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Has anyone seen a geneticist or high risk OB?


Forum: Stillbirth

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  #1  
August 28th, 2009, 09:37 AM
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I am just wondering what to expect. I just want to get this ball rolling. I feel terrible that I am looking to have another baby less than a week after losing Declan, but I can't help it. I think it is because getting pregnant with him was the only think that eased the hurt after losing Eva. Anyway, I would like to know what sort of tests and/or precautions they may take. I would love to know if I will get the go-ahead to try again.
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  #2  
August 28th, 2009, 12:03 PM
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My Dr. was high risk. He wanted to put me on b/c for three months because he didn't want me to get pregnant yet. I didn't take them tho. I got pregnant the following March (six months after my loss) and still miscarried.

I remember that I wanted desparately to get pregnant again, so you're not alone there!!!

Good luck and God bless!
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  #3  
August 28th, 2009, 12:14 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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I have seen a geneticist and 2 high risk OBs. In addtion, my sister is a genetic counselor. What they are going to ask will depend on your age, your health histories, and the results of any autopsies that you may have had done.

I think the first thing I said to my husband after we were told that Ethan's condition was not compatible with life was "We have to try again." Your not alone in feeling that way.

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  #4  
August 28th, 2009, 12:32 PM
littlebeansmommy's Avatar Super Mommy
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I see a perinatalogist on top of my regular OB. Both did a bunch of testing on me before and after they found out that I was pregnant with this baby. I was glad they were very pro-active in trying to find a reason why we lost DS #2.
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  #5  
August 28th, 2009, 12:37 PM
liz bevan's Avatar Super Mommy
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my ob said that i should be on b/c as well.
I choose not to go on b/c and i didn't get pregnant yet
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  #6  
August 28th, 2009, 02:46 PM
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its different here in england hun i was high risk from the start i was given tests after jessica they came back as ''your normal'' thats what they told me and lee gee thanx for that like!!!!! but as soon as they know i was pregnant i was given extra care which im thankful for.
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  #7  
August 28th, 2009, 04:47 PM
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I have not had any special tests. I will ask for the blot clotting tests though, but any doctor can order those.

If I could I would be pregnant right now, but I need to pass my fitness test first, it is a huge priority at this point. I take the test in December, if I pass we will start TTC immediately.
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  #8  
August 28th, 2009, 06:03 PM
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I was seeing a perinatologist anyway because of Joey's omphalocele. They want me back for my next pregnancy but I don't want to go. I just think that all they're going to do is monitor me probably just as much as we did with Joey. I had growth scans every 4wks, NST's every week, two per week the last 2 weeks of pregnancy. The NST's come with a quick ultrasound. And I still lost my Joey. So they did nothing for me.

I actually want to either go back to my old practice with my midwives or be with a family doctor who deals with pregnancy. Plus the peri i was going to is 45mins away and I just DON"T have a good feeling about going to that hospital again. I can't imagine being in that room or a room like it and being okay emotionally. Plus they are a lot more "medical" there because its a bigger high risk level 4 nursery/nicu and I'm afraid they'll take the baby for too long. They don't like rooming in as much. My hospital from ds1 is much more family friendly and my midwives are amazing. I spoke with a friend who's a midwife and she said given my circumstances she wouldn't recommend going back to yale just because of the still birth...i was there because of the omphalocele not because of anything with me or the pregnancy itself.

forgot to add i had already had lots of genetic tests done on baby and me and dh because of baby's condition.
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  #9  
August 28th, 2009, 07:28 PM
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I was seeing a high-risk OB, a perinatologist, and met with a genetic counselor at the beginning of the 1st pregnancy because I was considered high-risk due to advanced maternal age, the fact that I went through fertility treatments, and that I was carrying multiples.

This time around, I am still seeing the same OB, seeing the perinatologist (although much less often than the 1st time around), and met with the genetic counselor again even though our medical history didn't change. The autopsy on Noah mentioned a 1) velamentous insertion of the cord; 2) hypercoiled umbilical cord; 3) enlarged heart surrounded by fluid. My doctors agreed that #3 was most likely a result of #1 and #2 (more by #2) since neither my DH nor I had a questionable medical history.

With the genetic counselor, we filled out a very detailed family medical history. We also had the option to test for different oddities (I forgot how many, but since medicine is a changing science, there may be more things that can be tested for even between last year and now). But again, since neither DH nor I had a questionable medical history, we didn't fall into a questionable category.

I hope that you are able to find some answers.
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  #10  
August 28th, 2009, 07:37 PM
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I was talking about ttc in the hospital after losing Clark. I just knew we had to try again.

I was going to ask if you'd had any testing, primarily for the blood clotting disorders. I would highly, highly recommend a full work up.

There are many blood clotting disorders and they are relatively common and can result in recurrent 2nd and 3rd trimester losses (as well as 1st trimester losses) They are also, luckily, usually very easily treated.

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  #11  
August 28th, 2009, 07:47 PM
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We were automatically referred to a geneticist after Sebastians autopsy results discovered the blood clotting genes. I saw the high risk OB in my clinic from the very start and started seeing a Perinatologist every few weeks once I hit 20 weeks. The Peri's job was basically to do the more thorough ultrasounds (even though the OB did them every 2 weeks herself). But his ultrasound machine checked cord blood flow, placenta function etc etc.
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  #12  
August 29th, 2009, 12:06 AM
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I have seen both a high risk ob and a genetic counselor. I got to see the high risk ob and genetic counselor when my 2nd daughter's AFP test came back abnormal. They thought she might have had downs, but my risk was 1 in 845, but for my age it should have been 1 in 1500. She ended up being just perfect. So I didn't have to go to the high risk ob's or genetic counselors when I was pregnant with my son. This last pregnancy however I got another abnormal AFP test agian. Of course I didn't think anything of it since we went through the same thing with my daughter a few years back. The genetic counselor was good but she scared the crap out of me......telling me about all these different diseases and defects and all the different tests they offer. She kinda freaked me out. Not to mention it didn't help me because I was already worried there may be a problem with this baby and there were a few complications. And we ended up losing our little guy at 20 weeks. So my OB said when I get pregnant agian......I only needed to wait till after 2 cycles and we could try agian. I was dying to get pregnant agian.....it was all I could think about. He said he would consider me high risk and see me more often and also any time I need to be seen to ease my fears he would squeeze me in and give me an ultra sound or hook me up to a monitor. That doesn't really comfort me much. Since we can still loose a baby at any moment and nothing really can be done about it. But it's nice to have them try and be supportive and to try and ease my fears.
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  #13  
August 29th, 2009, 05:49 AM
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I don't actually 'see' a perinatologist. The extent of my dual is going in to have some ultrasounds and possibly some monitoring. Not sure about NSTs once I get into the third trimester.

I've only been seen by a MFM specialist once and I have to schedule another ultrasound soon. That's pretty much it for me. Since Ds (unless it's a translocation) is not hereditary, there's only so much that can be done. I opted for the first trimester screening and that resulted in a screen negative. I still wanted reassurance that everything is looking good. Didn't want just anyone performing the ultrasound.
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  #14  
August 31st, 2009, 08:14 AM
dotcomkari's Avatar Bianca, Kai & Asia's mom
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My second pregnancy (my 5 year old).. I saw a high risk specialist in my pregnancy with her. The start of my pregnancy was normal.. but in the 3rd month I started bleeding and I became very freaked to say the least. I was put on bedrest and then was doing ok again.. but in the 5th month I had a lot of pre-term labor issues. That is when I was refered to the high risk specialist.

I almost lost Bianca 5 times in my pregnancy with her and it was a complete nightmare. I spent almost the whole last trimester on Bed rest.. and she was born a week early exactly... and while small for full term (5 lbs 11 oz) she was PERFECT!

My biggest advice if you have to see a high risk specialist. Find one you like.. some are very rude a snippy.. but others are very kind and carrying. Be honest with your feelings.. and LISTEN to them.. they just want what is best for you and your baby.. and they have good ideas and helpful things . And don't be scared to call them if you feel you have questions or concerns.
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