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I see it's quiet here, but I thought I would introduce myself anyway. My name is Emily and my 9 year old DS was just diagnosed with milk and soy allergies. We have known for a long time that he was allergic to milk and have avoided that, but this new soy allergy is going to take some getting used to!
Welcome!!! My name is Sarah, mommy to DS Danny (almost 4yrs). Danny is allergic to eggs, milk, soy, carrots, red 40, cinnamon, tree nuts, and strawberries.
Among Danny's first allergies we found out about were milk and soy. Initially it was a giant mess. It isn't very hard after the first few shopping trips though. The hardest part will likely be getting him to change what he will eat. There are good substitutes for just about everything as long as he is willing to try them. Walmart brand chicken nuggets are good for allergies. We are allowed to have Soy oil and soy lecithin. If he can tolerate those things will be much easier. If you allergist or doc didn't address that I would call and ask them if he should be able to tolerate it. The protein is the only part that bothers Danny and the oil and lecithin don't have the protein. Good luck!
Thanks for the reply! I've read about people with soy allergies being able to tolerate soy lecithin and soy oil, but the allergist didn't address that. I am going to eliminate all soy until he sees the allergist again in a few weeks, then I will ask him about that. He is also allergic to barley, beef and tuna. So nothing with malt in it either. (Bummer, no rice krispies or wheat thins or saltines (another of his favorite)) I'm glad he isn't allergic to wheat too, that would be tough.
My DS has always been an extremely picky eater and I'm having a tough time getting him to try new things. His staple is peanut butter sandwiches right now (made on homemade bread of course! ) I used to make him soy protein smoothies every morning to help with his nutrition. Then he started throwing up after having one every morning and that is what alerted me to the allergy. Now I feel like I'm at stage one again with helping him to get the proper nutrition.
Danny's GI had us go gluten free for a while to see if it would help. It didn't. Our new GI wants to try too... I can't do that again. We had a NIGHTMARE with only the egg milk and soy allergies at that point but since his diarrhea was so bad he was off all fruit except bananas and apples. It was a royal mess.
In regards to the protein powder you can check this forum. They have a lot of great suggestions that just might help.
Thanks for the link. I found a couple that look good that I am going to try. I made a smoothie the other day with peanut butter, rice milk, oats and banana and after, he threw up just like when I was using the soy protein mix. So now I'm thinking he is probably allergic to bananas. They didn't test him for that. So yesterday I made him the smoothie with an apple instead of a banana and that was fine for him. I'm going to try the banana again in a week and see what happens. Then I'll probably talk to his allergist about that. I'm looking forward to when we have figured it out completely and he stops the throwing up. I'm sure he is too!