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O/T my 17 month olds MRI results.


Forum: December 2013 Playroom

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  • 1 Post By hugssandi

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  #1  
July 4th, 2013, 09:18 PM
n8tsmomma's Avatar Super Mommy
Join Date: Jun 2011
Posts: 918
My 17 month old Atticus started falling a lot and constantly hitting the same spot on his forehead. It got to the point he started falling multiple times a day and one time at day care he even fell and stood back up 3 times in less than 2 minutes. The first time I took him to the doctor they did an X-ray to check for fractures which came back normal. His doctor tried to pass it off as normal toddler even though he had been walking for 4 months with no issues. After the three rapid falls I was worried about a concussion because his teacher said he looked dizzy when he was falling so I took him to the ER who did a CT that was also normal. So I took him back to the doctor and FINALLY she took it seriously and got a MRI with anesthesia ordered. That was done on the 25th and a week passed and I had not gotten a call so I figured it was no big deal normal results again.

Yesterday I got a call from the pediatrician and she read me the radiologist report directly. I can't quote it but there is a 6.7mm mass of what appears to be grey matter where it should be white matter or something along those lines. Our local radiologist recommended an EEG to follow up so she sent the scan to a radiologist at Children's in Seattle. They basically said that the main concern with the findings would be seizures which I have brought up my suspicion that he has petit mal seizures many times to his pedi so she is referring him to a neurologist.

Sorry that was long I just don't even know what to think at this point. I guess it is a one day at a time thing but I am really not looking forward to driving in either Spokane or Seattle where the pediatric neurologists in Washington are.
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  #2  
July 4th, 2013, 09:48 PM
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((Hugs)) what can they do to prevent seizures or will it be a if t happens we deal with it at the time situation. Any health concern with a baby is so scary!
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  #3  
July 5th, 2013, 05:38 AM
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(((Hugs))) I hope for the best, it's so hard when little ones aren't well , especially when you have to wait to see what can be done. (((Hugs)))
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  #4  
July 5th, 2013, 06:04 AM
mgail's Avatar servantoftheKing
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Location: TN
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So sorry to hear this, praying all will be well and that they can treat whatever it is that is causing this.
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  #5  
July 5th, 2013, 06:11 AM
hugssandi's Avatar Mega Super Mommy
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(((((n8tsmomma))))) I don't think this is O/T at all~I can't imagine dealing with this while pregnant and wish I lived close enough to bring you a meal and do some house work. I'm so sorry~please keep us updated!!!!
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  #6  
July 5th, 2013, 07:13 AM
feythful's Avatar Proud Dec '13 DDC Co-host
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I'm sorry that you've received news that is worrisome, but I'm glad that you continued pushing the issue with the doctor. Those mommy instincts are often so right. It's so hard to process complex medical news over the phone. I hope that they get you into the specialists quickly and can find a resolution for you soon.
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  #7  
July 5th, 2013, 08:27 AM
summerbaby1's Avatar Veteran
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Oh wow.....gosh I am so sorry hon. You guys are in my prayers. Keep us updated!
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  #8  
July 5th, 2013, 08:33 AM
BoyerMom's Avatar Super Mommy
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So sorry to hear about all this. You and your family are in my thoughts.
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  #9  
July 5th, 2013, 11:03 AM
HorseGal's Avatar Mega Super Mommy
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WTG mom for pushing for your child. I know this is scary but at least you found it early. KUP!
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  #10  
July 5th, 2013, 12:02 PM
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Go job advocating for your son. A lot of drs like to say this is normal or that's normal. I hope everything works out dear.
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  #11  
July 6th, 2013, 09:25 AM
redbirds's Avatar Blessed Again!
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I agree... good for you for being persistent. I am so sorry your sweet little guy is going through this. I hope wherever you go, you are in the hands of the best care and you get answers ASAP, and in the end, there is a quick and easy cure for this. ((HUGS))
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  #12  
July 6th, 2013, 10:54 AM
lily26's Avatar Mega Super Mommy
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sorry to hear hun, I'll be praying for you and your boy

kup! I am really glad you pushed for your child though.
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  #13  
July 7th, 2013, 09:11 PM
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Good for you for being assertive! Dr. MacDonald at Sacred Heart Childrens in Spokane is great! Where are you located? I'm in Spokane area
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  #14  
July 7th, 2013, 11:40 PM
n8tsmomma's Avatar Super Mommy
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My friend goes to Doctor MacDonald and says great things about him too. I am in the Tri Cities so Spokane is quite the drive and I hate driving in big cities/traffic just thinking about it gives me an anxiety attack. The only good thing about a trip to Spokane for me is stopping at The Onion I love that place so much <3 but I am still going to ask if any of the doctors from either place come to the satellite offices locally. When Nathaniel was born he had hypospadias that required surgery and doctor star did his pre and post op here at the sacred heart satellite office so we only had to drive up for the actual surgery. My epilepsy specialist is in Seattle so I will talk to the Ped and figure it out. If I have to drive I will pick Spokane but if Seattle doc comes here I'll go with him because he does 60+ surgical procedures a year for epilepsy management. I have researched every pediatric neurologist I could find in the state lol.
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  #15  
July 8th, 2013, 02:22 PM
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I'm so sorry you're going through this! I'm also glad you were persistent and are finding out what's wrong. You're in my thoughts and prayers.
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