November 5th, 2011, 08:57 AM
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Linda
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Join Date: Apr 2009
Location: Wisconsin
Posts: 3,009
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I didn't know where else to go to ask these questions and I hope I am not in any way insensitive, that is not my intention. I hope someone can answer this for me since I can't even begin to imagine what you ladies have been through and just want to do what I can for my friend.
I'll start from the beginning. I met my friend about 3 years ago on an autism site and we remain friends to this day. We are both a part of a very small group of autism mommies who have all grown very close. In July her son get E.Coli, which ended up growing into TTP then HUS and alot of other complications. By the end of July things were not looking good, he was on life support and dialisis, and every other type of support. He was having uncontrollable seizures, his kidneys were not functioning like they are supposed too, etc. The doctors were fearing the worst but then he started to slowly recover. About two weeks ago he started a slow bleed from the brain (which they thought was an after effect of all the seizures) and it just went down hill from there. A week and a half ago the doctors told the parents that there was nothing else they could do but keep their little 4 year old boy comfortable until he went to be with God.
I have been trying my best to be supportive, just be there to listen (read), but feel like there is more I could do. Today our group (which is all over the world) is going to release balloons to commemorate such a beautiful life that was taken too soon.
I am into digital scrapbooking and would like to make a beautiful page of her little boy but not sure if it would help or hurt (if you know what I mean)? If a friend made a page about your child would you be touched or would it create more pain? I can't physically be there for her but want to do something special for her.
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