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Forum: Stillbirth

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  #1  
October 7th, 2009, 11:36 PM
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I'm just wondering...

how come some of you declined an autopsy for your Angel? Was it because you just didn't want to think of your baby being examined in that way or was it due to personal belief / religion?

Jon and I opted to do an autopsy. We *thought* they would be able to pinpoint why Katrina's ventricles got as huge as they did. Unfortunately as soon as they cut into her brain, it basically deflated on them because there was SO much excess fluid so they told us her brain was much worse off than they were able to tell by the u/s alone; but they were never able to give us a reason - which makes me really sad. I'll never know just how much our beautiful Katrina suffered inside my womb. Looking back though, I'm very glad we opted for me to do the amniocentisis, because since they didn't find anything in the autopsy, at least the amnio ruled out her issue being a genetic problem, so even though I'm terrified about this pregnancy, at least I don't have to worry (that much) about the same thing happening again.
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  #2  
October 8th, 2009, 05:18 AM
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We declined because I didn't think I could live with a "We don't know what caused this" report mainly. He had the omphalocele and the 2 vessel cord and there was any number of things that could have gone wrong internally with those two things. The other thing is he was born with the cord wrapped so tight the dr. had to cut it to unwrap it, she couldn't loosen it enough to get it over his head when he came out (normally they can un-loop it before the baby is even fully out) and so even with his other problems, she was convinced it was a cord accident. There was no meconium in my amniotic fluid though so that made me feel better because meconium is a sign of distress, I just pray he passed peacefully.

We also had been through so much...with all the ultrasounds, the amnio, the stress on his body with the omphalocele...plus we would have had to give him back sooner than we did if we wanted the autopsy. They could have "brought him back to us after" but I didn't want that. He'd been through enough, we just wanted him to be at peace.

We also did an amnio which came back normal, so the changes of having 2 "o-babies" is VERY VERY low.
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  #3  
October 8th, 2009, 07:16 AM
grlpisces's Avatar Dynamite w/ a laser beam
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We opted to do the autopsy because even though I was considered high-risk because of the way the twins were conceived, my age, gestational diabetes, and multiples ... neither Nate nor I were considered high-risk as far as any genetic anomalies running in either of our families. We were REALLY puzzled as to why Noah was born sleeping.

There were three main things that the OB pointed out to me in the autopsy report: velamentous insertion of the cord, hypercoiled umbilical cord, and excessive fluid surrounding the heart. He said he doubted very much that the heart was the prime reason for his death. Instead, he suspected that it was more the hypercoiled cord that deprived him of oxygen and thus made the heart work that much stronger to pump oxygen until finally, it simply stopped beating. Thus, I attribute Noah's death to a cord accident.

The slap in the face? The autopsy report showed that everything else about him was absolutely perfect. My baby boy had otherwise nothing wrong with him. I couldn't help but wonder how long my poor Noah had struggled in the womb to get oxygen into his system. It pains me to think how he must've been fighting to stay alive
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  #4  
October 8th, 2009, 07:21 AM
NutMeg76's Avatar Platinum Supermommy
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I did opt to have an autopsy. I had read an article a few weeks before my loss that talked about autopsies for stillbirth and how even if it doesn't give you answers it can help in finding similarities and maybe find a cause that is un-known right now.

He had been dead for a while, so it wasn't a very good autopsy, it didn't give us much information. I am actually not even sure they did anyting besides examine him from the outside because the report didn't mention his organs or brain or anything.

I think if I ever had another loss, I would still ask for the autopsy.
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  #5  
October 8th, 2009, 07:22 AM
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At first we did not want to do the autopsy for the exact reason you stated...I did want my child examined like that. But after talking further with the specialist, we opted to do the autopsy just in case the amnio and blood tests came back inconclusive. We haven't received the autopsy results back yet but the amnio showed that Eli had Trisomy 13 and my blood tests showed that I had CMV virus so I can't imagine that the autopsy is going to tell us much else.
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  #6  
October 8th, 2009, 07:54 AM
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To me, since the cord was wrapped so tight he had to cut the cord before she could be delivered (and almost couldn't get the scissor things between the cord and her neck to cut it), I figured that was proof enough of the cause of her death. For me we declined, not because I didn't want her to be examined like that, but because I wanted it to be over. I didn't want to wait for the autopsy to be done to move on to the next step of cremation and everything, especially since I was pretty sure that they would have concluded that it must be a cord accident anyway.
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  #7  
October 8th, 2009, 08:06 AM
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For me, the only reason we delivered Ethan (initially) was because we couldn't have an autopsy with a traditional termination and we needed answers. In the end it was really the right choice. We needed an autopsy because although it was obvious Ethan had anhydramnios, the doctors didn't know why.
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  #8  
October 8th, 2009, 08:50 AM
SarahBethsMommy's Avatar Mega Super Mommy
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We weren't given the option of an autopsy. No one even mentioned it. So we have no idea what caused his death. There was no obvious reason for it at all.
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  #9  
October 8th, 2009, 10:28 AM
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We declined an autopsy. They told us it -could- help figure out why he didn't develop properly and if it was genetic or not but it wasn't a guarantee. All the doctors were so -excited- about him. Excited to see their first case of tetra-amelia, they didn't act supportive or sensitive they just wanted to get their hands on him and ..... no. we couldn't. He wasn't just a fetus with birth defects. He's my son. And no one treated him that way. At all
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  #10  
October 8th, 2009, 10:43 AM
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We opted out of the autopsy. My OB said we wouldn't get any answers from it. DH and I were in such a vulnerable state that we agreed and now I'm regretting it. I don't know if I would have gotten any answers but maybe there could have been more insight on what happened.
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  #11  
October 8th, 2009, 11:25 AM
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We weren't offered an autopsy. It was also extremely obvious what happened as I had the hemorrhage and abruption.
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  #12  
October 8th, 2009, 12:39 PM
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When I just delivered him we said no to the autopsy . Just couldn't imagine to have him cut up. After a few hours we changed our minds because there was absolutely no apparent reason as to why he died. We thought that after getting autopsy we'll at least know if should get pregnant again or not. However, the autopsy only showed that he was perfectly healthy. There was a meconium in the amniotic fluid, so he was in distress. I wish I knew why. I wish I could've done something differently...
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  #13  
October 8th, 2009, 02:52 PM
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Quote:
Originally Posted by grlpisces View Post
The slap in the face? The autopsy report showed that everything else about him was absolutely perfect. My baby boy had otherwise nothing wrong with him. I couldn't help but wonder how long my poor Noah had struggled in the womb to get oxygen into his system. It pains me to think how he must've been fighting to stay alive
This is what makes me SO VERY sad about Katrina...EVERY other thing about her - her size/growth, her heart, her organs, just everything else was absolutely and utterly PERFECT. The Dr's said she was a perfectly healthy baby other than this ONE stupid blockage that didn't let her fluid flow out properly from her brain to her spine. One measly ***** little blockage is what made our baby have to be taken away from us. And I guess that's why we really wanted to autopsy...we mainly wanted to know WHAT caused that dang blockage - it could have ranged from it just not developing properly to something like a tumour in its way. Breaks my heart to think about it
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  #14  
October 8th, 2009, 03:49 PM
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There was no doubt that we were going to have an autopsy done. I already had a feeling he had Ds, but I wanted to know what exactly went wrong. And as with most Ds babies that don't make it he had multiple cardiac abnormalities. He went into congestive heart failure and passed away.

Placenta was fine. No cord abnormalities and no cord entanglement or stricture. We would still have done the autopsy if there was a nuchal cord since the mere presence of one is not associated with intrauterine demise or adverse perinatal outcomes.
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  #15  
October 8th, 2009, 04:18 PM
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Nuchal cord in general no, ds1 had a nuchal cord x2 and is obviously fine...but Joey's was so tight around his neck that there was no question in the doctor's mind thats what caused cord compression. I would recommend going to the pregnancy institute's website and reading about cord accidents...they actually happen more than you may think...all in all with the SUA (a cord defect), the omphalocele and the nuchal cord Joey had a 30% risk of stillbirth. Nobody told me or I would have pushed harder to induce when i knew he was healthy. On his 39 wk u/s picture i can SEE the cord around his neck.
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Married to my best friend Tom since 2004 (together since 1999)
Mommy to two little boys:
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and
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And finally holding my little girl,Felicity Rose, Born into Daddy's loving hands on June 9, 2010


Last edited by J_n_JsMommy; October 8th, 2009 at 04:20 PM.
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  #16  
October 9th, 2009, 09:39 AM
Fluffy Baby's Avatar Platinum Supermommy
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I declined an autopsy for Dominic because my doctor said they usually don't have a definate answer and I didn't want my baby to be cut on for a "we don't know reason". I did do have an "autopsy" (for the lack of a better word) for the placenta. Basically what they told me is that it had signs of meconium. And the death was more than likely from placental abruption and then he made a stool but his skin was not tinted or he didn't look like a meconium baby. I will never know for sure, but it doesn't really matter in the end, does it? Because our babies are still gone. As Dominic's second Angelversary nears and tristan's birthday party is the 24th, I have been thinking about my baby boy in heaven more and more.
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  #17  
October 10th, 2009, 05:53 PM
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We decided against an autopsy for Brady. He had already been died for a while and we were told by the doctors that we would most likely not get an aswer Why it happened. I also couldnt bear to think of putting him through that poking and proding him......I just wanted to leave him in peace. Part of me wishes we would have done the autopsy because I am still left wondering Why.
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