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Thank You And Update/Intro (Preg complication mentioned) (LONG)


Forum: Stillbirth

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  #1  
June 19th, 2010, 05:10 PM
HopefulMommy81's Avatar Platinum Supermommy
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Hi ladies,
Wow, I had no idea the reach of prayers that Pumpkin and I are getting. Megan suggested I come check out this board and I finally got up my nerve to come back on JM. I am still pregnant, HR still going strong and actually feeling increased movements since yesterday. For those of you who don't know me, I'm Jacque, 29, and am pregnant with my first baby- just over 21 weeks, due 10/27. I had two very early losses (CP) in June and October of last year. At 18 weeks 2 days (depending on which doctor you ask I was anywhere between 18 weeks 2 days and 17 weeks 3 days, I went in for my level 2 ultrasound and was found to have low amniotic fluid. The perinatologist whose office I was at did not work that day, but the U/S tech called my OB who had me go to L&D where they tested to see if I had pPROM. It was negative. I was told to try to take it easy (but not bedrest) and drink lots of water and was to be seen again on Tuesday (Monday was Memorial Day). I went back on Tuesday and the fluid level was still low but the baby measured well, heartbeat was strong, and kidneys looked good so the peri said it was due to placental insufficiency and put me on bedrest and increased fluids and follow-up in 2 weeks. The follow-up u/s was this past Tuesday. The fluid level is still "very" low and now the peri says it's because of the baby's kidneys although there was a good amount of urine in the bladder. I was told this is "incompatible with life" because the baby's lungs are not developing as well as they should be and I needed to be induced. DH and I refused and the doctor seemed very surprised by this. (BTW, I'm Catholic) They said there's no more need for bedrest or anything and I can return to work. Thankfully, another OB (a colleague of my OB since mine is on vacation- perfect timing, right?) said that since my original leave stated I would be off until July 1st we will keep it at that for now. DH and I are of course beside ourselves, but as a pediatric nurse, I have seen some amazing things happen, and I contacted the Fetal Treatment Center at UCSF which is about 4 hours from me and I have an appointment with them on Wednesday. I just feel like we need more answers even if they can't give us more hope. I hope that I don't actually have to officially join this board, but am aware that it's looking like I might.

So, that's me in a nutshell right now! I wanted to say thank you for all of the prayers!
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Annalise is hoping to be a big sister on June 28, 2014. Forever missing her big brother, Matthew, stillborn on July 1, 2010.
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  #2  
June 19th, 2010, 05:20 PM
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Hi Jacque. I'm so sorry you received the very sad news that you did. Knowing that your baby most likely won't survive is the most tragic news a parent could possibly receive.

I'm Stephanie and I lost my first baby, Katrina, at almost 23 weeks on August 9, 2008. She had severe ventriculomegaly, which stopped her brain from developing and backed up all the fluid into her brain. We were faced with the unimaginable heartbreaking decision of having to terminate. We chose to interrupt our pregnancy because we were told her condition, for as severe as it was, was not compatible with life and had she miraculously survived, she would have had a very poor quality of life and been in severe pain. We chose for her to die peacefully as we did not want our daughter to suffer and then die a painful death.

Many I will be keeping you in my thoughts. Please feel free to PM me if you need to talk.

Last edited by LaLaLa1; June 19th, 2010 at 05:23 PM.
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  #3  
June 19th, 2010, 05:33 PM
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I'm so sorry for what you are going through, Jacque. I truly hope that you get a better prognosis from the Fetal Treatment Center and that you never have to join this board, but know that we are here for you if you do. You are in my thoughts.
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  #4  
June 19th, 2010, 06:17 PM
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Hello. I'm so sorry for what you are going through. It sounds exactly like what happened with my Calypso.

At 18 weeks we discovered there was very little fluid and they wanted a repeat u/s in 2 weeks. Still very low fluid. They told me she would be stillborn. I saw a specialist who told me that it was very low and it was a wait and see situation.

My little girl was born at 29 weeks 5 days (my placenta started pulling away from the uterine wall) She was 3 lbs 1.9 oz and 13 inches long.

After she was born she did well in the NICU until she caught an infection called NEC which lead to her death at 23 days old
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  #5  
June 19th, 2010, 07:32 PM
HopefulMommy81's Avatar Platinum Supermommy
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Lissa- did they give you a reason for the low fluid?
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Annalise is hoping to be a big sister on June 28, 2014. Forever missing her big brother, Matthew, stillborn on July 1, 2010.
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  #6  
June 19th, 2010, 08:07 PM
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Jacque, I am so very sorry that you are going through this tough situation. I was told at 19 weeks that my little girl would likely be stillborn because of a congenital heart defect. She lived for one more week then died in the womb. I know what you mean about just wanting answers...even if they aren't what you want to hear. I truly hope that you don't have to join us here, but feel free to seek support here any time you like. We all know what it's like to recieve heartbreaking news. I will pray for you, your husband, and your child.
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  #7  
June 19th, 2010, 08:08 PM
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Quote:
Originally Posted by HopefulMommy81 View Post
Lissa- did they give you a reason for the low fluid?
While I was still pregnant she always had fluid in her bladder and they knew she HAD kidneys. They thought there might have been a blockage.

After she was born they did kidney tests and other tests to see if there was a blockage. And said everything was in working order. I found out after she died from hospital notes that she had decreased kidney function but had she not gotten NEC they would have been able to do dialysis and there was a good chance she could have lived
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  #8  
June 20th, 2010, 01:03 AM
claire1979's Avatar mummy to a special angel
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hi hun, im so sorry that your going throu this! im crossing everything and hoping for you a miracle!

hugs (())
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  #9  
June 20th, 2010, 06:41 PM
noworries
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Praying for a miracle!
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  #10  
June 21st, 2010, 02:09 AM
Jaidynsmum's Avatar Dreams do come true....
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Hoping and praying you never have to join the board hun.
I'm Yvonne and I found out at 17 weeks my daughter Ceilidh had anencephaly and would not survive. She was stillborn at just under 42 weeks, she held out until I was in labour.
xxx
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  #11  
June 21st, 2010, 04:51 AM
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((HUGS))

I am so sorry you are going through this
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  #12  
June 21st, 2010, 10:54 AM
HopefulMommy81's Avatar Platinum Supermommy
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Thank you for your support ladies! You are wonderfully strong ladies who are showing me that we can get through this no matter what.
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Annalise is hoping to be a big sister on June 28, 2014. Forever missing her big brother, Matthew, stillborn on July 1, 2010.
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  #13  
June 21st, 2010, 12:25 PM
hannah79's Avatar A little bit wicked
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Hi Jacque. I am Hannah. I lost my little boy last year. He was born at 29 weeks and lived for a few hours. For 17 weeks he lived with no fluid. He didn't have problems with his kidneys, but his lungs never had the chance to develop. I hope and pray for a different outcome to your situation.
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  #14  
June 21st, 2010, 05:48 PM
rebeccabaltimore and more's Avatar (rebeccabaltimore)
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Oh I am praying so hard for you right now. Even though things for my son did not work out like I had hoped (he had no fluid rather than low fluid), I have a friend whose low fluid issue reversed itself, she had a perfectly healthy and happy little girl.
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  #15  
June 21st, 2010, 08:32 PM
HopefulMommy81's Avatar Platinum Supermommy
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Thank you ladies! Wednesday afternoon is not coming fast enough!
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Annalise is hoping to be a big sister on June 28, 2014. Forever missing her big brother, Matthew, stillborn on July 1, 2010.
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  #16  
June 22nd, 2010, 09:10 PM
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Good Luck tomorrow! I hope you get better news, or at least some answers.
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  #17  
June 23rd, 2010, 01:23 AM
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I'm thinking of you today sweetheart <3
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