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High Risk U/S tomorrow at 8


Forum: Stillbirth

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  #1  
April 21st, 2009, 11:44 AM
heathernoel's Avatar Platinum Supermommy
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My freaking head is swimming. This won't be coherent, but y'all will understand.

Yep. Well...ok...turned into percentages, the odds of this l/o having a defect is next to nothing. But the screening came back on two tests...neural birth defects and trisomy. I've been researchign this board and the web, and so far...I know that tomorrow they will be able to tell me what's going on, if anything. It's JUST a screening, right? I'm over 35 now, overweight, with a previous stillbirth and a daughter with a congenital heart defect. The stories of false positives, even with the numbers they gave me, are far outweighing the true outcomes. But I'm beginning to think that we should be playing the lottery.

I"m also on my knees in prayer.

I have NEVER had a feeling that this l/o would leave us early. Just in case, we will do what we did with Marshall. Tonight, we will sit as a family and name him/her. We will carry our child as long as God will let us, and love him/her no matter what. Deacon Marshall has offered to come over and see us...I'll admit to having looked at another urn.

Oh, God. Merciful God. Please. Help us.
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  #2  
April 21st, 2009, 12:04 PM
lunarmagic's Avatar Platinum Supermommy
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I'll be thinking about you tomorrow.

I know I've been doing the same thing... well, not the same thing, but thinking about how to handle this if the baby dies, planning what to do. Planning for the negatives. I'm so sorry you're going through this. It's terrible.

I really hope there is good news from you in the morning.
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  #3  
April 21st, 2009, 12:18 PM
claire1979's Avatar mummy to a special angel
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im just so so sorry heather my heart breaks for u im praying more than praying ur little one os perfectly healthy hun big big hugs
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  #4  
April 21st, 2009, 12:31 PM
grlpisces's Avatar Dynamite w/ a laser beam
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I had done some research on Trisomy 18 after reading your previous thread. I know your mind is spinning right now, but please help me understand something ... is this a SCREENING or a DIAGNOSIS? And did you have a CVS or an amniocentesis done? Those are what provide an accurate diagnosis for Trisomy 18; all else is a screening.

I'm sorry if I'm causing confusion and asking inappropriate questions, but I have also heard that false positives for a screening are very common.

Keeping you in thoughts and prayers.
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  #5  
April 21st, 2009, 12:54 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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I'm assuming that you had a positive AFP screen. The good news is that, 90% of all positive AFPs are false positives. So you have a 90% chance of having a perfectly healthy baby.

I'll keep you in my prayers.
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  #6  
April 21st, 2009, 01:44 PM
heathernoel's Avatar Platinum Supermommy
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Thank you. Nat...you have no idea how much I'm hoping to get on the computer tomorrow and see pictures of your little one. I've been kind of thinking your bleeding is a twin thing...

My AFP screening is what came back. On one hand, I KNOW it's a screening. On the other hand, I'm shell shocked, and assume the worst.

Freak me.


We have a girl's name. If she is our fourth girl, she will be Tabitha Grace I love that!!! (Ok. So I loved Samantha and Tabitha from Bewitched. I had a cockatiel named Samantha...soooo...she's got to be Tabitha )
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  #7  
April 21st, 2009, 02:08 PM
Brittanie's Avatar just me
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Oh honey, I think it's so hard to remain positive when we're all expecting the worst when everything is normal anyway, kwim? So when something this gets thrown at you, you can't help but react the way you are. Many many prayers
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  #8  
April 21st, 2009, 02:28 PM
lunarmagic's Avatar Platinum Supermommy
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Very nice name, sweetie. And, like Brittanie said, we're all freaked out when everything looks NORMAL, much less when you get something that is very NOT normal. I don't know how we're supposed to survive this pregnancy thing. I mean, seriously.... after a stillbirth we should all get a FREE PASS with a perfect pregnancy. *sigh*
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  #9  
April 21st, 2009, 02:30 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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That's such a pretty name!
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  #10  
April 21st, 2009, 03:18 PM
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That's a great name! It's so hard to deal with the normal crap of a pregnancy and then to be told there is a slight chance and more tests are needed....it's rough emotionally for sure. I will be thinking of you and the little one tomorrow.
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  #11  
April 21st, 2009, 04:42 PM
lex1078's Avatar Waiting patiently....
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Oh dear! I"m so sorry to hear this. I hope all goes well tomorrow. You're in my T&P's.

Tabitha Grace is a beautiful name.
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  #12  
April 21st, 2009, 04:51 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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So I talked to my sister little more tonight. She's a genetic counselor and sees situations like yours everyday. She got mad when I told her that your AFP was "positive" for Trisomy 18. Apparently AFPs can't be "positive" or "negative". They indicate an increased risk for certain disorders, but cannot be positive or negative. But doctors didn't go to genetic counseling school and learn how they should phrase test results, so they call patients at home and tell them the baby's test was "positive" for a particular disease, when in fact the baby is only at an increased risk for the disease. My sister wanted you to know that an increased risk for T18 is much more hopeful than saying the baby is "positive" and is much closer to the truth.

I'm not sure if what I just said is helpful in any way, or even if it makes sense, it's kinda hard to explain by typing.
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  #13  
April 21st, 2009, 04:59 PM
heathernoel's Avatar Platinum Supermommy
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Thank you so much for the info. I got the meaning (so either your typing it wasn't that bad or my head's reaaaaaaaaaaallly messed up). I really appreciate your contacting her...you have NO idea what it means that you'd do that. Thank you!!

I am going to go lie down. I've worked myself into some semi painful BH...
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  #14  
April 21st, 2009, 05:39 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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One other thing she said is that if your u/s is normal, that is a pretty good sign that the baby does not have T18. She said that generally speaking, babies with t18 have multiple congenital anomalies that show up on u/s. While an amniocentesis will tell you for sure, a normal u/s is a really, really good sign.

I hope you feel better soon. I'm not psychic, but statistically speaking, odds are everything is fine.
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  #15  
April 21st, 2009, 08:33 PM
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Heather, I will be praying for you and your sweet baby.
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  #16  
April 21st, 2009, 11:22 PM
claire1979's Avatar mummy to a special angel
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thinking of u today hunnie x
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  #17  
April 22nd, 2009, 04:00 AM
BakingMommy's Avatar Mega Super Mommy
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I'm thinking of you sitting here this morning.

Tabitha is a good name-it's pretty and not overly used. Good choice!!! Plus, the only two Tabithas I know I like lol!

My heart's with you today. God will carry you through.
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