy
Join Date: Jan 2013
Location: Texas
Posts: 2,702
I'm so sorry. I hope that you have angels watching over you as you make this decision. Good luck.
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  #7  
June 13th, 2013, 05:52 PM
Mega Super Mommy
Join Date: Feb 2013
Location: Pennsylvania
Posts: 1,721
(hugs) I pray you can find peace with whatever choice you make, Thinking of you!
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  #8  
June 13th, 2013, 06:35 PM
Super Mommy
Join Date: Apr 2008
Location: CA
Posts: 685
I'm sorry to hear you're going through this. I'm sure this isn't easy for any parent. I've worked with adults with disabilities for the past 8 years. I've coaced several adults with downs and they were happy and lived good lives. I pray god gives you peace in this difficult time.
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  #9  
June 13th, 2013, 06:46 PM
feythful's Avatar Proud Dec '13 DDC Co-host
Join Date: Nov 2009
Posts: 4,923
I'm so utterly sorry that you're going through this. I'm praying for strength and peace in your decision making. Whatever you choose to do, I'm sure it will be the best decision for you and your family.
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  #10  
June 13th, 2013, 06:59 PM
mamakelly's Avatar Mega Super Mommy
Join Date: Nov 2009
Location: Kansas
Posts: 1,002
Many thoughts and prayers to you and your family! I'm so sorry your going through this!
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  #11  
June 13th, 2013, 06:59 PM
hugssandi's Avatar Mega Super Mommy
Join Date: May 2013
Location: USA
Posts: 2,032
(((((Mama and family)))))
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More people fail from a lack of encouragement than anything else!~ Mrs. James Hendry

I'm a Mary in a world of Marthas~Carol Barnier

I think you are too kind. Kind people give the people around them a hard time. You can't express yourself honestly, because you are worried about hurting other people's feelings, and that makes you miserable.~"Winter Sonata"
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  #12  
June 13th, 2013, 07:16 PM
Brittanie's Avatar just me
Join Date: Jul 2006
Location: Littleton, CO
Posts: 43,523
Only you and your husband can decide what is best for you and your family. What a horrible position to be in. I hope that whatever you decide, you can find peace in your decision. Until then,
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  #13  
June 13th, 2013, 07:20 PM
ChicaChels's Avatar Platinum Supermommy
Join Date: Jul 2008
Location: I'm a husker girl :)
Posts: 16,335
I can't imagine hearing the news you heard. My heart hurts for you.
That being said, children with downs can usually go on to live independent lives! They get jobs, have apartments, get married - it's amazing. Every person I have ever known with downs has impacted my life in the most positive ways you can think of.

I do know a JM momma who had a baby with downs and she had a heart problem, if you PM me I can put you guys in to contact and you can talk with someone who has gone through it. Her baby had heart surgery at 4(I think?) months. She was unaware her daughter had DS before she was born, so it was a HUGE shock to her.

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December 9, 2013
5:20PM 8lb3oz 20.5"
Hospital water birth
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  #14  
June 13th, 2013, 07:41 PM
Mega Super Mommy
Join Date: Mar 2013
Location: Utah
Posts: 1,304
I'm so sorry! You and your family are in my thoughts and prayers. I know to will make the best decision for you and your family.
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  #15  
June 13th, 2013, 08:13 PM
Mega Super Mommy
Join Date: Aug 2009
Location: CA
Posts: 1,676
I'm so sorry that you are going through this. My thoughts & prayers are with you.
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  #16  
June 14th, 2013, 01:31 AM
Mega Super Mommy
Join Date: Aug 2007
Location: Southern Germany
Posts: 4,654
Oh my gosh, this has to be so overwhelming and sad for you and your family. Please don't let anyone tell you how you should feel or what you should do. You need to make what decision is best for your family, whatever that may be, and either way we will be there to support you.
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He's here!
Cody Ryan
December 3, 2013 at 433 pm
7 lbs 6 oz, 21 inches
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  #17  
June 14th, 2013, 03:06 AM
Papasgirl's Avatar Down Syndrome Pregnancy
Join Date: Jul 2009
Location: Boston, Ma
Posts: 4,494
My heart, thoughts and prayers go out to you and your family as you go through this. I hope you find done peace with whatever you choose to do.
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Baby Girl Anastasia is my Rainbow!! Diagnosed with T21...
We will journey together
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  #18  
June 14th, 2013, 04:44 AM
strong mama <3
Join Date: May 2013
Location: Long Island, NY
Posts: 111
thank you ladies...I really appreciate the thoughts and prayers during this difficult time!

My husband is already saying this will be impossible...we have two young children already (4,2) My husband works long long hours so I'm home doing it alone most of the time.... and $$ wise we are already living at our means idk how we would handle a crazy amount of medical bills etc. .....

I feel like its harder for me to make a decision than him because I've fallen in love! I feel him fluttering around when I lay on my back and last night it made me break down and cry....
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  #19  
June 14th, 2013, 05:26 AM
Ms_jamie's Avatar Super Mommy
Join Date: Nov 2009
Location: Norfolk, VA
Posts: 697
Send a message via Yahoo to Ms_jamie
<<hugs>>
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  #20  
June 14th, 2013, 05:27 AM
lily26's Avatar Mega Super Mommy
Join Date: Jul 2011
Location: Canada
Posts: 1,071
I am so so sorry you have to go through this I will pray for you that God will help your family make the best decision for your family.

Know that regardless of your decision we`ll be here for you sweetie.


I used to work with teens with down syndrome and they`ve enriched my own life in ways that I never thought.

Someone once told me that people with disabilities are really angels in human form here to teach others how to simply enjoy life. Thats always stuck with me.

I`m not saying these to sway your decision, because honestly I have NO idea what it takes to be a parent of a child with downs syndrome. I can`t even imagine hearing that news.
I hope you find peace with this, regardless of what happens. I also hope you speak with parents of children with downs syndrome, or even talk to chicachels`s friend.

I don`t entirely know how the medical system works in the us *I was only there for a few years and it confused the hell out of me*, but isn`t there some kind of support you can get on if you continue on?

I hope if you do continue that the rest of the time you have a peaceful and healthy pregnancy.
If you don't I wish your entire family well, and to be at peace.

Just remember that even when you feel at your weakest, your still a strong woman, and that you will get through this

*hugs*
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2lbs and 14oz on November 19th, 2013 at 2:31am.
Have never been so in love before.
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