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I haven't posted at JM in quite awhile but wanted to say Hi and that I will probably come around a bit. I'm Stephanne (31) married to Andrew (31) and we have two little boys, Samuel (5) and Nolan (2). Samuel was diagnosed with ADHD last June at 4 yrs. 10 months. He was also diagnosed with anxiety. I want to have testing done to be sure that's all we're dealing with. Unfortunately our Dr. is a complete joke. Our pedi, who I love, referred us because she won't manage children under 6. No testing was done, we answered some questions and he wrote us a prescription. He is currently on 25 mg. of Strattera. We've noticed a difference, especially in the nightmares, but in the bouncing off the walls stuff too. His preschool teacher filled out an evaluation and we decided to up the dose based on that which was a big mistake. His behavior seemed worse on the 40 mg. and we had serious stomach issues. We had to be very careful about what he ate before the pill, he needed a good amount of a bread product in order to keep it down and even then it wasn't foolproof. Dealing with puke 3-4 days a week was no good and he was very unhappy because he tends to eat like a bird anyway and we were practically force feeding him and he couldn't have yogurt or fruit for breakfast which are two of his favorites. So we went back to the 25 mg. and we're much happier that way even if he can still be a bit of a handful. We're trying to figure out our next step. We asked about further testing and the psych just said tell me which tests and I'll get you a referral. I thought that was his job to figure out which tests? I don't know the names of the tests. If I knew exactly what the problems are then we wouldn't need them! We're hoping to talk with his pedi. Unfortunately he's the only dr. of this type in our town who will take our insurance so we'll probably have to drive to Indy but whatever. I just want to be sure we haven't missed anything before he starts Kindergarten. I'm concerned about sensory issues and autism spectrum. I just can't get over how awful this dr is.......he's considered a child and family psych but there isn't one toy in the waiting room and they are always behind. He has never offered any other suggestions for behavior, diet, etc, I have to read about all of that. All he does is write a prescription, which he does need, which is the only reason we've tolerated it thus far, but I can't help wondering if there might be more we could be doing to help him.
So hi and I'll probably be back tomorrow to reply to some other posts here.
The best advise and referrals I actually received with DS was from his Occupational Therapist. As she was used as a referral from different specialists, she was familiar with some of the better specialists so gave me their contact details so I could take DS to see them. And the OT she gave to DS was extremely beneficial in the process.
Do you know of any OT's in your area? They normally don't diagnose only treat, but they know what to look for in the way of other possible underlying conditions so might be a good place to get guidance on what step to take next.
Also took DS to an Educational Psychologist and she also referred me to a fantastic specialist.
I know in the beginning I felt terribly lost, didn't know what or who to believe and when I didn't feel I was getting the right answers (maybe motherly instinct?) I pursued other avenues for information.
Good luck and hope you find a doctor that you feel confident with
Welcome Stephanne!! I am Linda, mommy to 3, Alex (7) has autism, SPD and ADHD, Katie (6) has pFAS and ADHD is part of that diagnosis, and Aiden (3) who probably has pFAS as well.
I'm sorry you aren't getting any guidance at all from your psychiatrist. It must be so frustrating. If he isn't doing great on his meds and upping them isn't an option, I would look into other meds that might do a better job at helping him control the symptoms. I would ask the psych to do a complete psycological work up on your son, looking at everything and anything, that way you know for sure what you are dealing with. It will probably take quite a while to get an appointment but it would be worth it in the end.
If you don't mind me asking, what symptoms does he show that you are concerned about sensory issues and autism? My son who has autism also has sensory processing disorder, where he craves input and can get quite hyper and unfocused when he needs it. I have found that a weighted blanket (or any blanket that is heavier) has a calming effect on him.
I hope to see you around the board and look forward to getting to know you and your family better.