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Danny had an endoscopy with a biopsy this morning and has a ph probe through tomorrow morning. The GI said he has many, many, many ulcers through his stomach and at least upper small intestine. She thinks it is yet another food allergy. I am seriously hoping otherwise but I am trying to brace myself for the possibility of cutting something else major. We don't even have the biopsies back yet. They were thinking Celiac's before the endoscopy so if we have both issues....another food allergy in addition to Celiac's or even just Celiac's in addition to everything he already has...I will be 100% overwhelmed... I just feel like crying...
I hope and pray it is not EE...if it is they will have to tube feed him. He is 100% refusing all the formulas they have had us try so if he has EE and we will need to use an amino acid based formula he will have to have a port placed. His GI isn't willing to do a long term NG tube which is fine by me I just hope this doesn't come to that...
Oh wow! I'm sorry that you guys are dealing with this. I just read some of your blog. I had no idea Danny was dealing with so much. It's always tough as a mother to see your child suffer. You and your family are in my thoughts and prayers.